Intractable Charity’s Post

Join IDA Ambassador, Lauren's Team or Pledge her walk! Participate anytime, anywhere in May! #IDAAmbassador #InvisibleDisabilities #idwalkandroll Posted @withregram • @laurensaysyay May is Mobility Awareness Month, and only one week away! Lots of time to join my Yay Team supporting the @invisibledisabilities Association’s 2nd annual Walk and Roll 💃🏽 Many of you know I live with Central Core Disease, a rare neuromuscular disorder and invisible disability. Some of the mitochondria from my muscle cells is missing, so my muscles struggle to convert energy into strength, making a lot of everyday things harder for me. I have about a third of the strength of the average person. But look at all those shoes (with me in them) go! To support the Walk and Roll and raise awareness for invisible disabilities, I’ve decided to walk 85,000 steps in May (up from 74,000 last year). This year I’m running a team (The Yay Team!) for the fundraiser, and I’d love to have YOU join and raise awareness too! You can walk, roll, or any kind of movement you want, for as many steps/distance as you choose, either throughout the month or in a single event. How you participate is totally up to you, and is a great opportunity to share how your life has been touched by your own or someone else’s invisible disability. Join the Yay Team or support my participant page - 🔗 in my bio! - #invisibledisability #invsibledisabilityawareness #disability #disabilityawareness #mobilityawareness #mobilityawarenessmonth #chronicillness #chronicillnessawareness #centralcoredisease #RYR1 #chronicallyfabulous #chronicloveclub #spoonie #spoonielife #inspirationalspeaker #fundraiser #yay

What a day we lived on March the 10th 👁️Raising awareness about Usher syndrome is crucial: a condition that silences the earliest sounds of life and disrupts babies' balance as it dims and deteriorates their vision during childhood. 🚀At Save Sight Now Europe, we believe it's our responsibility, as an affected family, to work towards paving the way for a potential treatment. From raising awareness so society stands with us, to pushing forward in research and facilitating pathways to science. As an organization, as a community, and as affected individuals, it's essential to work towards steering science in our direction: finding a treatment for Usher syndrome.🧬 💡Living with Usher and working to find a treatment for it seems to share the same need for intense focus and required strength.💡 ♥️We currently have many participation options, and you'll soon see even more. We're growing, science is accelerating exponentially, and we need to support it to reach the finish line. 🔬It's an exciting time, but we still need your help. Join us!🙌🏻 ➕Mi grano de arena (My Grain of Sand): the challenge ends in a month, and we encourage you to give it a push so we can reach our goal! Check out the link: https://lnkd.in/dS6D6iPq ➕You can now donate via BIZUM (remember to send us an email with your details for tax deduction): 08975 #savesightnoweurope #deafblindness #sordoceguera #ceguerainfantil #childhoodblindness #enfermedadesminoritarias #rarediseases #ushersyndrome #sindromedeusher #zurichmaratobarcelona #retinitispigmentosa #retinosispigmentaria #treatmentforushersyndrome

September is #AlzheimersAwarenessMonth! It’s the perfect time to raise awareness and support fundraising for Alzheimer’s, which affects millions worldwide! At Right at Home, we focus on supporting those with Alzheimer’s through our community groups that help enhance cognitive function. 💜  We have put together some tips to help you spread the word and make a difference for those living with Alzheimer's! #AlzheimersAwarenessMonth #SupportAlzheimers #EndAlzheimers #AlzheimersSupport #DementiaCare #AlzheimersResearch #RaiseAwareness #MemoryMatters #FightAlzheimers #CognitiveHealth #DementiaFriends

🌟 Celebrating the Impactful Work of Epilepsy Action 🌟 We're taking a moment to shine a light on the incredible efforts of Epilepsy Action, an organisation dedicated to creating a world without limits for people with epilepsy. With over 600,000 individuals living with epilepsy in the UK, Epilepsy Action's mission is not only vital but life-changing. 🤩 Epilepsy Action's commitment to improving the lives of those affected by epilepsy extends beyond medical support; it encompasses emotional and practical support for individuals, their families, and caregivers. Their innovative approach, including the newly launched befriending service, ensures that no one faces epilepsy alone. This service connects volunteers with individuals for regular chats, offering companionship and understanding, which is crucial for those facing the unpredictability of epilepsy. 🥳 Their work is a testament to the power of community and empathy in facing health challenges. By fostering social connections, Epilepsy Action is directly combating loneliness and enhancing wellbeing among those affected by epilepsy, making a tangible difference in their lives. Let's applaud Epilepsy Action for their unwavering dedication and the positive impact they continue to make. Their efforts remind us of the strength found in compassion and the importance of supporting each other. 🌍💜 Read more about them in the link below 👇 #charity #loneliness #digitaltransformation

September is #AlzheimersAwarenessMonth! It’s the perfect time to raise awareness and support fundraising for Alzheimer’s, which affects millions worldwide! At Right at Home, we focus on supporting those with Alzheimer’s through our community groups that help enhance cognitive function. 💜  We have put together some tips to help you spread the word and make a difference for those living with Alzheimer's! #AlzheimersAwarenessMonth #SupportAlzheimers #EndAlzheimers #AlzheimersSupport #DementiaCare #AlzheimersResearch #RaiseAwareness #MemoryMatters #FightAlzheimers #CognitiveHealth #DementiaFriends

September is #AlzheimersAwarenessMonth! It’s the perfect time to raise awareness and support fundraising for Alzheimer’s, which affects millions worldwide! At Right at Home, we focus on supporting those with Alzheimer’s through our community groups that help enhance cognitive function. 💜  We have put together some tips to help you spread the word and make a difference for those living with Alzheimer's! #AlzheimersAwarenessMonth #SupportAlzheimers #EndAlzheimers #AlzheimersSupport #DementiaCare #AlzheimersResearch #RaiseAwareness #MemoryMatters #FightAlzheimers #CognitiveHealth #DementiaFriends

Orange for MS Awareness Join Us in Our Fight Against MS - #OrangeOutMS 🧡 Multiple sclerosis (MS) may be part of someone's story, but it doesn't write their destiny. Each day, countless individuals rise above the challenges of MS to move their lives forward. 🚶♀️🚶♂️ Understanding MS: MS is more than just a diagnosis. It's a neurological condition affecting nerves in the brain and spinal cord, impacting people mostly in their 40s and 50s, affecting more women than men. The unpredictability of MS symptoms, from fatigue and vision problems to cognitive difficulties, requires adaptability and resilience. Our Commitment: Every March, during Derek's birthday month, our company swaps its signature yellow for 🍊 ORANGE shoe covers to shine a spotlight on MS. We encourage YOU to put on orange, snap a photo, and share it with #OrangeOutMS. You can also save and paste this orange image and post it on your timeline with #OrangeOutMS. Your Photo Makes a Difference: For each posted photo with orange, Simmons One Hour pledges $10 to the National Multiple Sclerosis Society. 📸+🧡=💲 Support. Make sure you use #OrangeOutMS so we can see it! Take action! Your donation propels research, advocacy, professional education, and support services to change lives and chase a world free from MS. Join us. Wear orange. Create change. Together, we can empower those affected and rally towards a cure. 🤝✨ 🔗 Pledge your support and wear orange today to make an impact! Details at https://lnkd.in/erxJrKJ4 #OrangeOutMS #MSAwareness #StrongerTogether #DonateToMakeADifference

This is a cause that has become near and dear to my heart. Last March our daughter was diagnosed with Juvenile Myoclonic Epilepsy. For 11 years are daughter was a healthy thriving girl and then in one afternoon that all changed. She suffered a seizure that came out of nowhere. It was the single most terrifying experience of my life. I was there to witness my daughter jolt back and forth like electricity was running through her body. I sat in the ambulance with her trying to let her know everything would be alright as my leg was shaking uncontrollably because I couldn't process what had just happened. The weeks that followed were scary and mind-boggling. There was the diagnosis, which was devastating, but then to be told that they didn't know why this happened, and that we may never know. Thank god for my husband to make sense of the doctor visits and tests that followed. We were then told that this was a condition that she would most likely live with for the rest of her life and that these seizures weren't always predictable. My beautiful smart girl who I helicopter parented all of her life already, was now at risk of seizures without much warning and I didn't know how I would ever leave her side. We went about our life providing her medicine, but not wanting to think we would ever experience another seizure, until the next one. This January she had her second seizure. That was the experience that changed everything for us. We now know that there are triggers, there are signs and there are things we can do try to stave off seizures. Our lives are now run on schedules and routines that we dare not deviate from. We monitor and ensure that we don't miss dosages of medicine, make sure she is rested, attempt to manage her stress...the list goes on. We still don't know all there is to know about this thing. But, we are doing our due diligence to learn and provide her with the most regular lifestyle we can. I can finally talk about it. That is why I am creating this post. I want more people to be aware and begin accepting that this is more common than you might think. Take a minute to educate yourself and keep my kid in mind. She is doing well and we are managing as a family because that is what we do. Education is power. We will learn to live with this and she will thrive, I know it.

Today is International Epilepsy Day! Many of you may not know, but epilepsy is a part of my journey. Epilepsy is a neurological disorder that affects people regardless of age, race, or gender. 1 in 10 individuals will experience a seizure, and 1 in 26 will develop epilepsy in their lifetime. My personal encounter with epilepsy came after a near-death experience in my 20s, bringing forth simple partial and complex partial seizures, different from the stereotypical "grand mal" seizures. It was a perplexing journey navigating from one doctor's office to another, seeking answers to those peculiar sensations. Understanding and responding to seizures are paramount. Epilepsy Foundation extends a free seizure first aid program to enlighten the public. If you're curious, I encourage you to explore further. In my commitment to raise awareness about epilepsy and empower more individuals to assist those with epilepsy, I'm assembling a team for the Epilepsy Walk Los Angeles on April 28th at the Rose Bowl in Pasadena. You can contribute to The Epilepsy Foundation in various ways: 💜 Contributing to the cause 💜 Assisting Team Renov8 in fundraising efforts 💜 Joining Team Renov8 in the walk if you're local to Los Angeles This cause resonates deeply with me, and your support in spreading awareness and securing funds for this vital cause means the world to me. Please drop a comment below to let me know how you'd like to contribute, and I'll provide further details. Thank you! 🙏 #renov8fitness #HeatherBinns #HeatherCPT #FindYourAthleteWithin #Renov8TheBody #Renov8TheMind #epilepsy #seizures #seizuresawareness #epilepsyawareness #walk #teamrenov8 #charity #contribute #goodcause

Day 21 of Brain and Alzheimer's Awareness Month! All this month, I will post a quick and simple mini-challenge to give your brain a QUICK WIN! Today’s challenge is to share your gifts with the world…volunteer! In addition to just feeling good, volunteering has been shown to increase lifespan and stave off dementia and Alzheimer’s…especially in retired people. Volunteering can get you physically, mentally, and socially engaged, relieve stress, and (perhaps most importantly) make you feel like you are contributing to a greater cause. Contributing to a meaningful cause can help you fight Cognitive Enemies by increasing your brain reserves and resilience, as well as boosting your memory and executive function (or mental “skills”). The more you do it, the more benefit your brain will gain! For today’s challenge, get a date on your calendar for a cause you already work with OR commit to joining one of the many available opportunities. Most people “have been meaning to ____ ” when it comes to volunteering anyway, so today is the day…for the sake of your brain health!