At Take Steps, you are never alone 💚 Register today to support the IBD community, fund vital research, advocacy, as well as patient and caregiver education, resources, and support. Together, we have one destination in mind: Mt. Remission and finding IBD cures. https://bit.ly/3YQUh1r
Northwest Crohn's & Colitis Foundation’s Post
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Although World Heart Rhythm Week has concluded for another year, our mission is to raise awareness of Heart Rhythm disorders every hour, of every day. You can help us in this mission. Access our Patient Advocacy Toolkit and find out how you can support our campaigns: https://loom.ly/ZVXJseQ #WHRW2024 #ActSmart #YouOnlyHaveOneHeart #ArrhythmiaAlliance #Arrhythmia #Rhythm #HeartRhythm #PatientAdvocacy #PatientAdvocacy
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Check out this recertification training for CRPA in January. #traininganddevelopment #training #recovery #peersupport
Announcing our new Peer Advocacy Support Training Center! Our first training is January 26, 2024. An innovative, barrier-free source for those seeking RE-certification for CRPA certification in the Southern Tier and Mohawk Valley regions of NY State. This program was funded through State Opioid Response grant funds. We proudly partner with ADCTC, LEAF, BRiDGES, CCHC, HFM Prevention Council, Family Counseling Services, Schoharie County CSB, Otsego County CSB, RISE, RSS, Beacon Center, and FOR-DO. Visit our website for more information: www.scbhcc.org
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Fiscal Year 2023 (July 1, 2022 through June 30, 2023) was a landmark year for impact, advocacy, and partnerships at Grand St. Settlement. Learn more about the work we're doing and why Grand St. Settlement is an organization of choice for 17,500+ participants, 500+ staff, and countless donors, volunteers, and supporters. View the Report: https://lnkd.in/epypstt3
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Join Us for the 2024 End Endo 5K – Let's Move to Make a Difference! From September 16-22, we invite you to join endo allies across the country for the End Endo 5K, a virtual event dedicated to raising awareness and funds for EndoFound! What is the End Endo 5K? The End Endo 5K is a unique event where participants around the world come together to move 5 kilometers (or 3.1 miles!) in any way they choose. Whether you walk, run, hike, bike, or even rollerskate, your participation helps support crucial research, education, and advocacy efforts for endometriosis. Why Join? Endometriosis affects millions of people, causing pain and complications that impact daily life. By participating in the End Endo 5K, you are taking a stand to bring hope and change to those affected. Your efforts will help fund groundbreaking research and provide support to those in need. Learn how you can participate here: https://lnkd.in/gP7kEkha
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Master of Science in Nursing Student | Board Certified Functional Medicine Health Coach | Group Medical Visits | Fibromyalgia, Pain Management, Brain Health | Nonprofit Director | Advocate & Educator
In 2019, our vibrant new nonprofit organization, Support Fibromyalgia Network, faced a formidable challenge: the significant oversight of fibromyalgia by public health authorities. Fueled by a blend of frustration and determination, we, alongside a group of extraordinary advocates, embarked on an unprecedented journey of fibromyalgia advocacy. Our efforts marked the beginning of a new era of support for the fibromyalgia community—a commitment we've passionately upheld through 2019, 2020, and virtual hill days ever since. On March 13th and 14th, we navigate the corridors of Capitol Hill, championing the cause of fibromyalgia advocacy and awareness. We're immensely grateful for those joining us in person, recognizing the significant physical and financial sacrifices involved. Yet, the unanimous consensus is clear: the time for change is now. Together, we continue to fight for recognition, understanding, and progress in fibromyalgia care and awareness. Join us in this enduring battle for change—one community, united and strong. 💜 ✊ #Fibromyalgia #FibromyalgiaAdvocacy #SeeWhatOthersCant
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The full child care innovation summit is linked below
Zero to Five Montana is represented this week at the National Child Care Summit. Leaders in advocacy, philanthropy, government, and policy came together from across the country to share a commitment to investment, innovation, and private-public partnerships. Thanks to Rhonda Schwenke and Caitlin Jensen for being part of the National Child Care Task Force and making the trek! You can watch the full summit here:
National Child Care Innovation Summit
https://www.youtube.com/
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https://lnkd.in/gNfKR957 The NAPPA PANS PANDAS Capitol Hill Advocacy Day is less than a month away, and there is still time for you to register and make plans to join us in DC on April 12th. We have 15 states represented so far (California, Florida, Georgia, Massachusetts, Maryland, Alaska, Michigan, Texas, New Hampshire, Vermont, New Jersey, New York, Connecticut, Pennsylvania, and Virginia) and would love to add more. If you don't see your state in our list, please visit the link and make your voice be heard in DC. Please consider signing up to join us, and please consider also registering for The Alex Manfull Fund 5K at Hains Point on Saturday morning to raise funds to support research into PANDAS. You can register and/or support the 5K by visiting "https://lnkd.in/gCaMmdYH..." PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus) is characterized by an acute onset of obsessions and compulsions and/or tics following a Group A Streptococcal (GAS) infection. Other symptoms may follow, including, for example: restricted eating, separation anxiety, general anxiety, sleep disorders, personality changes, severe mood swings, irritability, ADHD-type behaviors, dysgraphia, loss of math skills, urinary frequency and incontinence, explosive rage, extreme impulsivity, and suicidal ideation. All symptoms invariably wax and wane. In extreme cases, all facets of daily life can be affected such that some patients may become unable to speak, eat, or even dress themselves; these patients may not be able to attend school and may need to be hospitalized. It is a disorder that affects the entire family. Early diagnosis and treatment can make all the difference to the youth and young adults and their families.
2024 PANDAS/PANS CAPITOL HILL ADVOCACY DAY
eventbrite.com
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Important and good reading!
The International Annual Report 2023 is here! 🎉💙 To our 4,400,000 donors and supporters - 𝘁𝗵𝗮𝗻𝗸 𝘆𝗼𝘂 for being there for children and young people growing up alone. The Report represents the work of SOS Children's Villages in 136 countries and territories, made possible by your support. In 2023, we: 👪 reached a total of 2,993,600 people, 📢 engaged in advocacy in 107 countries, ⏰ responded to 32 emergencies with child protection activities. 👉 Read the Report for more: https://lnkd.in/diQHtPcP
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Living with low vision can be challenging, but it doesn't have to define you. Hope in Focus is dedicated to empowering individuals with LCA by offering education, guidance, and community as you navigate this journey. As a patient advocacy organization, we are dedicated to generating awareness, raising funds for research, and providing support, education, and outreach for the LCA and rare inherited retinal disease (IRD) community. #Empowerment #HopeInFocus #MyDiseaseDoesNotDefineMe
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Later this morning, I’m looking forward to participating in an informative discussion at the 2023 NJ Nonprofits Conference hosted by the New Jersey Center for Nonprofits. The panel is titled “Players Play: Sharpening Your Advocacy Game” and a brief description of the panel is below: “Advocacy is mission work – and given the many crucial issues facing nonprofits and our communities, it’s more important than ever. Come hear a brief overview of what constitutes advocacy vs. lobbying (both are OK!), and learn from our panel of experienced lobbyists and public officials on what makes for good issue advocacy (and what doesn’t!) and practical steps you can take right now to get into The Game. We will also briefly review the status of the Center’s current legislative priorities.” https://lnkd.in/eRDSbSZr
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