ALS Network

We invite you to join us for one or more of our September Connect, Support, Chat Groups (ALS Network's version of support groups designed for YOU!). These meetings provide opportunities for individuals to share their personal experiences and to learn more about strategies for preserving the independence and quality of life of ALS patients and their loved ones. Please visit our online calendar for monthly updates on guest speakers, new topic specific meetings, and date/time changes at calendar.alsnetwork.org.

Please join us for Connect, Support, Chat: Trach and Vent on Thursday, September 12 at 1:00 PM PDT/10:00 AM HST. Contact ALS Network Care Managers Robin Eller, RCP at [email protected] or Kathleen Kelsey, RCP at [email protected] for more information on how to participate.

We’re just TWO WEEKS away from the Petersen International Underwriters ALS Golf Classic event at The Oaks Club at Valencia on Monday, September 9. Here’s what you can look forward to: - Special Appearance by the Laker Girls (Los Angeles Lakers)! - KTLA 5 News Street Team - Complimentary Smoothie and Coffee Truck - 19th Hole Reception with hosted cocktails - Swag Bag including NEW GOLF SHOES - Opportunity Board Prizes - Putting contest and on-course games - Registration includes breakfast, lunch, snacks beverages and dual entree dinner - Plus, so MUCH more… Space is limited, so REGISTER TODAY for a day of play and purpose! For more event details and to register, visit our website: ALSGolfClassic.org

Lo invitamos a unirse a Conéctese, Apoyar, Unase: Español. Cuándo: Miércoles, Septiembre 18 4:00 p.m. Hora del pacífico/01:00 p.m. Hora de Hawaii. Por favor, comunicarse por correo electrónico a Debbie Joy [email protected] para las instrucciones. Please join us on Wednesday, September 18 at 4:00 PM PDT/1:00 PM HST for Connect, Support, Chat: Spanish Language. Contact Care Manager, Debbie Joy, at [email protected] for more information about how to participate.

Registration is open for the National ALS Registry 2024 Annual Meeting on September 4 and 5, 2024! Don't miss this annual virtual meeting for updates, presentations, and discussions with renowned speakers and research grantees. Register today at https://lnkd.in/g3_6ACuJ

The 2014 #ALSIceBucketChallenge inspired a grassroots outpouring of support for people living with #ALS and their loved ones, fueling advances in research, care, and advocacy. Today, it still serves as a call to action, for the world to advocate, participate, and donate in support of #ourALScommunity. In celebration of the 10th Anniversary of this global movement, ALS Network shares our gratitude to the many new and long-standing supporters of our mission. Special thanks to Denali Therapeutics, Cytokinetics MMD SHOPS, Hootsuite, and participants at the Big Island Walk & Roll to Cure ALS and Central Coast Ride & Rally to Cure ALS for their participation this month. As August concludes, YOU can still rise to the challenge and invite your friends and family to join you. Help fuel the search for effective prevention strategies, treatments, and cures as we celebrate 10 years of the ALS #IceBucketChallenge. Let’s #cureALStogether! Advocate, participate, and donate today at ibc.alsnetwork.org!

All of us at ALS Network are so grateful to the social media performance platform, Hootsuite for supporting our mission by taking the #ALSIceBucketChallenge at their annual #BeyondtheNest event. A special shout-out to the group of leaders in the Vancouver office, Jon, Amin, Karim, Timothy, and Phil, as well as their CEO, Irina, and any other Owls who take the challenge in response to their actions. We also want to thank Laura Zubick, Senior Manager, Social Impact, for her leadership and collaboration. Let’s #cureALStogether!

We are just TWO WEEKS away from the 20th annual Napa Valley Ride, Walk & Roll to Cure ALS on Saturday, 9/14. Let’s celebrate 20 years of research, care and advocacy with #ourALScommunity! Whether you aim to conquer the Century Ride, take steps to save lives, roll through our beautiful surroundings, or simply enjoy our festival zone, your participation and fundraising will help advance the ALS Network's (formerly ALS Golden West) mission in finding effective prevention strategies, treatments, and cures for #ALS. We look forward to seeing you in Napa and celebrating two decades of positive impact. Let’s #cureALStogether! Sign up today at alsridenapavalley.org.

Earlier this month, the ALS Network partnered with biotech leaders Denali Therapeutics and Cytokinetics, Inc. for the 3rd annual South San Francisco Splash to Cure ALS, marking the 10th anniversary of the #ALSIceBucketChallenge. From inspirational stories to CEOs taking the plunge, this event highlighted the power of collaboration in the fight against #ALS. The ALS Network extends its deepest gratitude to everyone involved for making waves in research, advocacy, and care. Let’s #cureALStogether! Learn more and make a gift in support at https://lnkd.in/gY8dA6AN.

We are just ONE WEEK away from our 25th annual Central Valley Burnout, Walk & Roll to Cure ALS. Join the ALS Network on Sunday, September 8 at Clovis Rodeo Grounds and raise awareness for #ourALScommunity. This year, we are combining our popular Burnout ALS and Car Show with our signature Walk & Roll event, all to fuel the mission priorities of the ALS Network. Sign up and/or make a gift TODAY at alswalkcentralvalley.org.