Vanessa Carter’s Post

Super important discussion on patient advocay on #AMR!

How can we empower patients and boost advocacy towards Antimicrobial Resistance (AMR)? On the 20th of June 2024, between 3pm - 4pm CEST, the European Patients' Forum (EPF) and The AMR Narrative will jointly host a webinar titled, “Patient Advocacy for AMR in the EU: where do we begin?”. This will be the first of a series of 3 webinars on the impact of AMR in terms of various patient groups in the EU and will serve as a platform for dialogues driven by patient organisations to support advocacy efforts. Join our discussion around: - How are patient communities impacted by AMR? - What interventions or ideas could be used to boost patient advocacy on AMR? - What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone both in the EU and globally. Register for the webinar here: https://lnkd.in/eBa6ZvDD #theAMRnarrative #AMR #AntimicrobialResistance #PatientAdvocacy

Presenting: the Sanofi Patient Community Charter. Simply put, it's a set of principles that guide our engagement with patients and the healthcare community. Developed with more than 80 patient advocacy groups around the world, this charter enables us to take patient engagement to the next level. Find out how we put patients at the ❤ of our actions: https://lnkd.in/eHu-rcnv #PursueProgress #DiscoverExtraordinary

How can we empower patients and boost patient advocacy towards Antimicrobial Resistance (AMR)? 🏥💊 🗓 On 20 June 2024 (3 - 4pm CEST), the European Patients’ Forum (EPF) and The AMR Narrative will host the webinar “Patient Advocacy on AMR in the EU: where do we begin?”. This will be the first of a series of 3️⃣ webinars on the impact of AMR on various patient groups in the EU and will serve as a platform for dialogue driven by patient organisations to support advocacy efforts. 💬 Join the discussion on: 👉 How are patient communities impacted by AMR? 👉 What interventions or ideas could be used to boost patient advocacy on AMR? 👉 What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone. Register here ➡ https://bit.ly/4bPAAxn

Patient involvement is wanted and needed in kidney disease research. This #MotivationalMonday, watch our National Patient Meeting Advocacy & Engagement Training Session explaining the value of patient insights and lived experiences in research and clinical trials: https://bit.ly/3u7tVhl #AAKPforPatients

Parexel recently hosted its first ever Patient Advocacy Group Forum, focusing on how socioeconomic status impacts clinical trial participation. The meeting focused on insights from a Parexel-sponsored survey of 4,000+ patients to better understand barriers to access and foster inclusivity. 📊 Watch below to learn how Forums are connecting representatives of diverse patient groups and using patient insights to shape clinical trials. 🤝 Interested in the survey insights? Find them here: #PatientAdvocacy #PatientInsights

Parexel recently hosted its first ever Patient Advocacy Group Forum, focusing on how socioeconomic status impacts clinical trial participation. The meeting focused on insights from a Parexel-sponsored survey of 4,000+ patients to better understand barriers to access and foster inclusivity. 📊 Watch below to learn how Forums are connecting representatives of diverse patient groups and using patient insights to shape clinical trials. 🤝 Interested in the survey insights? Find them here: #PatientAdvocacy #PatientInsights

This is great to share today: #Purple Day! Join us at Phormulate for the webinar “Partnering for Progress: Leveraging Patient Advocacy Groups for Better Ourcomes”! Also featuring Professor Rohit Shankar MBE! Register below 👇🏻! #patientadvocacy #epilepsy #pharma

Antimicrobial Resistance (AMR) is often described as a “silent” pandemic, even though the impact it has is far from silent. AMR is real and is a serious threat to medicine, surgery, and life as we know it today. Improving education, raising awareness, and implementing national action plans regarding AMR should be a priority, both on a personal, national and international level. A belated thank you to European Patients' Forum for organising such an impactful training, engaging young patients in critical discussions regarding Antimicrobial Resistance (AMR). From insightful discussions with experts in the field, to inspiring strategy training, STYPA 2024 has deepened our understanding of AMR and equipped us with the necessary skills to advocate for this cause. The EPF Youth Group #AMR #STYPA2024 #EuropeanPatientsForum #PatientAdvocacy #Healthcare #SilentPandemic #NationalActionPlans

Interested in the rare disease atypical HUA? Looking for a snapshot of what's important to aHUS patients & caregivers, or global advocacy efforts? https://lnkd.in/e793kNic  If you saw our recent newsletter, you'd know! Invitation's open, so check it out. #aHUS #cmTMA #TMA #complement #SHUa #newsletter