research-article

Privacy Unraveling Around Explicit HIV Status Disclosure Fields in the Online Geosocial Hookup App Grindr

Authors:

Andreas Gutmann,

M. Angela Sasse,

Ann BlandfordAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 2, Issue CSCW

Article No.: 181, Pages 1 - 22

https://doi.org/10.1145/3274450

Published: 01 November 2018 Publication History

Abstract

mHealth applications ("apps") must be searched for and downloaded prior to use, creating a potential barrier to uptake. Integrating health interventions into existing online social environments removes this barrier. However, little is known about the effects of linking sensitive health information to existing online identities. Our qualitative analysis of online comments (n=192) explores the user views of an HIV intervention integrated into the geosocial hookup app Grindr. We find some HIV positive users report keeping their status private to reduce their stigma exposure, whilst others report publicly disclosing their status to avoid being stigmatised by others. Where users keep their status private, we find concerns that social assumptions may develop around these non-disclosures, creating a privacy unraveling effect which restricts disclosure choice. Using Peppet's four proposed limits to privacy unraveling, we develop a set of descriptive conceptual designs to explore the privacy respecting potential of these limits within this context and propose further research to address this privacy challenge.

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Pinch ABirnholtz JMacapagal KKraus AMoskowitz D(2024)The Subtleties of Self-Presentation: A study of sensitive disclosure among sexual minority adolescentsProceedings of the ACM on Human-Computer Interaction10.1145/36374088:CSCW1(1-27)Online publication date: 26-Apr-2024
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Index Terms

Privacy Unraveling Around Explicit HIV Status Disclosure Fields in the Online Geosocial Hookup App Grindr
1. Human-centered computing
  1. Collaborative and social computing
    1. Collaborative and social computing theory, concepts and paradigms
      1. Social networks
    2. Empirical studies in collaborative and social computing
2. Security and privacy
  1. Human and societal aspects of security and privacy
    1. Social aspects of security and privacy

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 2, Issue CSCW

November 2018

4104 pages

EISSN:2573-0142

DOI:10.1145/3290265

Editors:
Karrie Karahalios
University of Illinois & Adobe
,
Andrés Monroy-Hernández
Snap Inc.
,
Airi Lampinen
Stockholm University
,
Geraldine Fitzpatrick
Vienna University of Technology

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Published: 01 November 2018

Published in PACMHCI Volume 2, Issue CSCW

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Taylor JSimpson ETran ABrubaker JFox SZhu H(2024)Cruising Queer HCI on the DL: A Literature Review of LGBTQ+ People in HCIProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642494(1-21)Online publication date: 11-May-2024
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Orii LFeldacker CHuwa JThawani AViola EKiruthu-Kamamia CSande OTweya HAnderson R(2024)HIV Client Perspectives on Digital Health in MalawiProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642245(1-13)Online publication date: 11-May-2024
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Warner MGibbs JBlandford A(2024)Shifting Norms and Value Conflicts: Exploring the Effects of HIV Status Disclosure Fields in Sex-Social AppsArchives of Sexual Behavior10.1007/s10508-023-02801-553:4(1575-1589)Online publication date: 1-Feb-2024
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