An in-depth exploration of the aHUS Patients’ Global Research Agenda, this series of articles dives deeply into 15 key questions that patients & caregivers would like researchers and clinicians to prioritize. https://lnkd.in/eiCkR9Mg 29 Feb 2024 is world Rare Disease Day!
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Welcome to Know Rare Research Week 💙 💛 Join us this week on social media as we explore new research, clinical trials and news in rare disease. What topics would you like us to explore? Let us know in the comments below👇 - #raredisease #rarediseases #rarediseaseawareness #medicalresearch #rarediseaseadvocacy #clinicaltrials #clinicaltrial #KnowRare
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On Rare Disease Day 2024, we want to honor the professionals leading the charge in rare disease research. Discover how Curewiki is facilitating connections between clinical trials and the patients who need them most. Let's collaborate to accelerate progress ➡️ https://lnkd.in/dNPRTY7T. #RareDiseaseDay #ClinicalTrials #Curewiki #RareDiseaseResearch
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Excited to share that my article titled "Exploring the Potential of Virtual Reality in the management of Cardiac diseases: A Systemic Review" has been published in the International Journal of Innovative Science and Research Technology! 📝This article delves into the promising role of virtual reality in revolutionizing cardiac disease management. Thank you to all who supported me along this journey! #VirtualReality #CardiacHealth #Publication #HealthcareInnovation
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Atypical HUS - Have you seen this snapshot of new aHUS research? https://lnkd.in/eW-DP6Pd Our virtual library, now with over 1300 aHUS-specific publications, to keep learning post- Rare Disease Day!
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The diagnostic journey for individuals with rare diseases is often a challenging maze, mirroring a complex detective story. In a perfect world, diagnosing and treating rare diseases would be like any given episode of the medical drama, House M.D., in which the intricate and multifaceted realm of diagnosing rare diseases is vividly portrayed. In this new article, we explore how this idealized portrayal, however, is a glaring departure from reality. This article delves into the multifaceted challenges associated with rare diseases for patients and physicians and reveals how practical market research applications can offer solutions to these complexities. #Healthcare hashtag #MarketResearch hashtag #RareDisease https://lnkd.in/gABEwYXy
🚀 [Point of View] Rare Diseases: A Diagnostic Odyssey. Unlocking Insights Through Market Research. The diagnostic journey for individuals with rare diseases is often a challenging maze, mirroring a complex detective story. In this new article, we explore the unique challenges faced by patients and physicians in the rare disease landscape and how market research can help. Discover how to uncover crucial insights that can lead to faster diagnoses and inform better treatment strategies. Join the conversation: How can market research make a real difference in the lives of those with rare diseases? #Healthcare #MarketResearch #RareDisease
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"You can do better and different research if you engage with patients…they are experts by experience." In our "Designing a digital patient-reported real-world study" webinar, Mark Larkin, Founder of Vitaccess, talks about the importance of patient involvement in real-world study design and how, particularly for rare diseases, it can produce better research. https://hubs.ly/Q02KyfH80 #patientcenteredresearch #realworldstudies
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Listen to the concluding episode of the Knowledge is Power series. The information we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease. https://lnkd.in/geDGVtVe
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A MUST READ!! Our own Talin Sesetyan dropping some wisdom on how to build robust and high-impact insights programs on #raredisease #patients and increase the speed to diagnosis. WELL DONE !!!👇🏼👍🚀
🚀 [Point of View] Rare Diseases: A Diagnostic Odyssey. Unlocking Insights Through Market Research. The diagnostic journey for individuals with rare diseases is often a challenging maze, mirroring a complex detective story. In this new article, we explore the unique challenges faced by patients and physicians in the rare disease landscape and how market research can help. Discover how to uncover crucial insights that can lead to faster diagnoses and inform better treatment strategies. Join the conversation: How can market research make a real difference in the lives of those with rare diseases? #Healthcare #MarketResearch #RareDisease
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It would be a lie if I wrote it and an inappropriate April Fools joke. But imagine bringing an announcement like this: Scientific breakthrough – my team and I have found a cure for all the world's rare diseases. How amazing it would be to share if it were true. But we haven't yet found a cure for all rare diseases. In fact, we're not even close. We keep working, though; when we do that, breakthroughs will come. More than 350 million people wake up every morning with severe limitations due to a rare disease diagnosis. Let's together reduce those limitations. #HealthCareInnovation #Science #RareDiseases #DrivingChange
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check out this fantastic update of a difficult clinical topic! for free! and join MSGS as member! at https://msgs.group!
We have some fantastic news for you! Dr. Barbara Carey's keynote lecture on "Involvement of the Salivary Glands in Systemic Diseases" from #CEORLHNS2024 is now available to stream online. 🧠 You can watch it for free on the MSGS website. Don't miss out on this chance to gain valuable knowledge and stay at the forefront of medical research. 🔗 https://msgs.group/ #CEORLHNS2024 #ORLCommunity
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