We love seeing rare diseases like Duchenne muscular dystrophy getting the mainstream coverage they deserve! 🙌 Raising awareness is crucial for advancing research, supporting families, and connecting patients with life-changing therapies. Every story shared is a step toward better care and a brighter future for the Duchenne community: https://bit.ly/40dHeev
Orsini - Rare Disease Pharmacy Solutions
Pharmaceutical Manufacturing
Elk Grove Village, IL 4,797 followers
Your Leader in Rare Disease and Complex Therapy Programs
About us
Providing patients with comprehensive and compassionate care since 1987, Orsini is the leading, independent specialty pharmacy focused on rare diseases, gene therapies, and complex conditions. Orsini’s high-touch care model centers around compassionate, therapy-specific care teams who provide personalized care to patients based on their specific condition and treatment. The company’s comprehensive solutions include medication adherence programs, data analytics, customized manufacturer programs, and nationwide nursing coverage for convenient in-home infusion services. Headquartered in Elk Grove Village, IL, Orsini Specialty Pharmacy holds accreditations with the Accreditation Commission for Health Care (ACHC), The Joint Commission, URAC, NABP, and ACHC’s Distinction in Rare Diseases and Orphan Drugs. Conditions Treated Include: CLN2 Disease Molecularly Confirmed Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD) Duchenne Muscular Dystrophy (DMD) Mucopolysaccharidosis (MPS) Fabry Disease Paroxysmal Nocturnal Hemoglobinuria (PNH) Growth Hormone Deficiency Pompe Disease Gaucher Disease Phenylketonuria (PKU) Hereditary Angioedema (HAE) Progressive Keratoconus Hereditary ATTR (hATTR) Spinal Muscular Atrophy (SMA) Hunter Syndrome Tardive Dyskinesia Idiopathic Pulmonary Fibrosis (IPF) X-Linked Hypophosphatemia (XLH)
- Website
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http://www.orsinispecialtypharmacy.com
External link for Orsini - Rare Disease Pharmacy Solutions
- Industry
- Pharmaceutical Manufacturing
- Company size
- 201-500 employees
- Headquarters
- Elk Grove Village, IL
- Type
- Privately Held
- Founded
- 1987
- Specialties
- Rare Disease, Infusion Therapy, Specialty Pharmacy, Drug Launch, Nationwide Infusion Nursing Services, Gene Therapies, Cell Therapies, and Complex Conditions
Locations
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Primary
1111 Nicholas Blvd.
Elk Grove Village, IL 60007, US
Employees at Orsini - Rare Disease Pharmacy Solutions
Updates
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We are proud to announce the launch of ORBIT (Orsini Rare Business Intelligence Technology), our advanced AI-enabled reporting and analytics platform designed to enhance patient care for those living with a rare disease. “As the name suggests, ORBIT revolves around the patient, collecting and analyzing data to deliver a personalized experience,” said Ashok Singh, Chief Information Officer at Orsini. “This flexible, first-of-its-kind platform harnesses the power of AI to deliver better outcomes in rare disease care.” Learn more here: https://lnkd.in/eGyejVe2
Orsini Launches ORBIT™ (Orsini Rare Business Intelligence Technology) to Enhance Rare Disease Patient Care - Orsini
https://www.orsinispecialtypharmacy.com
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Connect with Orsini today at Global Genes's 2024 Week in RARE! Stop by our table to meet our team and learn how Orsini supports rare disease patients and caregivers. #WeekInRARE #RARESummit #GGSummit2024 #GlobalGenes #OrsiniCares #RareDisease
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Join Orsini at Meeting on the Mesa to discover our Cell and Gene Therapy Center of Excellence, offering specialized rare disease pharmacy solutions designed for cell and gene therapy programs. Will we see you there? #CGMesa24 #MeetingOnTheMesa #CellAndGeneTherapy
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One of the most rewarding aspects of working with rare diseases is witnessing a patient thrive, knowing we played a small role in connecting them with the care they needed. This weekend, at the Cure SMA Walk-n-Roll event, we were reminded of that in the most heartwarming way when we met the Hansen family. Their story is a testament to why we go above and beyond for every patient. At just 18 days old, their son was connected with life-changing gene therapy treatment through Orsini. Today, at three months old, he’s thriving. Seeing his progress reaffirms our mission and reminds us why we work so hard each day—to ensure that every patient, no matter how young or complex their condition, has access to the life-changing treatments they deserve. We want to extend a heartfelt thank you to the Hansen family for stopping by to see us and allowing us to share their inspiring story. #CureSMA #WalkNRoll #OrsiniCares #NoPatientLeftBehind
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🌍 Happy World Pharmacists Day! 💊 Today, we want to spotlight pharmacists, both here at Orsini and worldwide. Every day, they bring unmatched dedication, expertise, and compassion to their work, ensuring patients receive the highest standard of care and support. Within the rare disease community, where the journey can often feel lonely, our pharmacists play a vital role in bridging the gap between complex therapies and the patients and families who rely on them, offering guidance and support every step of the way. Please join us in celebrating and thanking our amazing pharmacists! #WorldPharmacistsDay #HealthcareHeroes
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Don't miss your last chance to sign up for tomorrow's HAE educational program in Dallas, TX! We're looking forward to meeting with patients, caregivers, providers, and medical staff to connect with the community and discuss HAE management. We'll cover how to take an active role in maintaining access to therapies, what role a specialty pharmacy plays in your journey, and more. https://lnkd.in/edph62JE #HAEAwareness #HAE #OrsiniCares
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"Orsini is thrilled to expand our partnership with Zevra Therapeutics and to continue our work with them by bringing this groundbreaking therapy to those living with NPC," said Darin DeCarlo, Orsini's Chief Growth Officer. Learn more: https://lnkd.in/eCvjybyV #NPC #NiemannPick #RareDisease #NoPatientLeftBehind
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Don't forget to sign up for next week's HAE educational program in Dallas, TX! Patients, caregivers, providers, and medical staff members, you won't want to miss this chance to connect with the community and learn more about managing HAE and ways to optimize care. https://lnkd.in/edph62JE #HAEAwareness #HAE #OrsiniCares
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Orsini holds the Duchenne muscular dystrophy community very near and dear to our hearts. We're looking forward to the opportunity to discuss the latest advances in treatment and patient care, and the role of specialty pharmacies in supporting families impacted by Duchenne. Join Lynda Parker and Kathi Henson at the upcoming National Association of Specialty Pharmacy (NASP) Annual Meeting to learn more. #NASP2024 #Duchenne #PatientCare