Alzheimer's Society’s Post

Donate here for to this important cause. Why is IUAD so important? There are currently 900,000 people living with dementia in the UK. With no cure and limited treatments, one in three people will develop the condition in their lifetime. This disease has a devastating personal impact, but also far-reaching consequences for society as a whole – it currently costs the UK economy over £34 billion every single year. What has IUAD achieved? So far, IUAD has raised over £8 million to help fund Alzheimer’s Society’s support services and research programme, providing help for today and hope for tomorrow. IUAD is also committed to driving awareness across the industry of the support available to staff and customers affected by the disease. https://lnkd.in/eN7Z8VZA e-united-against-dementia

We understand that being referred for a memory assessment can be an uncertain time because that’s what people have told us. People and families say they needed advice and guidance from the point of GP referral about what to expect, and where they can turn to for more help if needed. Next Steps is your guide to help you through every step of the process. Filled with information, links and practical “paper” tools to help you turn waiting times into preparation time. https://lnkd.in/d6b-5Wbh Step 1: What to expect from the memory assessment process Step 2: Take care of your own well-being Step 3 : Explore Available Support Step 4: What if I am diagnosed with a form of dementia? Visit the website or download the guide for free. From Dementia Change Action Network #DCan Co-Produced with people, families, providers, charities, NHS England and Memory Assessment Services #DementiaCan

I'm running the Leeds half marathon in aid of The Alzheimers Society. Alzheimers and dementia are currently one of the leading causes of death worldwide, approximately 1 in 3 people born in the UK today will develop dementia in their lifetime. The Alzheimer’s Society are helping us to understand the disease, offering hope to future generations and those currently living with dementia.If you would like to support me and raise funds for ground-breaking research of combat this devastating disease, please click the link below #leedshalfmarathon #alzheimerssociety #alzheimersresearch

ONLY 5 WEEKS TO GO! 😬 On the 3rd August I'm taking part in Alzheimer's Society 's #Trek26Suffolk and walking 26miles to raise money to help support people affected by Dementia. Dementia is the biggest health and social challenge of our time. There are currently estimated to be 900,000 people in the UK with dementia. Many are undiagnosed and facing the realities of their condition alone. This number will rise to 1.6 million people by 2040. And yet, despite this, latest figures show the UK government invests only around £85m in dementia research per year, which reflects about 0.25 per cent of the cost of dementia to the UK. In comparison, they invest about £270m per year or 1.5 per cent of the cost of cancer into cancer research. On a daily basis, I see the devastation this disease causes not only to the person living with dementia but to their families and friends. Dementia deserves more. It deserves more awareness, it deserves more funding and it deserves to be a priority. So I'm here to ask for your help. I'm here to ask you to donate whatever you can to this amazing cause. 💙 £50 could fund 8 phone calls to a Dementia Advisor providing support to carers who are exhausted and isolated. 💙 £200 could fund a Community Advisor for a day enabling them to visit someone face-to-face and provide invaluable support. https://lnkd.in/eYx43_ay FYI I've only managed 10miles so far and that was painful so this is going to be a massive challenge! #dementia #dementiaawareness #dementiasupport #fundraisingevents #charityevents #justgiving #pleasesupport #challengeaccepted #alzheimerssociety #alzheimersawareness #walking #takingaction

Do you wear your 💜 on your sleeve when it comes to fighting Alzheimer’s? Sign up for The Longest Day to make a difference and claim your free welcome kit and T-shirt. 😍 Choose an activity you love 🗣 Share your passion 💜 Help fight Alzheimer’s Get started today, help us raise funds to outshine the darkness of Alzheimer’s. An estimated 55 million people worldwide are living with dementia. Help us fight for them. Sign up for The Longest Day to raise funds and awareness that help advance care, support and research. Do something you love – while helping end Alzheimer’s. Pick an activity and share your passion to raise funds and awareness. Register now: alz.org/TLD. #ENDALZ

Do you wear your 💜 on your sleeve when it comes to fighting Alzheimer’s? Sign up for The Longest Day to make a difference and claim your free welcome kit and T-shirt. 😍 Choose an activity you love 🗣 Share your passion 💜 Help fight Alzheimer’s Get started today, help us raise funds to outshine the darkness of Alzheimer’s. An estimated 55 million people worldwide are living with dementia. Help us fight for them. Sign up for The Longest Day to raise funds and awareness that help advance care, support and research. Do something you love – while helping end Alzheimer’s. Pick an activity and share your passion to raise funds and awareness. Register now: alz.org/TLD. #ENDALZ

I NEED your help... On the 3rd August I'm taking part in Alzheimer's Society #Trek26Suffolk and walking 26miles to raise money to help support people affected by Dementia. Dementia is the biggest health and social challenge of our time. There are currently estimated to be 900,000 people in the UK with dementia. Many are undiagnosed and facing the realities of their condition alone. This number will rise to 1.6 million people by 2040. And yet, despite this, latest figures show the UK government invests only around £85m in dementia research per year, which reflects about 0.25 per cent of the cost of dementia to the UK. In comparison, they invest about £270m per year or 1.5 per cent of the cost of cancer into cancer research. On a daily basis, I see the devastation this disease causes not only to the person living with dementia but to their families and friends. Dementia deserves more. It deserves more awareness, it deserves more funding and it deserves to be a priority. Dementia will affect 1 in 3 of us. Recently, I have become this statistic. I am the 1 in 3. And suddenly, overnight, this event has become more important to me than ever. So I'm here to ask for your help. I'm here to ask you to donate whatever you can to this amazing cause. 💙 £50 could fund 8 phone calls to a Dementia Advisor providing support to carers who are exhausted and isolated. 💙 £200 could fund a Community Advisor for a day enabling them to visit someone face-to-face and provide invaluable support. https://lnkd.in/eYx43_ay FYI this is my family on our first 'training' session this morning! #dementia #dementiaawareness #dementiasupport #fundraisingevents #charityevents #justgiving #pleasesupport #challengeaccepted #alzheimerssociety #alzheimersawareness #walking #takingaction

Dear Network, I will be taking part in the Great North Run this September while fundraising for the British Heart Foundation. A charity that, through its research, has radically changed and innovated treatments for illnesses related to the heart and circulatory system. For context, when my father was born in 1961, there was no effective treatment for heart attacks, meaning that not many people recovered from the illness. Nearly three decades later, research led by the BHF discovered that the most effective treatment for heart attacks was a combination of aspirin and streptokinase. This research demonstrated that this combination of medication cut deaths by nearly 40%. Further, when my father was born most babies born with congenital heart disease died before their first birthday. Thanks to research supported by the BHF, Professors managed to find the causes of the disease. Now 8 out of 10 babies survive and live to adulthood. Considering that 13 babies are diagnosed with the illness every day, the importance of BHF's research cannot be understated. I hope these words demonstrate the profound impact of BHF's research. It would be greatly appreciated if you took the time to read my page and consider a donation. https://lnkd.in/eB3-fTdK

💛Leap into Action this Leap Year! Last year you leapt into action by getting behind our #EnoughisEnough campaign across the UK. Over 33,000 of you signed our petitions, helping us to secure an MP briefing in Westminster and have conversations in Scotland and Wales about services for people with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD). 👟With your help we walked the pathway to Parliament. 👊With your help we knocked on the door of No.10. 💛Will you Leap into Action again today so that we can support more people like Sarita? “I first heard about EDS UK while watching the London Marathon and seeing somebody run past dressed as a zebra. I went onto the website, read the strapline ‘making our invisible visible’ and burst into tears of relief. The website perfectly captured everything I was experiencing and gave me lots of new information that I didn’t have about my condition. The knowledge that there was a community of people out there who understood what I was going through was so overwhelming. It gave me such a great sense of hope, clarity and community.” Sarita 🫂Community is at the heart of EDS UK. We are proud to offer the largest support group network for people with EDS and HSD in the UK. Our peer-to-peer support groups are run by highly trained volunteers and offer support, validation and a sense of belonging, in a safe space. A donation of £15.00 could help us train a volunteer to provide this safe space. By making a donation today you can help us provide: - More opportunities for people to come together. - More information to empower people to get the care they deserve. - More chances to engage with policy makers and the NHS, to ensure their voices are heard and healthcare professionals have the knowledge, funding and tools they need to diagnose and provide appropriate care. “Without EDS UK, I would feel completely isolated and misunderstood. The charity has changed my life forever. We urgently need more support so we can reach more people. Together we can make sure there are fewer people who feel lost, terrified and alone.” Sarita 💛Please Leap into Action and donate whatever you can today: https://lnkd.in/exR3de4p With your help, more people like Sarita will be connected, heard and supported. With your help we can continue to push for equitable access to care for people with EDS and HSD across the UK. Thank you.

Emmett and our family have a dream fund on Gofundme The Friday before Thanksgiving, we were given the confirmation no parent wants to hear. Our precious Emmett has a rare genetic condition that has no cure, no treatment, and is fatal with a life expectancy of 10 - 15 years. MPS IIIA (commonly called SanFilippo, or childhood dementia) is a disorder that primarily affects the brain and spinal cord (central nervous system) and causes deterioration of neurological function. For more information, please Google it. The resources out there are quite consistent. Right now, Emmett is the same as he has always been, full of energy, smiles and laughter and we will keep going as normal (with a few extra appointments) as long as we can. A typical regression could start around age 5 or 6, with speech and mobility, and while we hope it doesn’t happen for a lot longer, we are planning a few trips while he is more mobile and cognitively aware. - Our wonderful friend Angela has set up a GoFundMe for us. This will help with our dream trips (Disney, Toronto and Nova Scotia). It will also help with therapy costs that are not covered by insurance, and other costs for experiences and items that will benefit Emmett https://gofund.me/7384a1df - You can also donate to the Canadian MPS Society that helps families like us. They provide some financial assistance to families in Canada. https://lnkd.in/eY6atEe8 - If you would like to follow along with Emmett’s story, we have created a Facebook page called Life With Emmett. We will have updates, pictures and all the things. Please give it a follow - https://lnkd.in/eD6AiwR6 We are so thankful for the support of our families and friends that have known about Emmett’s potential diagnosis this year. We did have a potentially positive result back in August, but were obviously hoping for a different outcome. This is an adventure we didn’t expect, but we are choosing to be as positive as we can, and make the most out of every day (expecting those emotional days in there as well). We can’t change the hand we are dealt, but we can choose how we play and we will play with bravery, love and laughter.