Cholangiocarcinoma Foundation’s Post

Join the paid research study with Healthcare Professionals working in Health Systems. The study will explore industry needs, motivations, and barriers around improving patient experience and oncology screening services.🧑⚕️ 🫰Honorarium: $300 💻Method: 60-minute online interview 🌎Location: USA Check if you qualify for the study by filling out the short survey: 👇 https://bit.ly/3tGXLtz #healthcareresearch #patientexperience #oncologyresearch #healthcareprofessionals #marketresearch #medicalresearch #healthsystems #industryinsights

Advanced technology and medical data can be confusing for patients, their caregivers, and healthcare providers. 👉 Our newest study looks at how patients and healthcare professionals talk about these complex tests and treatments and what areas need more research to improve communication in this field of personalized cancer care. Access the full publication here: https://bit.ly/43DyXQn & don't forget to share it with your network! And, as you dive into the paper, take a look our library of #patientexperiences, as they allow us to understand better the barriers to accessing targeted treatments, discover best practices, and see key differences between patient experiences in precision medicine: https://lnkd.in/dt95v3vS 👀 𝙏𝙝𝙚 𝙥𝙝𝙤𝙩𝙤 𝙞𝙨 𝙛𝙧𝙤𝙢 𝙡𝙖𝙨𝙩 𝙮𝙚𝙖𝙧'𝙨 𝙘𝙤𝙢𝙢𝙪𝙣𝙞𝙩𝙮 𝙢𝙚𝙚𝙩𝙞𝙣𝙜 𝙞𝙣 𝙈𝙖𝙙𝙧𝙞𝙙 💚

New paper! 🙌 Patients often feel overwhelmed/anxious when learning about their #cancer. This may lowers comprehension of critical health information & often leads to non-adherence to therapies. To bridge this health literacy gap we explored #VisualAids for #CancerCommunication treatment paths.   We showed that visual aids significantly improve response quality compared to other audio/verbal information only, increased confidence, and their information quality was rated higher.  In the clinic, patients understood and remembered their treatment paths well when visual aids were used. Both enrolled patients and physicians found these aids helpful, with many patients treasuring and keeping them.   Take-away: Our work highlights the importance of visual aids for clinical care, and encourages us to continue efforts towards more equitable, patient-centered communication. Team: Julian Ketges, Anna Otto, Maria Uhlig, Raphael Teipel, Karolin Trautmann-Grill, Malte von Bonin, Moritz Middeke, Martin Eichler, Sebastian Pannasch, Martin Bornhäuser. Support: Universitätsklinikum Carl Gustav Carus Dresden, Technische Universität Dresden /Psychologie & MedizinischeFakultät, Stiftung Hochschulmedizin, Deutsche Krebshilfe Blog: https://lnkd.in/g7q9Cipr Full paper: https://lnkd.in/g9FxQqDm 4/

📢 The new ESMO #ClinicalPracticeGuideline (CPG) for #communication and support of patients and caregivers in chronic #CancerCare is now available. Communication in #CancerCare is associated with medical and psychosocial outcomes, including distress or satisfaction for both patients and clinicians. This CPG provides an up-to-date approach to #DoctorPatientCommunication, covering the following topics: 📌 Communication issues that apply to #OncologyConsultations in general, consisting of recommendations regarding the structure of the interview, obtaining and providing information, explaining options and making decisions, responding to patients’ and caregivers’ emotions, relationship building and support, supporting hope, interprofessional communications, chronic cancer and #survivorship, meeting with family and significant others 📌 Background issues of doctor-patient communication, including the psychology of patient and clinician, biological, social, and spiritual dimensions of illness, as well as setting of the consultation and the broader #HealthCare context 📌 Communication training for #oncologists 📌Research on communication in #CancerCare 👉https://ow.ly/krAC50SkyUA #ESMOOpen #ESMOGuidelines

This important guideline by ESMO - European Society for Medical Oncology provides a set of evidence-based recommendations to further improve #DoctorPatientCommunication in #CancerCare. This is an #OpenAccess article that I believe holds relevance for all #HealthCommunication professionals, since it is a great exemplar of how researchers may translate #ResearchFindings into guidelines applicable for #ClinicalPractice to improve #QualityOfCare. #QualitativeResearch #ESMOGuidelines

Check out the 2nd #BCCaseStudy on World Parkinson Coalition! #WPC #Legacy #GlobalImpact #ParkinsonsCare #ParkinsonsDisease #ParkinsonsResearch #PatientCentered #Innovation #Research #CommunityEngagement #CaseStudy #BCCaseStudies #BestCitiesGA

Another key finding from the research paper we contributed to, is that the treatment and care of all patients diagnosed with sarcoma should be under the supervision and management of a multidisciplinary team of experts. To read the full paper, click here: https://lnkd.in/deFpR_fn #SarcomaAwareness #Campaigning4Cancer #RareCancers #SarcomaTreatment #SarcomaExperts

Explore the #GlobalPerspectives of immunotherapy and witness how countries #AroundTheWorld are adopting and implementing it. From high-to low- income countries, the journey of immunotherapy adoption varies, presenting unique challenges and successes. Come learn with us about immunotherapy implementation and the progress being made in different countries. Let's uncover the obstacles faced and the innovative solutions being developed to ensure that all patients, regardless of geography, have access to this type of treatment. #CancerImmunotherapyMonth #HealthcareInnovation #EquitableAccess

As we talk about the major importance of #collaboration in precision medicine and healthcare in general, Nicole Sheahan is 𝒉𝒊𝒕𝒕𝒊𝒏𝒈 𝒕𝒉𝒆 𝒏𝒂𝒊𝒍 𝒐𝒏 𝒕𝒉𝒆 𝒉𝒆𝒂𝒅 with her view on cooperation. "𝑊ℎ𝑒𝑛 𝑖𝑡 𝑐𝑜𝑚𝑒𝑠 𝑡𝑜 𝑝𝑟𝑒𝑐𝑖𝑠𝑖𝑜𝑛 𝑚𝑒𝑑𝑖𝑐𝑖𝑛𝑒 𝑖𝑡’𝑠 𝑐𝑟𝑖𝑡𝑖𝑐𝑎𝑙 𝑡ℎ𝑎𝑡 𝑤𝑒 ℎ𝑎𝑣𝑒 𝑚𝑢𝑙𝑡𝑖𝑝𝑙𝑒 𝑠𝑡𝑎𝑘𝑒ℎ𝑜𝑙𝑑𝑒𝑟𝑠 𝑎𝑡 𝑡ℎ𝑒 𝑡𝑎𝑏𝑙𝑒. 𝐼𝑓 𝑎𝑛𝑦𝑜𝑛𝑒 𝑖𝑠 𝑚𝑖𝑠𝑠𝑖𝑛𝑔, 𝑤𝑒’𝑟𝑒 𝑛𝑜𝑡 𝑑𝑜𝑖𝑛𝑔 𝑜𝑢𝑟 𝑗𝑜𝑏. 𝑇ℎ𝑎𝑡’𝑠 𝑡ℎ𝑒 𝑝𝑎𝑡𝑖𝑒𝑛𝑡𝑠, 𝑡ℎ𝑒 𝑐𝑎𝑟𝑒𝑔𝑖𝑣𝑒𝑟𝑠, 𝑏𝑢𝑡 𝑎𝑙𝑠𝑜 𝑖𝑡’𝑠 𝑎 𝑝𝑎𝑟𝑡𝑛𝑒𝑟𝑠ℎ𝑖𝑝 𝑤𝑖𝑡ℎ ℎ𝑒𝑎𝑙𝑡ℎ𝑐𝑎𝑟𝑒 𝑝𝑟𝑜𝑣𝑖𝑑𝑒𝑟𝑠 𝑎𝑛𝑑 𝑝𝑎𝑦𝑒𝑟𝑠." - Nicole Sheahan, President, Global Colon Cancer Association ps: If you haven't yet. Join us on Synapse, the collaborative network driving societal impact. It maps initiatives, connects changemakers, and pools global resources and best practices to amplify positive change https://lnkd.in/eHarnS68 #precisionmedicineawarenessmonth #PMawarenessmonth #healthcollaboration #personalizedhealthcare