We can't take care of our children forever, but a well-established system can

TFRD, established in 1999, has been an active force in advocating for rare disease patients in respect of medication, education, and employment, and will continue to give its best effort to light up the lives of many rare disease patients.

Know more about TFRD

246

Until October 2024, there are 246 diseases recognized by Ministry of Health and Welfare.

21858

Until September 2024, there are 21,858 patients registered in Ministry of Health and Welfare.

140

There are 140 kinds of orphan drugs in Taiwan.

RARE DISEASE

What is a Rare Disease? / Orphan Drug? / Rare Disease in Taiwan / RD & OD Act / Public Policy Issues.

PATIENT GROUP

There are more than 30 rare disease patient associations and groups in Taiwan.

WELFARE CENTER

The center combining functions such as production, rehabilitation, psychological consultation, skill training, family activities and social education.

News

Mar.19, 2024

North District Volunteer Recruitment Training

The "North District Rare Disease Volunteer Recruitment Training" held on March 17 attracted over 30 new volunteers from diverse backgrounds and various age groups. After getting to ...
Jan.20, 2024

Rare Disease Association Executive Summit

Given the scarcity of rare disease patients and the complexity of their conditions, finding help when faced with problems can be challenging. This makes it even more crucial for them to interact and ...
Nov.13, 2023

First White Paper on Rare Diseases

Over the past 20 years, Taiwan has become a global leader in rare disease care and human rights advocacy, as well as a model for countries around the world to promote rare disease policies. However ...
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Events

May.20, 2024

Cross-Disease Patient Fellowship Event

 Our organization and the Taiwan Organization For Disadvantaged Patients held the "2024 Cross-Disease Experience Day Fellowship Event for Rare and Disadvantaged Patients" ...
May.20, 2024

VHL Fellowship Event Successfully Concluded

The first fellowship event specifically for von Hippel-Lindau (VHL) syndrome patients was held on May 19th at the Taipei Bioinnovation Park, with eight VHL patient families and a total of ...
May.07, 2024

Relaxing Via Sound Therapy With Singing Bowl

On May 5, TFRD's Kaohsiung Branch held the "2nd Singing Bowl Sound Therapy Workshop" in the Tainan Cultural and Creative Park, with the aim of providing everyone with an ...
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