Beth Israel Lahey Health’s Post

A new open access article from Nova Fellow Carley Riley and colleagues investigates barriers to interventions such as Infant Well Child Visits (WCVs) and underscores the importance of caregiver perspectives when designing interventions. WCVs provide an opportunity for children and families to receive support and prevent adverse health outcomes, however, babies of low-income and Black families often do not receive the recommended schedule of visits. Community peer researchers interviewed caregivers who were primarily Black and insured through Medicaid, finding that they often relied on family and community guidance for healthcare decisions and cited racism, perceived judgment, and being rushed as significant barriers to WCV attendance. This study highlighted themes of trust, empathy, shared decision-making, and racial concordance between medical providers and caregivers as critical factors in promoting WCV attendance. Authors also point to several opportunities for systemic improvements in intervention design and implementation and future directions for research. Read: https://ow.ly/8TlY50RKjTr

As we continue to celebrate #PatientSafetyAwarenessWeek from March 10 - 16, 2024, we invite you to learn more about the drivers of perinatal quality and patient safety gap. Disparate data systems and non-relevant data create barriers to institutional alignment with and accountability to Black people focused and equity driven perinatal care experiences and outcomes. Birthing Cultural Rigor® in perinatal quality improvement (QI) and implementation programs and activities requires a patient and community focused measurement tool to drive equity within health systems through awareness, action, and accountability. Where and when can you learn more about birthing cultural rigor and advancing obstetric patient safety throughout U.S. hospitals? By signing up to attend the 2nd Annual Obstetric Patient Safety Summit (OPSS) on the campus of the Nashville Marriott at Vanderbilt University, October 30 - November 3, 2024. Check out the testimonial of one of our amazing participants from Minnesota who attended OPSS 2023. https://lnkd.in/eGFZ6bFX Register today for OPSS 2024 and learn how to address obstetric racism during hospitalization for prematurity and advance obstetric patient safety. https://lnkd.in/ebs-p2BV

As we share this insightful and heartfelt blog post by Syntyche Boman in commemoration of World Sickle Cell Day, it is crucial to approach the topic with sensitivity and respect. The personal story and experiences shared here demonstrate the enormous obstacles that people with sickle cell disease (SCD) must overcome, especially prejudice and discrimination. Breaking the stigma requires public education and awareness-raising, but it also requires that our conversation be helpful and constructive. A few things to remember are as follows: -Always honour the privacy and dignity of those sharing their experiences. Steer clear of sensationalising or using personal experiences just to get attention. -Foster an atmosphere of empathy and understanding. Urge readers to consider ways they may help create a more welcoming and encouraging community for people with SCD. -Promote inclusivity: back laws and programmes that uphold diversity and shield people from prejudice in the workplace, school system, and medical field. -Highlight support materials: tell those with SCD and their families about the tools and support services that are accessible. These might be advocacy groups, support groups, and healthcare resources. These can help us make sure that our initiatives to dispel stigma and increase awareness are polite and successful. Together, we can make the world a place where people with SCD can live full, healthy, and respectable lives. #WorldSickleCellDay   #SickleCellAwareness  #BreakTheStigma   #SupportSCD  #HealthEquity  #InclusiveCommunity  #AdvocateForSCD   #EndDiscrimination  #SickleCellEducation  #ChronicIllnessSupport  #EmpathyMatters  #GeneticDisorders  #PatientStories  #HealthAdvocacy

Each year, we're #AGSProud to honor researchers, clinicians, educators, and emerging health professionals who have made outstanding contributions to high-quality, person-centered care for older adults. Click here to view the full list of our #AGS24 Awardees and read about their achievements and contributions to geriatrics: https://ow.ly/pK8Q50RzPO5

Sometimes, our lived experiences fuel our passion for our work. In this, we seek to do better for others than was done for us. This work is not just work. It is a mission. #HealthEquity #QualityCare #MaternalHealth #PatientVoicesMatter #AdvocacyBelongsInHealthcare #DrTyffani

When I think about ways to support families living with dementia, I think about respite programs for caregivers, high quality home care for individuals living with a diagnosis and increased funding for cutting edge research for Alzheimer's and related dementia. Public policy is a way to ensure that research, care and services are expanded for all Americans. Did you know the Alzheimer's Bypass Budget and the National Alzheimer's Project Act are both set to sunset in 2025? There are two bills (S. 133 and S. 134) that would allow the momentum for funding, increased care and direct services for individuals impacted by dementia to continue. Raise your voice today in support of the National Alzheimer's Project Reauthorization Act and the Alzheimer's Accountability and Investment Act! The Association for Frontotemporal Degeneration has an easy way to connect with your elected official and voice your support. Being an advocate can begin with the simple step of completing an online form. Consider the power your voice can have today for families tomorrow. #ENDFTD #endalz

We lost my dad in 2021. He struggled with Frontotemporal Dementia - which sadly Bruce Willis and 50,000 to 60,000 other Americans are struggling with today. The vast majority of people with FTD are between the ages of 45 to 65. My dad was diagnosed in 2016 and those 5 years of watching his decline into the disease was devastating. It was exhausting on every level for us as he needed more and more care and was slipping further and further away. Did you know the Alzheimer's Bypass Budget and the National Alzheimer's Project Act are both set to sunset in 2025? There are two bills (S. 133 and S. 134) that would allow the momentum for funding, increased care and direct services for individuals impacted by dementia to continue. Raise your voice today in support of the National Alzheimer's Project Reauthorization Act and the Alzheimer's Accountability and Investment Act! The Association for Frontotemporal Degeneration has an easy way to connect with your elected official and voice your support. Being an advocate can begin with the simple step of completing an online form. Consider the power your voice can have today for families tomorrow. #endftd #endalz

Women #veterans have their own unique medical care needs. Learn strategies for providing patient-centered, sensitive care in this online course from @VeteransHealth. https://lnkd.in/gSCq4-f7

We want to hear from you all today.💜 Organisation supporting people living with epilepsy, teachers, physicians,caregivers, patient advocates, friend and family from across the world. Add a flag so we know where you're from. Add your voices to answering this question. What do your wish people knew about epilepsy today? #share #epilepsy #epilepsyawareness #endstigma

Women #veterans have their own unique medical care needs. Learn strategies for providing patient-centered, sensitive care in this online course from @VeteransHealth. https://lnkd.in/g72T9QUn