The Sumaira Foundation’s Post

Happy Rare Disease Day! Check out this video from PatientWing to learn more about Rare Disease Day and how PatientWing supports individuals with rare diseases.

Rare Disease Day is today, 29 Feb 2024 DYK: There is no specific test for atypical HUS, so aHUS is a 'Diagnosis of Exclusion' after ruling out conditions with similar characteristics (such as TMA). USTMA Consortium and Alliance is recognized for their expertise in both clinical and research areas. Thanks for adding visibility of atypical HUS! #atypicalHUS #aHUS #SHUa #TMA #cmTMA https://lnkd.in/eSyZcsxp

Today is Rare Disease Day! A time to honor, raise awareness, and generate change for the 300 million people worldwide living with a rare disease. Rare Disease Day is observed every year on February 28 (or 29 in leap years)—the rarest day of the year. Check out this video! youtu.be/zEQ828Lkxac #DisabilityInclusion #RareDiseaseDay #LeapYear #DisabilityAwareness

Today is Rare Disease Day. If you’d like to understand more about Ataxia, my elder son’s super power, please visit www.ataxia.org.uk or wwe.atsociety.org.uk #healthcare #healthandsocialcare #ataxia #atsociety #rarediseaseday2024 #rarediseaseawareness

Differences across the lifespan between females and males in the top 20 causes of disease burden globally: a systematic analysis of the Global Burden of Disease Study 2021 (The Lancet) https://lnkd.in/ddP-ysQY

Today on rare disease day, let’s acknowledge the patients living with rare diseases and let’s continue doing the work to find treatments. #rarediseaseday #rarediseaseawareness #raredisease #clinicalresearch

❌ Myth: "Only older people need to worry about vascular disease." ✅ Fact: Vascular diseases can affect anyone, regardless of age. Young adults and even teens can experience vein problems, especially if they have risk factors like prolonged sitting or standing. Let’s debunk the myths and spread the facts this Vascular Disease Awareness Month!

Did you know rare diseases were so common, collectively? With more than 7,000 rare conditions, everyone likely knows someone impacted by a rare disease. This #RareDiseaseDay, learn about the vast yet diverse rare community: bit.ly/RDD2024 Rare Disease Day is Feb. 29, 2024. ------------ Image Description: How Rare is Rare? Approximately 30 million Americans live with a rare disease. That's 1 in 10 of us. NORD logo. Rare Disease Day Logo. Show Your Stripes this Rare Disease Day. #MoebiusSyndrome #MoebiusSyndromeFoundation #ShowYourStripes

Today is rare disease day, here is one of the stats published. Let's work together to support those who have rare diseases! #rarediseaseday2024 #clinicalpharmacology #drugdevelopment

Today is rare disease day, here is one of the stats published. Let's work together to support those who have rare diseases! #rarediseaseday2024 #clinicalpharmacology #drugdevelopment