💕 Why does Clinical Research matter? Because, in the end, baby Owen's innovative, life-saving procedure at Duke University Health System (a partial heart transplant where the donated heart parts are growing with him 1 year into his life, a world first!) has to be proven to be more than an amazing one-off miracle. Clinical research, including clinical trials, will be essential for the development of new medical procedures such as Owen's. Clinical research will help ensure that the procedure is safe, effective, and reliable, and that it can be used to improve the lives of patients who need it most. Why is Owen's life-saving transplant and others like it potentially a breakthrough that could save thousands of lives, especially those waiting for a heart that may never come in time? Enter the 'domino heart transplant' - a patient with healthy valves but needing stronger heart muscle could receive a new heart BUT then donate their healthy valves to a patient with unhealthy valves, creating the 'domino effect'. This has happened 13 times at 4 centers around the world, including 9 times at Duke in Durham, NC. If vetted by clinical trials, this could potentially DOUBLE the # of hearts available for transplant into children with life-threatening heart diseases. Beyond the 3,300+ waiting list in the U.S. for a new heart to vital organs in general, there was a record-breaking 42,000+ transplants performed in 2022 with a waiting list more than 100K people long. Among the 1,700+ children and teens who receive organ transplants yearly, some children waiting for transplants die, having waited for more than a year. Scoring on waiting lists still often favors adults who are sicker- a fact that rocked me upon learning. Know hope. Believe in Clinical Research and human ingenuity. Please consider signing up to be a donor. #clinicalresearch #organtransplant #beadonor #chooselife
Eddie Beaver’s Post
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This ‘WhatsApp’ message changed my life. A single notification that redefined my belief in the power of science. It was a message from a mum whose child had battled leukaemia. (Btw - I have full permission to share this ❤️🩹) Her son is now 'cancer-free' thanks to cutting-edge CAR-T therapy. I met this mum two years ago in the parent kitchen at the hospital. My son was in hospital due to a Sickle Cell crisis. Her young son had Leukaemia. They had spent the last few years in and out of hospital. When we met, her son had just received T cells that had been reprogrammed in the US. They had been reprogrammed to target and attack cancer cells 🤯🧬 The engineered T cells had been given intravenously (through an IV line), like a blood transfusion. When we met, they were waiting and watching for the results. This mum was so brave. Her son was inspiring. They had been through the biggest fight of their lives. Their story ignited hope within me and reaffirmed my faith in the evolution of medical science. We swapped numbers and stayed in touch. He is still doing well and has plans to study medicine at Oxford!👏🏾✨ Here are some things I’ve learnt from people dealing with life’s most significant challenges: Resilience: Witnessing families navigate the complexities of illness with determination reminds us that resilience is not just a trait—it's a force that propels us forward. Embracing Innovation: Medical breakthroughs like CAR-T therapy highlight the transformative impact of scientific innovation. The Power of Community: Our encounters in shared spaces like the parent kitchen highlight the importance of supportive communities and meaningful connections during struggle. Hope as a Catalyst for Change: The message of 'cancer-free' isn't just a declaration; it's a beacon of hope that fuels optimism and belief in a brighter future. This reminds us to celebrate researchers, healthcare professionals, and families who inspire us with stories of resilience and triumph! Together, we can amplify awareness and support for ongoing scientific advancements, ensuring brighter tomorrows in healthcare. Repost for anyone who needs to see this today ♻️ #science #healthcare #parenting #healthcareinnovation
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Connor Charton is an MSc student in the lab of Dr. Peter Dirks at the The Hospital for Sick Children and a recipient of a CGS-M award! ⬇️ “Medulloblastoma (MB) is a cerebellar tumour predominantly affecting children and is a leading cause of cancer-related death in this population. Additionally, about 30% of MBs are driven by constitutive sonic hedgehog (SHH) signaling (SHH-MB). Although current treatment strategies have improved outcomes, they often cause damage to the otherwise healthy developing cerebellum, leaving survivors with lifelong cognitive complications. To further complicate this issue, a faithful model of pediatric SHH-MB has yet to be developed. As pediatric patients suffer especially poor outcomes, this highlights a pressing clinical need to better understand this disease. Using a model of human cerebellar development invented by our lab, my goal is to develop a novel model of pediatric SHH-MB, which in the future could allow for investigations into specific treatments and have the potential to improve the lives of thousands of patients worldwide.” #uoft #uoftmedicine #uoftlmp
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Do you know what the PRO-HOME Project is? In this study, we tested the efficacy of a multicomponent intervention (cognitive, physical, educational, and relaxation activities) held inside a technologically monitored intrahospital facility in reducing the length of hospital stay and multidimensional frailty in hospitalized older people. Our patients reported a 2-day reduction in length of hospital stay and moved from the MPI-2 category of risk (moderate risk of frailty) to the MPI-1 class (low risk of frailty)! Learn more about it, by reading the new article on Aging Clinical and Experimental Research! 👇🏼
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Read my latest work.
Congratulations to Paula Hardeman,DMSc,MPAS, PA-C on recently publishing "An update on managing patients with multiple sclerosis in primary care" in the Journal of the American Academy of Physician Associates (JAAPA). UT Southwestern Medical Center #womeninscience #blackhistorymonth
An update on managing patients with multiple sclerosis in... : JAAPA
journals.lww.com
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The Access to Innovative Therapies and Optimal Care research theme is conducting a study to understand the current landscape of access and barriers to several innovative therapies across Canada. While innovative therapies offer compelling evidence, many novel therapies are still a high-cost and not publicly funded leading to inequitable access. Understanding the inequities in access and barriers to these novel therapies may help inform health policy infrastructure changes and ultimately, improve access for all children in Canada. We invite all pediatric oncology professionals in Canada to participate in this survey; the survey should take under 20 minutes to complete. Take the survey here: bit.ly/4eSaa0e #CancerCare #AccessForKids
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🌟Don't miss our upcoming webinar 👉 Measuring Healthcare Transition Readiness to Adult-Focused Care Among Solid Organ Pediatric Transplant Recipients. With Lars Pape, Mignon McCulloch, Rupesh Raina, Maria de Ferris, Zibya Barday, Stephen Marks, Valerie A. Luyckx. 🗓️ Weds., June 26, 10 am (ET) 👉 https://lnkd.in/gc66iNwj Learning Objectives At the end of this presentation, the participant will be able to: Understand the efficacy of healthcare transition readiness tools among adolescents and young adults who are solid organ transplant recipients 1. Describe the healthcare transition road map 2. Describe the importance of collaborative healthcare transition tools
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The Access to Innovative Therapies and Optimal Care research theme is supporting a study to understand the current landscape of access and barriers to several innovative therapies across Canada. While innovative therapies offer compelling evidence, many novel therapies are still a high-cost and not publicly funded leading to inequitable access. Understanding the inequities in access and barriers to these novel therapies may help inform health policy infrastructure changes and ultimately, improve access for all children in Canada. We invite all pediatric oncology professionals in Canada to participate in this survey; the survey should take under 20 minutes to complete. Take the survey here: bit.ly/4eSaa0e #CancerCare #AccessForKids
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Gender specific presentations , and the use of appropriate imaging modality for diagnosis and treatment are crucial to address these disperities. Furthermore, the era of “one size fits all” should be nearing its end… regardless of gender. As we saw with the advent of personalized medicine in BioPhamra, is the next frontier for Medtech close?
Video - Emily Lau, MD, Mass General Hospital, said more needs to be done to include the different cardiac presentations of women in guidelines. Emily Lau #WomenInCardiology #Healthdisparities Massachusetts General Hospital
CVD presents differently in women than it does in men—guidelines should reflect that
cardiovascularbusiness.com
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Identifying the effects of #neurorehabilitation treatment is challenging. In this review paper, Drs. Forsyth and Whyte characterize the mechanisms of action of pediatric rehabilitation ingredients for a better understanding of the potential differences neurorehabilitation can make. Read more: https://lnkd.in/ebw6Kuyw
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Industry Director @ Dassault Systèmes | Growth Industry | Sustainable Innovation | Digital transformation | Virtual Twin |
🌟 Transformative Medical Breakthroughs for Older Adults! 🌟 The latest article from AARP highlights groundbreaking advancements in medical treatments specifically tailored for older adults. These innovations promise to significantly enhance the quality of life for our aging population. From cutting-edge therapies for chronic conditions to novel approaches in preventative care, these developments could reshape the healthcare landscape for older adults, offering new hope and improved health outcomes. Discover how these medical breakthroughs could impact you or your loved ones by reading the full article here: http://go.3ds.com/Wbx #HealthcareInnovation #MedicalAdvances #AgingWell #OlderAdults #AARP #FutureOfMedicine
3 Medical Breakthroughs That Could Help Older Adults
aarp.org
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