Bryan Jewell’s Post

The days immediately following my initial surgery for Ehlers-Danlos Syndromes (EDS) encapsulated a profound journey of resilience, medical innovation, and personal reawakening. 48 Hours Post-Op Two days after undergoing significant surgery, including CMC joint arthroplasty and FCR tendon transfer, I found myself in a state of reflective optimism. Dr. Ericson's pioneering approach, which involved harvesting a tendon from my forearm to strengthen my thumb, started to unveil its transformative potential. This innovative surgical solution aimed to correct tendons that had wandered from their paths for a lifetime, a direct consequence of the hyperelastic nature of my connective tissues, indicative of EDS. Having endured the physical demands of boxing, karate, and the strenuous lifestyle of a Marine, this surgical correction represented more than just a physical restoration; it symbolized a reclamation of parts of my identity long compromised by my professional demands and my condition. The procedure addressed the mechanical instability of my wrist—a source of constant discomfort—with remarkable precision and care, rendering me virtually pain-free during and after the surgery, a result that far exceeded my expectations. 72 Hours Post-Op By the third day of recovery, the physical signs of my surgical intervention became increasingly evident. The swelling subsided, revealing the surgical incisions. This recovery phase was not just a physical challenge but also a period of profound introspection. It highlighted the reality faced by individuals with EDS—a condition often misinterpreted, misdiagnosed, and mishandled by a healthcare system generally ill-equipped to address less common disorders. Forward-Looking: The Path of Advocacy and Renewed Hope Sharing these updates, my objective extends beyond narrating my personal journey; it is an earnest call for greater awareness, understanding, and research into EDS and how it can be managed more effectively. My experiences with Dr. Ericson and the life-changing surgeries he performed serve as a beacon of hope for many living in the shadows of undiagnosed or inadequately treated conditions. To those navigating their EDS journeys or advocating on behalf of loved ones, remember: the path to diagnosis and effective treatment is laden with obstacles but also ripe with opportunities for discovery and transformative care. For those considering the potential of such transformative surgeries, I urge you to consult with specialists like Dr. Ericson. Dont stop advocating for yourself! Semper fidelis, Bryan (@KindaSpoony)

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