Lobbying legislators about the critical needs of people living with #ALS, their families, and caregivers is one of the keys to making ALS a livable disease until we can cure it. We took to the Hill this month to do just that. Learn more about how you can support these important advocacy efforts: https://lnkd.in/eR_kKaiY #ALSAdvocacy
The ALS Association’s Post
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Great article on why seniors live on average TWO YEARS LONGER when they move into an assisted living facility as opposed to living alone! Fall prevention, stimulation and nutrition are just a few of the reasons why this is a fact! Check out the attached article and let me know how I can help you find the perfect place for your loved one. Totally free and unbiased advocacy! https://lnkd.in/e7WaFz8f
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On #WorldGlaucomaDay, we celebrate the advancements that have helped people like Jaxon, Pat and Trinh preserve vision. Our thanks to advocacy organizations like Glaucoma Research Foundation that push for better education, resources and a cure for this disease. Learn about glaucoma: https://bit.ly/4386QbS #SeeBetterLiveBetter
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LinkedIn Top Voice | Digital Twin Expert | How to make Information work & deliver value | AI implementation | Data-Driven | Productivity | Digital Transformation | Champion Disability issues.
Rare Disease Week I know this is Washington DC but Rare Diseases are not a uniquely American Concept They affect people all around the world in every country, rich or poor. Friedreichs Ataxia is a particularly frustrating condition. We know so much about it. -->>The gene -->>The chief symptoms. It is progressive - ie it gets worse as you get older which is horrible to deal with as you have to deal with a constantly moving target. The only thing you know is that it gets worse and it affects every part of your life. For most people it kicks in around the time you are hitting puberty -->>Normal issues ++++++ Some people deal with it by becoming the center of everyone's attention. Others retreat into their shell Disabled and depressed. What can everyone else do? Something simple is often enough. -->>"Take me out for a cup of coffee" Or -->>"lets go window shopping for an hour or two" It does not take much to constitute the highlight of their day, week, or even month. And you can double that up; there is a carer: Husband, Wife, Daughter, Son, Father, Mother, Brother, Sister, Significant other, or fantastic Friend, who is also able to concentrate on something else for an hour or two. They will spend the whole time worrying but that goes with practice. If you cannot do this, raise money or awareness or preferably both Ataxia UK | Friedreich's Ataxia Research Alliance (FARA) | Ataxia Foundation | Ataxia Ireland (AFI) | fara Australia - Friedreich Ataxia Research Association
This week FARA advocates Darla Sparacino, Kelly Barendt, FARA Director of Advocacy, Brigid Brennan, and FARA Co-Founder and President, Ron Bartek, are in Washington, D.C. for Rare Disease Week. They will be meeting with legislators to discuss issues important to the FA and wider rare disease communities. #RAREDC2024 #RareDiseaseWeek2024 #RareDiseaseDay
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📣We want to hear from you! Are you living with heart disease? Help The Mended Hearts, Inc. improve education, support, and advocacy for the #HeartCommunity by taking our quick 16-question survey. This survey takes under 5 minutes to complete and makes a direct impact on #HeartPatients! Click the link below to take the survey🔗 https://lnkd.in/eaRrtAb4
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Patient Advocate | Medical Bill Master | Helping Committed Professionals Take Control of Medical Bills Without the frustrations of Medical Billing Departments
April marks Parkinson's Awareness Month, a time to unite in support, education, and advocacy for those living with Parkinson's disease. Let's spread awareness, foster understanding, and empower individuals and families affected by this condition. Together, we can make a difference. 💙🧠 #tennesseehealthadvocates #medicalbills #patientadvocate #ParkinsonsAwareness #UnityInAction #SupportAndEmpower
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*World Suicide Prevention Day* The Day is observed on *10th September annually,* was established in *2003 in conjunction with the World Health Organisation (WHO)* and is a significant advocacy and communication based event aimed at reaching national organisations, governments and the general public, giving a singular message that *suicide can be prevented.* Theme: *"Change the narrative on suicide"* *#suicidepreventionday* *#youarenotalone* *#hopeandhealing* *#MJCAS*
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Great article on why seniors live on average TWO YEARS LONGER when they move into an assisted living facility as opposed to living alone! Fall prevention, stimulation and nutrition are just a few of the reasons why this is a fact! Check out the attached article and let me know how I can help you find the perfect place for your loved one. Totally free and unbiased advocacy! https://lnkd.in/e7WaFz8f
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📣We want to hear from you! Are you living with heart disease? Help The Mended Hearts, Inc. improve education, support, and advocacy for the #HeartCommunity by taking our quick 16-question survey. This survey takes under 5 minutes to complete and makes a direct impact on #HeartPatients! Click the link to take the survey⬇️ https://lnkd.in/exjy_q2m
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Today, we stand together to raise awareness for #RareDiseaseDay. Every life impacted by a rare disease is unique, yet the challenges they face are often shared. Let's unite in support, advocacy, and understanding. Together, we can shine a light on these conditions, empower those affected, and strive for better treatments and research. For more info on Rare Disease Day, visit: https://lnkd.in/gk6hbAF #RareDiseaseAwareness #RareDiseaseDay
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Today, we stand together to raise awareness for #RareDiseaseDay. Every life impacted by a rare disease is unique, yet the challenges they face are often shared. Let's unite in support, advocacy, and understanding. Together, we can shine a light on these conditions, empower those affected, and strive for better treatments and research. For more info on Rare Disease Day, visit: https://lnkd.in/gk6hbAF #RareDiseaseAwareness #RareDiseaseDay
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