Atypical HUS: Why are the kidneys a primary target for TMA damage to organ function with aHUS activity? Blame the complosome. New article https://lnkd.in/etmF63Xy #aHUS #SHUa #TMA #cmTMA #atypicalHUS #complement #complosome
The Atypical HUS Alliance Action
Health, Wellness & Fitness
We Connect- We Inform - We Collaborate
About us
aHUS Alliance Global Action: The aHUS Alliance, through international collaboration, will promote global awareness of aHUS, will work with international aHUS researchers and, by supporting newly emerging national aHUS patient groups, will bring relief and support to those affected by aHUS to save, and improve the quality of, more lives. As a group of patient organizations interested in the rare disease atypical hemolytic uremic syndrome (aHUS), its main focus is connecting information, people and organizations whose interests lie in research and medicine related to aHUS. "Connecting Informing Collaborating" For more information about the aHUS Alliance, visit http://www.ahusallianceaction.org/about/ Email: [email protected] aHUS alliance Global Action is registered as a charitable incorporated organisation in England and Wales, Registration No. 1167904.
- Website
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http://www.ahusallianceaction.org
External link for The Atypical HUS Alliance Action
- Industry
- Health, Wellness & Fitness
- Company size
- 2-10 employees
- Type
- Nonprofit
- Founded
- 2015
- Specialties
- Atypical HUS, aHUS, Atypical Hemolytic Uremic Syndrome, Rare disease, cTMA, Eculizumab, Ravulizumab, Complement, aHUS Alliance Global Action, aHUS Alliance, and aHUS CAB
Employees at The Atypical HUS Alliance Action
Updates
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DYK: People with kidney disease can face lifestyle challenges which may cause depression or anxiety. Check out our article, packed with mental health info & ideas for positive steps toward dealing with challenges. https://lnkd.in/ektsa8zJ
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Huge thanks to all involved! Atypical HUS patients and their families united to participate in the 2024 Global aHUS poll about living with the rare disease (N= 320) https://lnkd.in/e5xAU3ix How’s the data looking so far?
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Síndrome urémico hemolítico atípico asociado al embarazo. Revisión de la literatura (Pregnancy associated aHUS, literature review) https://lnkd.in/euYjkSeU Microangiopatías Trombóticas #MAT #SHUa #HELLP
Síndrome urémico hemolítico atípico asociado al embarazo. Revisión de la literatura
medigraphic.com
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Did you watch our new aHUS community project, marking the 10th aHUS Awareness Day campaign? https://lnkd.in/eE-g9W2q Atypical HUS is challenging for patients & their families - expressed via our 2024 theme of Mental Health are entries from 46 aHUS patients & caregivers in 12 nations.
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Diagnosis of atypical HUS can be complex. "STEC infection does not exclude aHUS diagnosis..." https://lnkd.in/er78_eha #aHUS #STEC_HUS #HUS #complement #trigger
Shiga toxin-producing Escherichia coli infection as a precipitating factor for atypical hemolytic-uremic syndrome - Pediatric Nephrology
link.springer.com
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Wishing all who celebrate good health and joy this Rosh Hashanah. May this year ahead bring a life of countless and sweet blessings to everyone. Shanah Tovah! שנה טובה #RoshHashana #ShanahTova
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Atypical HUS - is there a 'seasonal incidence' aspect to this rare disease diagnosis? https://lnkd.in/gTp6RKEm From 2012 to our recent 2024 aHUS global poll, a review that is data driven. #aHUS #TMA #cmTMA #raredisease #complement
aHUS is likely at any time of year - aHUS Alliance Action
https://www.ahusallianceaction.org
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A celebration of aHUS Alliance Global Action - we've reached 3,200 Facebook Followers who value our independent patient voice for aHUS news & advocacy efforts from an int'l group of volunteers (who also are aHUS patients & family caregivers). Thanks! https://lnkd.in/evhqGdBd
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Thanks to all who joined to mark aHUS Awareness Day on 24 Sept 2024, whether through 'Med Ed', sharing patient experiences, or other ways that helped raise visibility for this rare disease. #aHUS #aHUS24Sept #SHUa #atypicalHUS #aHUSday