We couldn’t let #ALSAwarenessMonth wrap without our annual company walk! The event gives our employees the opportunity to raise critical awareness about ALS – and reminds us all of the importance of our work that aims to address this serious disease. We heard moving and educational presentations from Sheri Strahl at the ALS Network and Dr. Michael Robinson, who spoke about the first-hand challenges faced by people before and after diagnosis. We remain in awe of the critical advocacy work led by ALS Network, Michael and the many individuals and groups dedicating their lives to helping people with ALS.
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Today, we stand together to raise awareness for #RareDiseaseDay. Every life impacted by a rare disease is unique, yet the challenges they face are often shared. Let's unite in support, advocacy, and understanding. Together, we can shine a light on these conditions, empower those affected, and strive for better treatments and research. For more info on Rare Disease Day, visit: https://lnkd.in/gk6hbAF #RareDiseaseAwareness #RareDiseaseDay
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Today, we stand together to raise awareness for #RareDiseaseDay. Every life impacted by a rare disease is unique, yet the challenges they face are often shared. Let's unite in support, advocacy, and understanding. Together, we can shine a light on these conditions, empower those affected, and strive for better treatments and research. For more info on Rare Disease Day, visit: https://lnkd.in/gk6hbAF #RareDiseaseAwareness #RareDiseaseDay
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On #WorldGlaucomaDay, we celebrate the advancements that have helped people like Jaxon, Pat and Trinh preserve vision. Our thanks to advocacy organizations like Glaucoma Research Foundation that push for better education, resources and a cure for this disease. Learn about glaucoma: https://bit.ly/4386QbS #SeeBetterLiveBetter
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Cholangiocarcinoma can be hard to explain, so our Cholangiocarcinoma Foundation team works on ways to simplify information so we can educate the community about symptoms, diagnostics, talking to your provider, treatments, and more. As part of CCA Awareness Month, we developed this one-pager: https://lnkd.in/guJBYD-X. We encourage you to become familiar with it, and if you are interested in advocacy, please consider sharing it in your communities. You can get ideas on where to share it via our toolkit (https://lnkd.in/gWAtKfwH) #beclearoncca #ccaawareness #ccahope #cholangiocarcinoma #patientadvocacy
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You probably heard of HD-CAB before, but do you know what makes it different? Find out in this post ⬇
👐 HD-CAB offers a diversified representation of the HD Community 🌏 Traditional advisory boards have focused on only a select number of community members, and HD-CAB was created to ensure that as many voices as possible have a seat at the table for advocacy and working with industry partners. This includes global diversity and a diversity of relationships to Huntington’s disease. 📩 If you’re interested in learning more about how HD-CAB can collaborate with you, email [email protected]
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📅 Mark Your Calendars! Join us for the SCD Policy Forum, a pivotal 2-day event uniting sickle cell advocates nationwide. Hosted by Sick Cells & Sickle Cell Community Consortium. 🗓️ Day 1: Dive into federal advocacy with educational sessions on SCD policy. Hone your skills in workshops, connect in breakout sessions, and engage in mock meetings. 🗓️ Day 2: Take action on Virtual Hill Day! Engage directly with legislators, share your insights, and advocate for sickle cell disease policy changes. 🔜 More details coming soon! #SCDPolicyForum #SickleCellAdvocacy
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President-elect American Association of Cardiopulmonary Rehabilitation. Director, Cardiopulmonary Rehabilitation
Cardiac Rehab: Improving saved Lives and restoring hope through passionate education and scientific conditioning.
Happy #CRWeek2024! Today through Saturday, February 17, join AACVPR in drawing attention to the role cardiac rehabilitation plays in reducing the potentially devastating effects of heart disease. Be sure to follow along on our social channels all week long as we will be sharing resources, celebration ideas, advocacy tips and more.
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📣JUST LAUNCHED: Discover the 🆕 #Vision2030 advocacy in action report, and explore how we can leverage industry actors' expertise and resources to improve #OralHealth and reduce the burden of disease globally. 🤝Let's join forces to deliver optimal oral healthcare for all. 👉 https://lnkd.in/dp7kFQz2
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Raising awareness for rare diseases is essential for improving early diagnosis, treatment, access to support, research, advocacy, and ultimately, the quality of life for individuals living with these conditions. #RareDiseaseDay #ShowYourRare #Awareness #Support #RareDiseaseAwareness #battendisease #battendiseaseawareness
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Lobbying legislators about the critical needs of people living with #ALS, their families, and caregivers is one of the keys to making ALS a livable disease until we can cure it. We took to the Hill this month to do just that. Learn more about how you can support these important advocacy efforts: https://lnkd.in/eR_kKaiY #ALSAdvocacy
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