Laura Caswell’s Post

Today, we stand together to raise awareness for #RareDiseaseDay. Every life impacted by a rare disease is unique, yet the challenges they face are often shared. Let's unite in support, advocacy, and understanding. Together, we can shine a light on these conditions, empower those affected, and strive for better treatments and research. For more info on Rare Disease Day, visit: https://lnkd.in/gk6hbAF #RareDiseaseAwareness #RareDiseaseDay

📣We want to hear from you! Are you living with heart disease? Help The Mended Hearts, Inc. improve education, support, and advocacy for the #HeartCommunity by taking our quick 16-question survey. This survey takes under 5 minutes to complete and makes a direct impact on #HeartPatients! Click the link below to take the survey🔗 https://lnkd.in/eaRrtAb4

📣We want to hear from you! Are you living with heart disease? Help The Mended Hearts, Inc. improve education, support, and advocacy for the #HeartCommunity by taking our quick 16-question survey. This survey takes under 5 minutes to complete and makes a direct impact on #HeartPatients! Click the link to take the survey⬇️ https://lnkd.in/exjy_q2m

Montel Williams reflects on his journey with MS, a once rare disease, and his advocacy for those living with rare diseases. Being a part of Behind The Mystery has been instrumental in understanding his own MS diagnosis while supporting others with rare diseases. "There is power in lifting each other up, sharing information, and impacting the lives of those living with rare diseases." Watch the full story here: https://lnkd.in/eb2nEwyr Head over to our YouTube channel to watch our collection of videos for Rare Disease Day 2024! 🎥 #BehindTheMystery #RareDiseaseDay #RareDiseaseAwareness #Advocacy #MSAwareness

🔵 Today, on Rare Disease Day, we highlight the challenges faced by millions worldwide. 🌟 Rare Disease Day it's a day to emphasize awareness, support for research and funding, empowerment of communities, and advocacy for change. Over 300 million people globally are affected by rare diseases. By uniting in solidarity and prioritizing research and funding, we can pave the way for a brighter future where rare diseases no longer hinder health and happiness. 💙 Today, and every day, let's stand in solidarity with the millions around the world impacted by rare diseases. Together, we can make a difference, one step at a time. #RareDiseaseDay #ShowYourRare #RareButStrong #Awareness #ResearchMatters #FundingForCures #Support #Advocacy

Raising awareness for rare diseases is essential for improving early diagnosis, treatment, access to support, research, advocacy, and ultimately, the quality of life for individuals living with these conditions. #RareDiseaseDay #ShowYourRare #Awareness #Support #RareDiseaseAwareness #battendisease #battendiseaseawareness

Bronchiectasis is a chronic lung condition that affects 100,000s of people worldwide. Education, advocacy, and empowerment are critical for successful disease management. Join the cause and support awareness this #WorldBronchiectasisDay2024 🫁 https://ow.ly/bVvL50SobyM

📣JUST LAUNCHED: Discover the 🆕 #Vision2030 advocacy in action report, and explore how we can leverage industry actors' expertise and resources to improve #OralHealth and reduce the burden of disease globally. 🤝Let's join forces to deliver optimal oral healthcare for all. 👉 https://lnkd.in/dp7kFQz2

Patient-advocate Ilaria Galetti knows full well the challenges that come with living with a rare disease. When Ilaria learned that people with immunoglobulin G4-related disease (IgG4-RD) had no national organisations to support them, she began a determined effort to form a pan-European advocacy group that would make their collective voice heard by policymakers. https://lnkd.in/egAemwUm #IgG4RD #RareDisease #ImmunoglobulinG4RelatedDisease #IgG4

Cholangiocarcinoma can be hard to explain, so our Cholangiocarcinoma Foundation team works on ways to simplify information so we can educate the community about symptoms, diagnostics, talking to your provider, treatments, and more. As part of CCA Awareness Month, we developed this one-pager: https://lnkd.in/guJBYD-X. We encourage you to become familiar with it, and if you are interested in advocacy, please consider sharing it in your communities. You can get ideas on where to share it via our toolkit (https://lnkd.in/gWAtKfwH) #beclearoncca #ccaawareness #ccahope #cholangiocarcinoma #patientadvocacy