Paroxysmal nocturnal hemoglobinuria (PNH) is a debilitating blood disorder which causes a range of life-limiting symptoms for those affected. We spoke to the Aplastic Anemia and MDS International Foundation (AAMDSIF) to highlight the importance of providing support for patients living with rare diseases Click the link to learn more about AAMDSIF and the strides they are making to improve life for people living with PNH: https://lnkd.in/gZUvmp-T
Indeed, awareness and advocacy are key in driving research and providing much-needed resources.
Thank you for shedding light on the challenges faced by those with Paroxysmal Nocturnal Hemoglobinuria. 🙏🏻
Thank you for shedding light on the challenges faced by PNH patients. Supporting organizations like AAMDSIF is crucial for improving outcomes and quality of life.
Thank you for shedding light on such an important issue. It's crucial to raise awareness
Thank you for shedding light on such an important issue. It's crucial to raise awareness and provide support for those living with rare diseases like PNH. Organizations like AAMDSIF play a vital role in improving the lives of patients and their families.