Danilo Lo-Fo-Wong’s Post

As a patient advocate for AMR during the past 11 years, I always find myself asking this question: "How can we empower patients and boost advocacy towards Antimicrobial Resistance (AMR)?" On the 20th of June 2024, between 3pm - 4pm CEST, the European Patients' Forum (EPF) and The AMR Narrative will jointly host a webinar titled, “Patient Advocacy for AMR in the EU: where do we begin?”. Working together, this will be the first of a series of 3 webinars on the impact of AMR in terms of various patient groups in the EU and will serve as a platform for dialogues driven by patient organisations to support advocacy efforts. Join our discussion around: - How are patient communities impacted by AMR? - What interventions or ideas could be used to boost patient advocacy on AMR? - What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone both in the EU and globally. Register for the webinar here: https://lnkd.in/eyW35HWy #theAMRnarrative #AMR #AntimicrobialResistance #PatientAdvocacy

How can we empower patients and boost advocacy towards Antimicrobial Resistance (AMR)? On the 20th of June 2024, between 3pm - 4pm CEST, the European Patients' Forum (EPF) and The AMR Narrative will jointly host a webinar titled, “Patient Advocacy for AMR in the EU: where do we begin?”. This will be the first of a series of 3 webinars on the impact of AMR in terms of various patient groups in the EU and will serve as a platform for dialogues driven by patient organisations to support advocacy efforts. Join our discussion around: - How are patient communities impacted by AMR? - What interventions or ideas could be used to boost patient advocacy on AMR? - What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone both in the EU and globally. Register for the webinar here: https://lnkd.in/eBa6ZvDD #theAMRnarrative #AMR #AntimicrobialResistance #PatientAdvocacy

Presenting: the Sanofi Patient Community Charter. Simply put, it's a set of principles that guide our engagement with patients and the healthcare community. Developed with more than 80 patient advocacy groups around the world, this charter enables us to take patient engagement to the next level. Find out how we put patients at the ❤ of our actions: https://lnkd.in/eHu-rcnv #PursueProgress #DiscoverExtraordinary

How can we empower patients and boost patient advocacy towards Antimicrobial Resistance (AMR)? 🏥💊 🗓 On 20 June 2024 (3 - 4pm CEST), the European Patients’ Forum (EPF) and The AMR Narrative will host the webinar “Patient Advocacy on AMR in the EU: where do we begin?”. This will be the first of a series of 3️⃣ webinars on the impact of AMR on various patient groups in the EU and will serve as a platform for dialogue driven by patient organisations to support advocacy efforts. 💬 Join the discussion on: 👉 How are patient communities impacted by AMR? 👉 What interventions or ideas could be used to boost patient advocacy on AMR? 👉 What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone. Register here ➡ https://bit.ly/4bPAAxn

Interested in the rare disease atypical HUA? Looking for a snapshot of what's important to aHUS patients & caregivers, or global advocacy efforts? https://lnkd.in/e793kNic  If you saw our recent newsletter, you'd know! Invitation's open, so check it out. #aHUS #cmTMA #TMA #complement #SHUa #newsletter

Yesterday was World Myositis Day. Did you know this observance has roots in the US dating back to 2006? TMA proudly partners with worldwide patient advocacy organizations to drive myositis awareness. TMA initiated "National Myositis Awareness Day" to be observed each year on September 21 as a way to drive awareness of these rare diseases among the public. A 2006 proclamation by the US House of Representatives endorsing National Myositis Awareness Day capped a years-long effort by TMA. While TMA expanded awareness efforts to the month of May as Myositis Awareness Month, September 21 continued to be observed. Learn more about World Myositis Day on TMA's website. https://lnkd.in/e9jZmJ2B #Myositis #MyositisWarrior #MyositisAwareness #TheMyositisAssociation #MyositisSupport #RareDisease #MYOMovement #MyositisLife #MyTMA #PatientAdvocacy #TheMyositisAgenda #MyositisAwareness #MyositisAwareness2024 #AwarenessForMyositis #WorldMyositisDay

Parexel recently hosted its first ever Patient Advocacy Group Forum, focusing on how socioeconomic status impacts clinical trial participation. The meeting focused on insights from a Parexel-sponsored survey of 4,000+ patients to better understand barriers to access and foster inclusivity. 📊 Watch below to learn how Forums are connecting representatives of diverse patient groups and using patient insights to shape clinical trials. 🤝 Interested in the survey insights? Find them here: #PatientAdvocacy #PatientInsights

The 8️⃣th edition of the Skills Training Course for Young Patients (#STYPA2024) meeting has come to an end! 🎉     During the training on 4th-7th July, young participants delved into critical discussions on Antimicrobial Resistance (AMR), sharing their insights and experiences.      Some key takeaways included:    💡 The impact of AMR on patient communities.  💡 Strategies to raise awareness about AMR.  💡 Planning effective advocacy campaigns.    In the coming months, participants will take part in workshops and webinars to follow up on their projects.    Read more about this initiative 👉 https://bit.ly/3VRKKXN    #AntimicrobialResistance #AMR #PatientAdvocacy #YouthEmpowerment

Parexel recently hosted its first ever Patient Advocacy Group Forum, focusing on how socioeconomic status impacts clinical trial participation. The meeting focused on insights from a Parexel-sponsored survey of 4,000+ patients to better understand barriers to access and foster inclusivity. 📊 Watch below to learn how Forums are connecting representatives of diverse patient groups and using patient insights to shape clinical trials. 🤝 Interested in the survey insights? Find them here: https://lnkd.in/gaxhxyvZ #PatientAdvocacy #PatientInsights

This is great to share today: #Purple Day! Join us at Phormulate for the webinar “Partnering for Progress: Leveraging Patient Advocacy Groups for Better Ourcomes”! Also featuring Professor Rohit Shankar MBE! Register below 👇🏻! #patientadvocacy #epilepsy #pharma