Rheumera reposted this
It's that time of year again! June marks Scleroderma Awareness Month— are you ready to spread the word? Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those affected. This lack of awareness can lead to delays in treatment and diagnosis, and hinder progress in finding a cure. Want to get involved? Here are some ways to #SayScleroderma: 📹 Share Your Story: Post a video on social media saying "scleroderma" and why awareness is important to you. Check out our social media toolkit for more ideas! 💬 Start Conversations: Talk to your friends, family, and colleagues about scleroderma. Every conversation counts. 👤 Add a Profile Frame: Show your support proudly by updating your social media profile picture with our special #SayScleroderma profile frame (link in bio!) 📣 Spread the Word: Share our #SayScleroderma social media posts and tag us (@srfcure) to help us reach even more people. Let's keep the momentum going beyond June. Together, we can make sure scleroderma is heard until we find a cure. Visit our #SayScleroderma page: https://bit.ly/3Kd5iEP #sayscleroderma #srfcure #sclerodermaresearch
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5moI was diagnosed in 2005 age 46 Systemic Sckeroderma CREST 2006 Secondary Sjögren’s Syndrone 2007 Trigeminal Neuralgia My youngest was diagnosed in 2009 age 16 2006 my niece was diagnosed with Mixed Connective Tissue Disease. My identical twin has Primary Sjögren’s as does another sister.