Debbie Drell’s Post

As we recognize Friedreich ataxia (FA) Awareness Month, I am inspired by the courage and determination of the FA community. FA is a rare and debilitating neuromuscular disorder, with symptoms typically appearing in childhood. I am proud of the work we do at Biogen to advance FA research, support the FA community and bring awareness to the disease. Learn more: https://www.curefa.org/ #FriedreichAtaxia | #FAAwarenessMonth

As we recognize Friedreich Ataxia (FA) Awareness Month, I am inspired by the courage and determination of the FA community. FA is a rare and debilitating neuromuscular disorder, with symptoms typically appearing in childhood. I am proud of the work we do at Biogen to support the FA community and bring awareness to the disease.  #FriedreichAtaxia | #FAAwarenessMonth | #TeamBiogen

As we recognize Friedreich Ataxia (FA) Awareness Month, I am inspired by the courage and determination of the FA community. FA is a rare and debilitating neuromuscular disorder, with symptoms typically appearing in childhood. I am proud of the work we do at Biogen to support the FA community and bring awareness to the disease.  #FriedreichAtaxia | #FAAwarenessMonth | #TeamBiogen

As we recognize Friedreich Ataxia (FA) Awareness Month, I am inspired by the courage and determination of the FA community. FA is a rare and debilitating neuromuscular disorder, with symptoms typically appearing in childhood. I am proud of the work we do at Biogen to support the FA community and bring awareness to the disease.  #FriedreichAtaxia | #FAAwarenessMonth | #TeamBiogen

June is MG Awareness Month around the world! Myasthenia Gravis (MG) is a rare neuromuscular, autoimmune disorder. It is known as a ‘snowflake disease’ because everyone’s disease can present differently. Despite growing awareness in recent years, the journey to diagnosis remains challenging, sometimes taking up to two years. We stand with the Myasthenia Gravis Foundation of America, Inc., to raise awareness of their efforts for MG Awareness Month. Together, we can turn awareness into action. http://ms.spr.ly/6043YsNWd #MGStrong #RareDisease #RareDiseaseAwareness #MGAwarenessMonth #MyastheniaGravis

💙 June is Myasthenia Gravis (MG) Awareness Month! 💙 MG is a rare chronic autoimmune neuromuscular disease that affects thousands worldwide, causing muscle weakness and fatigue.  During June, the MG Community takes action to drive awareness of the condition, making sure people understand the challenges faced by those diagnosed with MG and their caregivers. Let's spread knowledge, understanding, and compassion. Together, we can make a difference! 💪💙 Find out more about MG here - www.myasthenia.org #MGStrong #MyastheniaGravisAwarenessMonth

For 5,600 people in Taiwan, daily tasks like blinking or lifting a cup can become exhausting battles due to myasthenia gravis (MG), a rare autoimmune disorder that causes muscle weakness. Hear from Ms. Liang, the current chairperson of the Myasthenia Gravis Association of Taiwan, as she shares her personal journey battling MG and how she regained the strength to rebuild her life amidst adversity. At Menarini, we stand with the MG community in raising awareness about this rare but debilitating disease, and remain committed to empowering MG patients. #MyastheniaGravis #RareDisease

Did you know May is dedicated to raising awareness about Myositis?  💭    Myositis is an inflammatory disease causing muscle weakness that results in fatigue, reduced strength and daily battles.    This month we are dedicated to sharing Myositis research, stories and news. Understanding more about Myositis supports those impacted, and also supports research towards finding a cure.    📲 Keep following along on our social channels for Myositis content  ✉️ Send us a DM for more information on new research in Myositis  🖥️ Access resources for Myositis at https://lnkd.in/gUnYtHsb    -    #Myositis #MyositisAwarenessMonth #myositiswarrior #raredisease #rarediseaseawareness #rarediseaseadvocacy #spooniesupport #spooniestrong #invisibleillness #invisibledisability #KnowRare     

June is MG Awareness Month around the world! Myasthenia Gravis (MG) is a rare neuromuscular, autoimmune disorder. It is known as a ‘snowflake disease’ because everyone’s disease can present differently. Despite growing awareness in recent years, the journey to diagnosis remains challenging, sometimes taking up to two years. We stand with the Myasthenia Gravis Foundation of America, Inc., and other European and local MG patient organisations to raise awareness of their efforts for MG Awareness Month. Together, we can turn awareness into action. https://lnkd.in/gA_7_9wV #MGStrong #RareDisease #RareDiseaseAwareness #MGAwarenessMonth #MyastheniaGravis

Navigating autoimmune diseases can be daunting, filled with uncertainty and often both physical and mental suffering. Unfortunately, the prevalence of these conditions is increasing and there are still many unmet needs faced by these patients, from improving early diagnosis to finding the right treatment for each individual, and implementing #precisionmedicine strategies. 📣 March is Autoimmune Diseases Awareness Month! Let's come together to educate, advocate, and support those impacted by these complex diseases. (For more details and facts, watch the cool short video below made by my super creative communications colleagues 📽 ) #autoimmunityawarenessmonth #autoimmunediseases #autoimmunity