Intractable Charity reposted this
“Having at least one tonic-clonic seizure in the last year and not sharing a bedroom with someone gives a 67-fold increased risk of SUDEP compared with not having a seizure and sharing a bedroom.” Hear from Phil Tittensor, Consultant Nurse for The Royal Wolverhampton NHS Trust about SUDEP and general risks. #sudepaction #epilepsyawareness
Good to have someone increasing knowledge about epilepsy !!! It’s needed
Phil Tittensor excellent Phil
Keynote Speaker. Podcast Host & YouTuber. #Epilepsy & #MentalHealth. #SciComms, #MedTech, #DigitalHealth, #Genetics, #RareDisease.
7moIt's shocking that I didn't die of SUDEP. For years I slept alone having tonic-clonics frequently... Individuals, families, and, actually, councils (who may provide support) really need to know of these statistics and take action.