Dr. Merit Cudkowicz, director of the Sean M. Healey & AMG Center for ALS and chief of neurology at Massachusetts General Hospital, made a promise to the first person with ALS she cared for that she would keep working until new treatments were found. Last year, she shared with that person’s family that a new treatment had been approved by the FDA. https://lnkd.in/eQbUuzyH
The ALS Association
Non-profit Organizations
Arlington, Virginia 23,361 followers
Fighting ALS on every front through research, care services, and advocacy.
About us
Established in 1985, The ALS Association is the only national non-profit organization fighting ALS on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. Join us at ALS Nexus: als.org/als-nexus
- Website
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http://www.als.org
External link for The ALS Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Arlington, Virginia
- Type
- Nonprofit
- Founded
- 1985
- Specialties
- Research, Public Policy, Care Services, and Education
Locations
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Primary
1300 Wilson Blvd
Suite 600
Arlington, Virginia 22209, US
Employees at The ALS Association
Updates
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Some Medicare Advantage plans are denying access to non-invasive ventilators for people meeting coverage criteria. Are you or someone you know living with ALS using one or dealing with denials? If yes, please share your story: https://lnkd.in/gG4qDg_j #ALSAdvocacy
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Did you know? By participating in the Walk to Defeat ALS you are not only raising awareness for ALS within the ALS community, but outside of it too! By sharing your experience with others online or in-person, you can help raise awareness and funds to make #ALS livable until we can cure it! Check out our Facebook events to find one near you! walktodefeatals.org #WalktoDefeatALS
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Looking for the perfect gift for the football fanatic in your life? Help spread awareness and raise funds for #ALS research while supporting your favorite NFL team. Order NOW: https://lnkd.in/d5gcyuJp #ALLvsALS
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Type 2 diabetes is a major public health problem. But for 2023 Milton Safenowitz Postdoctoral Fellow Mario Flores, understanding the complex relationship between #ALS and diabetes might offer clues to ways ALS could be prevented. https://lnkd.in/e62tdVYe
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AI can process huge amounts of data at speeds humans can’t, making it an exciting new tool that could play a significant role in improving ALS treatment and care, starting with reducing time to diagnosis. Learn more about the work being done and the impact this can have on the #ALS community. https://lnkd.in/eibxr4kP
Developing AI to Detect and Diagnose ALS Sooner
als.org
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Phillis pitcher Aaron Nola is donating $1,000 to ALS for every strikeout he records this season. With 197 strikeouts, Aaron is making an incredible impact in the fight against ALS in honor of his late uncle Alan who passed from the disease. Join us in saying thanks by leaving a message in the comments and we'll share it with him or you can make a donation in his name by visiting: https://lnkd.in/dxwiWJMR #StrikeOutALS Major League Baseball (MLB) Philadelphia Phillies
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What is an eye-gaze device? Eye-gaze devices use eye movement to “activate” a letter, word or phrase on a computer screen, which can then be spoken by the computer for communication purposes. There are a variety of communication devices that can improve the lives of people living with ALS. Learn more: https://bit.ly/AAC-ALS
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Several states are recognizing the critical need for ALS care services and have allocated funding for 2025. However, many states have yet to commit to this essential support. By becoming an ALS advocate, you can play a pivotal role in urging your state to prioritize funding for ALS care, ensuring that individuals and families affected by this disease receive the assistance they desperately need. Join the fight today! Register as an ALS Advocate and help us secure funding for ALS care services in YOUR state: https://lnkd.in/e5pe9gSU
The ALS Association Action Center
als.quorum.us