Starlight Children's Foundation Australia’s Post

🩸 **September is Sickle Cell Awareness Month** 🩸 At Lilly’s Home Care, we’re committed to raising awareness and supporting those affected by sickle cell disease. 💪🩺 Sickle cell disease impacts millions of lives, and it’s crucial to spread knowledge and compassion. ✨ **Here’s how you can make a difference:** 1. **Learn More:** Educate yourself about sickle cell disease and its challenges. 2. **Share the Word:** Use #SickleCellAwarenessMonth to spread awareness and support. 3. **Support:** Show love and understanding to those affected. 🌟 At Lilly’s Home Care, we’re here to provide compassionate care and support to individuals and families managing chronic conditions like sickle cell disease. Let’s work together to create a world where everyone gets the care they need. 💛 **How are you raising awareness this month?** Share with us in the comments! #SickleCellAwareness #SickleCellDisease #LillyHomeCare #ChronicConditionCare #SupportAndAwareness #HoustonCaregivers #CompassionateCare #HealthAndWellness #CommunitySupport

When you become a member of LymeDisease.org, it strengthens our collective voice. Your support enables us to continue providing critical information, advocating for better policies, and driving research that can lead to more effective treatments and, ultimately, a cure for Lyme disease. Join us in this vital mission and help us make a difference in the lives of people affected by this insidious illness. Together, we can bring about the changes we so desperately need. https://lnkd.in/gdWq3ezG

Huntington’s disease (HD) runs deep in families for generations. My family has been and is affected with grandparents, fathers, mothers aunties, uncles, nephews who have or had HD. It is a disease of the brain that is passed down from parent to child. HD is not evident at birth and symptoms will usually not appear until a person is between 35 and 55 years of age. From the onset of symptoms, people with HD have a life expectancy of 10 to 25 years. There is currently no cure for HD but treatments that can help ease certain symptoms are available. As a genetically acquired disease, you are only at risk of developing the disease if one or both of your parents also has the disease. You cannot “catch” Huntington’s disease and it cannot skip a generation. This means many people like me can have many family members with HD within each generation. If you want find out more about HD check out HD Australia and help raise awareness or even run a fund-raising event check out hd Australia's social media🫶🏽

May is ALS Awareness Month. Also known as Lou Gehrig’s disease, this neurodegenerative disease affects nerve cells in the brain and spinal cord, leading to muscle weakness, loss of motor control, and eventually, paralysis. ALS can impact anyone, and the cause of the disease is still largely unknown, making awareness and research crucial. ALS Awareness Month is an opportunity for everyone to get involved in the fight against this devastating disease. Whether through education, fundraising, or volunteering, your support can make a difference. Let's work together to increase awareness, support those affected, and push for advancements in research to find a cure for ALS. #ALSAwarenessMonth #EndALS

Reminder to all BIPOC warriors! Your stories are crucial for autoimmune disease awareness month. The first round of submissions is due tomorrow. Living with autoimmune diseases can be challenging, but your journey matters. Your story has the power to inspire and uplift others who face similar struggles. Your willingness to share isn’t just about community strength—it’s about hope and solidarity. Whether you’re just starting or have been battling for years, your story unites us. In the BIPOC community, awareness about autoimmune diseases is often lacking. Sharing your experiences can lead to earlier diagnoses and save lives. Let’s continue to empower and educate through The AIP BIPOC Network. Your story is vital—to educate, empower, and advocate for others.Together, let’s raise awareness and make a difference. To submit your story, visit https://lnkd.in/gcTNPEPr

Another paper published this month 🙌🏼 In this study, our ADNP team has investigated the brain of a died ADNP child, and unravelled novel insights in the disease mechanisms of the Helsmoortel-Van der Aa syndrome. 💪🏼 thank you to everyone who contributed to this beautiful paper. #ActaNeuropathologicaCommunications #HVDAS #ADNP

Over the next few weeks, we're going to do a series called "Throwback Thursdays". We'll use this time to let you know what we've accomplished as a community since KrabbeConnect was incorporated on February 5th, 2018. First Up! Project: Disease Burden and Treatment Considerations in Krabbe disease: The Caregiver Perspective Goal of Project: Spread awareness and insights to help others understand the burden of navigating treatment for an individual diagnosed with Krabbe disease Results: See poster photo below Cost of Project: $22,537.54 **Note: The project's cost does not include KrabbeConnect's time and resources in presenting the poster at conferences.

March is #NMOAwarenessMonth and as a proud ambassador of The Sumaira Foundation, I'm joining my tribe in raising awareness about this disease called neuromyelitis optica spectrum disorder (NMOSD). NMOSD can cause blindness in one or both eyes, weakness or paralysis in the legs or arms, and painful spasms. It also can cause loss of sensation, uncontrollable vomiting and hiccups, and bladder or bowel problems from spinal cord damage. Relapses need to be treated aggressively to prevent long-term disability. Relapse prevention is crucial and achieved with long-term immunosuppression. As global ambassadors, patients, and caregivers we are #strongertogether!

September is #SickleCellAwarenessMonth and SHN is highlighting the importance of sickle cell awareness. Sickle cell disease affects 20 million people worldwide, including 4,000 in Ontario, and can inflict recurrent anemia, extreme fatigue and weakness, and episodes of pain so severe that they require emergency care. This disease is often misunderstood or underestimated as a chronic condition, as the average person may not recognize or relate to the severity of its symptoms. By highlighting the experiences of individuals living with sickle cell disease, this month fosters empathy, drives advocacy, and encourages community support to improve the quality of life for patients and their families. Learn more from people who live with sickle cell disease: https://lnkd.in/guX92kqS #GetToKnowSickleCell #SHNCares

The Project Heart Mission: Project Heart is a nonprofit organization that exists to fund the research needed to find lasting cures for all types of Congenital Heart Disease. -1 in 100 babies are born with CHD -That’s approximately 40,000 babies each year in the U.S. -1.35 million babies born with CHD worldwide – EVERY YEAR -CHD is the most common birth defect. #ProjectHeart #CHD #GivingMatters #CHDResearch #CongenitalHeartDisease