Don't let your struggle become your identity. #quotes #wisewords #struggle #nucdf
National Urea Cycle Disorders Foundation
Non-profit Organizations
Pasadena, California 445 followers
Dedicated to saving and improving the lives of children and adults with urea cycle disorders.
About us
We know Urea Cycle Disorders. We live to conquer them. The National Urea Cycle Disorders Foundation is the only nonprofit organization in the world solely dedicated to saving and improving the lives of children and adults from the catastrophic effects of urea cycle disorders. Formed in 1988 by a handful of parents whose children were affected, NUCDF has grown to be an internationally recognized leader in the fight to conquer urea cycle disorders (UCD) and raise awareness that saves lives. NUCDF is the driving force behind critical research to improve the understanding and management of UCD, find new treatments, and ultimately a cure. NUCDF serves as a lifeline to UCD patients, families, and medical professionals worldwide seeking information, support, and HOPE. We partner with the Urea Cycle Disorders Consortium, an NIH-funded Rare Diseases Clinical Research Network, to advance research in this area.
- Website
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http://nucdf.org
External link for National Urea Cycle Disorders Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Pasadena, California
- Type
- Nonprofit
- Founded
- 1988
- Specialties
- Rare diseases, Patient advocacy, Medical research, Urea cycle disorders, Community building, Education, Public awareness, Ornithine Transcarbamylase (OTC) Deficiency, Carbamoyl-phosphate Synthase 1 (CPS1) Deficiency, Argininosuccinate lyase deficiency (ASLD), argininosuccinic aciduria, citrullinemia, Argininosuccinate Synthase (ASS) Deficiency, hyperargininemia, N-acetylglutamate Synthase (NAGS) Deficiency, citrin deficiency, hyperammonemia, and Arginase (ARG) Deficiency
Locations
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Primary
75 S Grand Ave
Pasadena, California 91105, US
Employees at National Urea Cycle Disorders Foundation
Updates
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There is still time to join the cause! You can ride as a virtual rider or simply donate to the cause at https://lnkd.in/eWDWzWrc or by texting 'Curethecycle' to (833) 755-6550! #nucdf #curethecycle #donatenow #ureacycle #ureacycledisorders #metabolicconditions #geneticconditions
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You can help us get rated as a "GreatNonprofits Top Rated Non-Profit" again this year! We received the award in 2023. Will you help us get it again this year? All you have to do is go to https://shorturl.at/yYNBe and write a review about us. It really is that simple. Thank you in advance for your help and your support! #nucdf #nationalureacycledisordersfoundation #greatnonprofits #ureacycle #ureacycledisorders #metabolicdisorder #geneticdisorder
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Friendly reminder <3 #nucdf #friendlyreminder #onestepatatime #support
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Donate today by visiting https://lnkd.in/gwWYREiV texting 'Curethecycle' to (833) 755-6550! Want to ride virtually and help us raise funds for this cause? Sign up at https://lnkd.in/eWDWzWrc #curethecycle #nucdf #ureacycledisorders #nationalureacycledisorderfoundation #metabolicdisorders #geneticdisorders #ureacycle
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Did you know… The later-onset form of citrin deficiency, one of the urea cycle disorders, was formerly known as citrullinemia type 2? That term has now fallen out of favor due to confusion caused by similar names and different treatment approaches. A group of researchers has suggested using the term “adolescent and adult citrin deficiency (AACD)” for the late-onset form instead. Three recent papers are offering new insights into the disease, its prevalence, and currently available treatment options. Read more here: https://lnkd.in/eHYgpGdD #citrindeficiency #ureacycle #ureacycledisorders #inbornerrorsofmetabolism #metabolicconditions #geneticdisorders #metabolicdisorders #newresearch #didyouknow
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Are you on Instagram? We are! Follow us here: https://lnkd.in/eHCz3a8F #followus #instagram #cureucd #nucdf #ureacycledisorder #ureacycledisorders
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You can make a difference in the lives of those with UCDs. Donate today at https://lnkd.in/eC5SCGix. #donatetoday #endureacycledisorders #ureacycle #ureacycledisorders #otcdeficiency #raredisease #rarediseases #rarewarrior #rarelife #geneticdisease #geneticdisorders #metabolicdisease #metabolicdisorders
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Celebrate every win, no matter how small. <3 #celebratewins #smallvictories #nucdf #raredisease #inspiration
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