Ring20 Research & Support UK CIO’s Post

We have the funding, the idea, the patient community...now all we need is YOU to take on the research!!! Are you up for the challenge? Unique opportunity: call for grant applications to study the natural history of r(20) epilepsy syndrome. Ring chromosomes are under-diagnosed and under-reported. Help us unlock the rare reality and advance knowledge in one of the ultra-rare epilepsies. Let's bring r(20) syndrome out of the shadows... Families from around the world have worked incredibly hard to achieve a funding pot to make this happen. OK, so it's a drop in the ocean compared to many research studies but we have to start somewhere. Could you help us with match-funding to ensure this study reaches its true potential? If so, drop us a line, we'd love to hear from you: [email protected] Deadline extended: 14 June 2024 Check website for info/apply: https://lnkd.in/eA3bRciB Please help us by sharing as widely as possible. #raredisease #research #epilepsy #NationalEpilepsyWeek

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