We have the funding, the idea, the patient community...now all we need is YOU to take on the research!!! Are you up for the challenge? Unique opportunity: call for grant applications to study the natural history of r(20) epilepsy syndrome. Ring chromosomes are under-diagnosed and under-reported. Help us unlock the rare reality and advance knowledge in one of the ultra-rare epilepsies. Let's bring r(20) syndrome out of the shadows... Families from around the world have worked incredibly hard to achieve a funding pot to make this happen. OK, so it's a drop in the ocean compared to many research studies but we have to start somewhere. Could you help us with match-funding to ensure this study reaches its true potential? If so, drop us a line, we'd love to hear from you: [email protected] Deadline extended: 14 June 2024 Check website for info/apply: https://lnkd.in/eA3bRciB Please help us by sharing as widely as possible. #raredisease #research #epilepsy #NationalEpilepsyWeek
Ring20 Research & Support UK CIO’s Post
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#Epilepsy is the most common and potentially devastating neurological disease that affects people across the lifespan. Help us attract the brightest scientists and clinicians to the field to improve outcomes for people with epilepsy. Make a difference by making a gift today: #EpilepsyDay #InternationalEpilepsyDay
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🚨 New funding announcement alert! 🚨 BD² Discoveries is announcing $9.2m available for four new clinical sites to join the BD2 Integrated Network to accelerate research and care for #bipolardisorder. More information is below! #bipolardisorder #newfunding #philanthropy #researchfunding
*$9.2M ➡️ NEW FUNDING AVAILABLE* We are accepting applications for four new sites to join the groundbreaking BD² Integrated Network and drive the discovery of the behavioral and biological drivers of bipolar disorder while advancing treatments. Each new site will receive up to $2.3M and be part of the team on the forefront of accelerating research and improving systems of care for bipolar disorder. This is an exciting expansion to the success of our model and the accomplishments of our network, which is actively recruiting participants into the longitudinal study and gathering data. Our current sites include Brigham and Women’s Hospital-McLean Hospital, University of California Los Angeles, Johns Hopkins University, Mayo Clinic, University of Michigan, and UTHealth Houston. “This is a significant expansion of the BD² Integrated Network and a testament to the promise we’re already seeing in this model that is designed to shorten the time it takes for scientific breakthroughs to improve clinical care and the lives of those living with bipolar disorder,” - Cara Altimus, PhD Submissions to the RFA are due by October 10, 2024: https://lnkd.in/ezPsGFvW To join our email community and be up to date on the latest, visit: https://lnkd.in/et7Jmr5A #bipolar #bipolardisorder
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The epilepsy community needs your help! The AMERICAN BRAIN COALITION has created an opportunity for you to write your representatives at this critical time to ask them to sign on to support increased funding for the NIH BRAIN Initiative, and to support increases for the National Institute of Neurological Disorders and Stroke (NINDS). Use the link to be taken to a page where you can find your legislator and to a template draft letter that you may edit and send. You can add to this template and ask for NINDS support. Suggested copy to include in your message: "I also ask your support for increased funding for the National Institute of Neurological Disorders and Stroke (NINDS). Neurological disorders are the leading cause of disability and the second leading cause of death worldwide. The impact of conditions like epilepsy, stroke, headache, and neurodegenerative diseases will continue to grow as the population ages. It is vital to increase support for research to sustain recent advances in treating previously untreatable conditions, to relieve the burden of suffering they cause, and to reduce the economic burden to the nation in care and years of productive and fulfilling lives lost." https://lnkd.in/gygv2HZU
Contact Congress - American Brain Coalition
americanbraincoalition.org
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Travel time to academic settings can contribute to inequalities due to age, geography, and ethnicity in Alzheimer's disease clinical trial enrollment. We are excited to share that Noor Sachdev M.D. and Perminder Bhatia, M.D., two community physicians in the Adaptive Research network, are investigators in AriBio’s Phase 3, Double-blind, Randomized, Placebo-controlled Trial to Evaluate the Efficacy and Safety of AR1001 in Participants With Early Alzheimer's Disease (POLARIS-AD). #clinicaltrials #clinicalresearch
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Vivli Researcher Spotlight: 🔦 Check out our newest update, with researcher Dr. Sarah Nevitt, on using Vivli to access #clinicaltrialdata, and possibilities for achieving better control and remission of seizures in people with epilepsy: https://lnkd.in/eSUrwsdQ
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🧠💡 It’s Multiple Sclerosis (MS) Awareness Week! MS is a disease that affects the brain, spinal cord, and optic nerves, causing physical and cognitive disabilities. Myelin-H is very pleased to share that we are on the cusp of commencing an international & multi-site clinical trial on remote monitoring and neurorehabilitation of Multiple Sclerosis. With a myriad of portrayed stories of devastating daily experiences around three million patients are going through, we cannot afford to miss this opportunity to empower those people affected by MS with groundbreaking neurotechnology to live their best lives. We will soon be recruiting for the clinical trial. We invite you to get in touch (https://lnkd.in/eG4zwFYj) and participate in the clinical Study – a groundbreaking medical device clinical trial for our first non-invasive brain-machine interface for remote MS monitoring and neurorehabilitation. If you or a loved one has been impacted by MS, we want to hear from you. Your stories inspire us and drive our mission forward. Together, let’s turn awareness into action and pave the way for a brighter future for those living with MS. #MSAwareness #Neurotechnology #MyelinH #ClinicalTrial #Empowerment #braincomputerinterface #digitalhealth #brainhealth #neurotechnology
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Epilepsy is a neurological disorder impacting millions worldwide. More than just seizures, it's a spectrum of disorders that affects individuals and families, altering daily lives. Awareness and understanding can help dispel myths and foster a more inclusive society. At HiRO, we stand in solidarity with every individual living with epilepsy. Our commitment to pioneering biotech solutions reinforces our belief in a brighter, seizure-free future. 🔬 With each research initiative and collaboration, we inch closer to making this vision a reality. Join HiRO this November in raising awareness, reducing stigma, and championing advancements in epilepsy research and treatment. 🎗️ Support the cause and make a difference. Use #EpilepsyAwareness to share and amplify the message.
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Sponsored by German #NPBI NRW.BANK, the ichó therapy ball is a device for promoting cognition and motor skills in patients with dementia, stroke, Parkinson's disease and even children with autism, Down syndrome or severe multiple disabilities. The Therapy Ball uses the principle of neuroplasticity to playfully promote the patient's abilities with more than 100 available ichó apps to build everyday skills and improve quality of life. At the same time, the therapy system collects patient data, which enables physicians and therapists to adapt the therapies individually to the patient's needs. With the help of this real word data, a previous black box in healthcare opens up and shows the patient's condition in the real world, outside the doctor's office. Read more about further projects, sponsored by European NPBIs, in the ELTI Brochure on #Innovation here: https://lnkd.in/eJyMDyGi
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Join the CND Life Sciences team at Lisbon to learn about their progressive work in #neurodegenerativediseases. #pathology #digitalpathology
CND Life Sciences will be presenting at the upcoming International Conference on Alzheimer’s and Parkinson’s Diseases and related neurological disorders March 5 - 9, in Lisbon, Portugal. #ADPD24 If you are attending, please be sure to check out the posters entitled “The Synuclein-One Study: Cutaneous Alpha-Synuclein Deposition in Parkinson’s Disease,” Poster Board #0544 and “The Synuclein-One Study: Cutaneous Alpha-Synuclein Deposition in Dementia with Lewy Bodies and Mild Cognitive Impairment,” Poster Board #0561. Both posters will be available for viewing from March 6-7 during designated poster hours. And stop by booth #66 to learn more about the Syn-One Test®. We hope to see you there! #parkinsonsdisease #movementdisorders #parkinsons #parkinsonsresearch #synonetest #synucleinopathies #alzheimers Todd Levine Rick Morello https://lnkd.in/eKD2QwR
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Trilingual leader who succeeds in hi-profile/complex Public Policy files | #AIinHealthcare 🏥 | Life Sciences 💊 | Government Affairs 🏛️ | Patient-Seniors Advocacy 😷 | National Spokesperson 🗣️ | Panels-Moderator-MC 🎤
Some more #sundayscience, reclassifying #parkinsonsdisease via University Health Network #research. #researchmatters #sciencematters #newmedsmatter #parkinsons #parkinsonsawareness https://lnkd.in/eaSRj-_4
Classifying Parkinson Disease
uhnresearch.ca
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