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💕 Why does Clinical Research matter? Because, in the end, baby Owen's innovative, life-saving procedure at Duke University Health System (a partial heart transplant where the donated heart parts are growing with him 1 year into his life, a world first!) has to be proven to be more than an amazing one-off miracle. Clinical research, including clinical trials, will be essential for the development of new medical procedures such as Owen's. Clinical research will help ensure that the procedure is safe, effective, and reliable, and that it can be used to improve the lives of patients who need it most. Why is Owen's life-saving transplant and others like it potentially a breakthrough that could save thousands of lives, especially those waiting for a heart that may never come in time? Enter the 'domino heart transplant' - a patient with healthy valves but needing stronger heart muscle could receive a new heart BUT then donate their healthy valves to a patient with unhealthy valves, creating the 'domino effect'. This has happened 13 times at 4 centers around the world, including 9 times at Duke in Durham, NC. If vetted by clinical trials, this could potentially DOUBLE the # of hearts available for transplant into children with life-threatening heart diseases. Beyond the 3,300+ waiting list in the U.S. for a new heart to vital organs in general, there was a record-breaking 42,000+ transplants performed in 2022 with a waiting list more than 100K people long. Among the 1,700+ children and teens who receive organ transplants yearly, some children waiting for transplants die, having waited for more than a year. Scoring on waiting lists still often favors adults who are sicker- a fact that rocked me upon learning. Know hope. Believe in Clinical Research and human ingenuity. Please consider signing up to be a donor. #clinicalresearch #organtransplant #beadonor #chooselife

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