research-article

Assessing MyData Scenarios: Ethics, Concerns, and the Promise

Authors:

Saba Kheirinejad,

Niels van Berkel,

Marianne Kinnula,

Denzil Ferreira,

Simo HosioAuthors Info & Claims

CHI '21: Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems

Article No.: 209, Pages 1 - 11

https://doi.org/10.1145/3411764.3445213

Published: 07 May 2021 Publication History

Abstract

Public controversies around the unethical use of personal data are increasing, spotlighting data ethics as an increasingly important field of study. MyData is a related emerging vision that emphasizes individuals’ control of their personal data. In this paper, we investigate people’s perceptions of various data management scenarios by measuring the perceived ethicality and level of felt concern concerning the scenarios. We deployed a set of 96 unique scenarios to an online crowdsourcing platform for assessment and invited a representative sample of the participants to a second-stage questionnaire about the MyData vision and its potential in the field of healthcare. Our results provide a timely investigation into how topical data-related practices affect the perceived ethicality and the felt concern. The questionnaire analysis reveals great potential in the MyData vision. Through the combined quantitative and qualitative results, we contribute to the field of data ethics.

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Cited By

Alorwu Avan Berkel NVisuri ASuryanarayana SYoshihiro THosio S(2024)Monetary valuation of personal health data in the wildInternational Journal of Human-Computer Studies10.1016/j.ijhcs.2024.103241185:COnline publication date: 25-Jun-2024
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cover image ACM Conferences

CHI '21: Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems

May 2021

10862 pages

ISBN:9781450380966

DOI:10.1145/3411764

General Chairs:
Yoshifumi Kitamura
Tohoku University, Japan
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Aaron Quigley
University of New South Wales, Australia
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Katherine Isbister
University of California Santa Cruz, USA
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Takeo Igarashi
The University of Tokyo, Japan
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Publications Chairs:
Pernille Bjørn
University of Copenhagen, Denmark
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Steven Drucker
Microsoft Research, USA

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https://dl.acm.org/doi/10.1016/j.ijhcs.2024.103241
Ko HJung S(2023)Development and Analysis of the Job Description for Dementia Care Center Nurses in Korea Using Developing a Curriculum (DACUM)Journal of Gerontological Nursing10.3928/00989134-20230918-0149:10(29-35)Online publication date: Oct-2023
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