Clincierge’s Post

Batten disease has no cure, and there is only one FDA-approved treatment (CLN2), but current research and clinical trials provide optimism for the future. Research studies for every CLN type will be available for families to participate in at the Annual Family Conference in July. 🔗 https://ow.ly/Tb1J50S1bjV #BattenDay2024 #BattenAdvocatesForACure #BattenDisease #BattenAwareness

Very interesting and encouraging read from our own Vijay Yajnik, MD, PhD, on the power of collaboration in addressing critical patient needs in #GI! So important to advance understanding of underdiagnosed diseases like #EoE through innovative, patient-focused research. https://lnkd.in/e_vSD4BZ #TeamTakeda

Very interesting and encouraging read from our own Vijay Yajnik, MD, PhD, on the power of collaboration in addressing critical patient needs in #GI! So important to advance understanding of underdiagnosed diseases like #EoE through innovative, patient-focused research. https://lnkd.in/esquVRwF #TeamTakeda

Very interesting and encouraging read from our own Vijay Yajnik, MD, PhD, on the power of collaboration in addressing critical patient needs in #GI! So important to advance understanding of underdiagnosed diseases like #EoE through innovative, patient-focused research. https://lnkd.in/eFXUBN2V #TeamTakeda

Very interesting and encouraging read from our own Vijay Yajnik, MD, PhD, on the power of collaboration in addressing critical patient needs in #GI! So important to advance understanding of underdiagnosed diseases like #EoE through innovative, patient-focused research. https://lnkd.in/gSFEeYxw #TeamTakeda

Today is #RareDiseaseDay! A rare disease presents unique challenges. Due to limited scientific information and the low prevalence, medical expertise is rare, and often available healthcare is inadequate. This affects the quality of life of the person with the condition & their families. Let's spotlight the #strength of the 300 million affected & their families & advocate for better #research and #medical care and support. Learn more: https://ow.ly/rvf450QJ4OI #ACT4RARE #IPHQatar RARE DISEASES INTERNATIONAL

Perspectives on the daily challenges that individuals living with rare diseases face continue to play a vital role in shaping innovative solutions that can help address their significant unmet medical needs. Today we announced the publication of results from a comprehensive survey of people living with #Fabry to share important insights related to disease management and monitoring. For details, see our press release: https://lnkd.in/gRT3jpxh #Orphanet #RareDiseases #ChiesiGlobalRareDiseases

🔬 Join the fight against diseases! Participate in our clinical trials and make a difference! 💪💊 Help us pave the way for groundbreaking treatments and therapies. Your contribution matters! Visit: www.emrti.com For more information: +91 8050276200 #ClinicalTrials #HealthcareResearch #MedicalResearch #PatientEngagement #ResearchStudy #ClinicalResearch #ScienceInAction #VolunteerForScience #HealthInnovation #MedicineTrials #emrti #institute #emrtiinstitute #empowerresearch

As our understanding of diseases evolves, the complexity of research grows – extending to clinical trials. That’s where the site manager comes in. See how certain trials benefit from this expert: https://bit.ly/3XFGIEw #ClinicalResearch #ClinicalTrials #SiteManager

Rare Disease Day 2024 is just a few days away. Rare diseases are varied and complex, often lacking the visibility and understanding that more common illnesses receive. This can lead to challenges in diagnosis, access to treatments, and social support. We at Quiver Bioscience support efforts by Rare Disease Community to bring awareness and create a global community of patients, families, healthcare professionals, and researchers dedicated to improving the lives of those affected. rarediseaseday.org #rarediseaseday #rarediseaseday2024 #rarediseaseresearch