The day is finally here! We’re happy to finally announce the virtual premiere of Good Bad Things, streaming on VEEPS from Friday, September 20th at 6 pm PST - Sunday, September 22nd at 11:59 PST. 25% of your ticket price will benefit MDA's mission to empower the #neuromuscular community to live longer, more independent lives. “Good Bad Things is the movie I wish I had seen on a screen 20 years ago as a young adult living with a disability, unsure of how I fit into the world around me. Living your life, never seeing anyone on a screen, in a magazine or on a stage who looks like you is lonely. This movie and the inclusion it stands for is so needed and the reach of the cinema is powerful. This is how we will change the world for the 61 million people living in the United States with disabilities,” said Mindy Henderson, Vice President, Disability Outreach & Empowerment, Muscular Dystrophy Association Purchase your ticket today: https://lnkd.in/eNaKNWhQ #MuscularDystrophyAwareness #DisabilityRepresentation #DisabilityInclusion #GoodBadThings
Muscular Dystrophy Association
Non-profit Organizations
Chicago, Illinois 24,140 followers
Faster breakthroughs, Stronger futures.
About us
If you’re seeking to start or advance your career with a purpose, Muscular Dystrophy Association is an employer that will enable you to thrive. The Muscular Dystrophy Association is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. Our mission is to empower the people we serve to live longer, more independent lives. #MDA #MuscularDystrophy #ALS #neuromuscuar. Apply now.
- Website
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http://www.mda.org
External link for Muscular Dystrophy Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Chicago, Illinois
- Type
- Nonprofit
- Founded
- 1950
- Specialties
- health, healthcare services, ALS research, care, advocacy, muscular dystrophy research, care, advocacy, disability inclusion advocacy, MDA Summer Camp, MDA Care Center Network, MDA Advocacy, Neuromuscular diseases, research, care, advocacy, and community and professional medical education
Locations
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Primary
1016 W Jackson Blvd
1073
Chicago, Illinois 60607, US
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Employees at Muscular Dystrophy Association
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Ankur Ghia
Senior Partner - Global Leader in Digital Transformations and Cloud Strategy
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Autumn Hume
National Account Director, Healthcare Partnerships at Muscular Dystrophy Association
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Marshall ("Mark") Smith, NACD.DC
Senior Executive Leader | Operations | Board Governance | Corporate Finance | Strategic Planning | M&A | IPO | Restructuring | Turnaround
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Pamela Norfleet
Accounts Payable/Account Receivables Manager at Bank Administration Institute
Updates
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Thank you to the entire team KSDK - 5 On Your Side for a fabulous “Show of Strength” this #LaborDayWeekend! What a great way to kick off #MuscularDystrophyAwareness Month by bringing the St. Louis community together! We are grateful for your continued support of our mission for MDA families, and we thank the entire team and MDA staff! You all knocked it out of the park!
That’s a wrap on another successful Show of Strength telethon benefiting the Muscular Dystrophy Association on KSDK - 5 On Your Side. We raised $206, 585 and all of it helps kids right here in the St. Louis area. Our amazing team gives up part of their Labor Day weekend to make this happen every year.
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Muscular Dystrophy Association reposted this
September is National #MuscularDystrophy Awareness Month! Muscular dystrophy is a group of genetic diseases that cause progressive muscle weakness and loss of muscle mass. Learn how #genetherapy may target the cause of disease to slow or stop its progression + check out free, shareable resources on our website. https://lnkd.in/gRiXcMHw #MuscularDystrophyAwarenessMonth Interested in the latest research on #CGTs for MD? Register for our inaugural event with Muscular Dystrophy Association in November! https://lnkd.in/gCxFGapp #ASGCTBreakthroughs24
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For nearly 75 years, #MDA has advocated for people living with #MuscularDystrophy, #ALS, and over 300 related #neuromuscular diseases. As we mark #MuscularDystrophyAwareness Month this September, our President and CEO, Donald S. Wood, PhD, shares an inspiring message as part of our #30DaysOfStrength campaign, celebrating the progress we’ve made and acknowledging the work that lies ahead. September is all about strength, resilience and community. Discover how you can make a difference at MDA.org/30Ways30Days
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🎉 Today, we kick off MDA's 30 Days of Strength! 🎉 For the next 30 days of Muscular Dystrophy Awareness Month, we’ll be sharing 30 Ways for 30 Days of Strength, showcasing the many ways our community can support people living with neuromuscular diseases. From virtual events and personal stories to fundraising challenges and community spotlights, September is all about strength, resilience and community. Learn how you can make a difference at mda.org/30Ways30Days
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MDA Advocacy brought millions of people together to make meaningful impact for #AccessibleAirTravel in the Federal Aviation Administration reauthorization through bipartisan engagement. Together, we have made so much progress for the #neuromuscular and #disability community at large. The U.S. Department of Transportation has invested billions of dollars in accessibility improvements over the last few years, and while Secretary Pete Buttigieg said there’s still a lot of work to be done to make equal access a reality, they’re working to improve accessibility through funding more projects as well as increasing penalties when transportation providers disregard the rules. Your voice makes a difference. Read the story in USA TODAY and continue to advocate with us at MDA.org/Advocacy
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All of us at the Muscular Dystrophy Association are so grateful for our 70 year partnership with the International Association of Fire Fighters (IAFF). This week, we were honored to have President and CEO Donald S. Wood, PhD speak at the #IAFF57 Convention in Boston. We thank IAFF General President Edward A. Kelly, General Secretary-Treasurer Frank V. Líma, and every fire fighter, for their continued commitment to #FillTheBoot in support of accelerating research, advancing care, and empowering families to live longer more independent lives. Over seven decades, more than $700 million has been raised leading to scientific and medical breakthroughs, changing the course of genetic medicine and bringing new treatments to people that no one ever thought possible. Thank you to the MDA Fire Fighter Partnerships team for your incredible work every day. We're looking forward to #FillTheBoot across the country this #LaborDayWeekend! #IAFF #FireFighters! 💙 💛 🔥 Photo L to R: roger lopez, Stacey Breitlow, Val Zegers, Becky Prine, Erin Randall, Donald S. Wood, PhD, Tracy Shield Denton, Sabrina Allen, Elizabeth Nelson, Gina Lansing, Jennie King.
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Mark your calendars before you leave the office for #LaborDayWeekend and tune in to NBC News' KSDK - 5 On Your Side on SUNDAY, SEPTEMBER 1 from 8-10pm CT live from Grants Farm in #StLouis. Anchor Mike Bush will again host the “MDA Show of Strength” with co-hosts Anne Allred, Rene Knott, and Scott Connell and this will be Bush’s 38th year hosting the show! TUNE IN from anywhere here: https://lnkd.in/eNnngV_u More ways to tune in here: https://lnkd.in/gzEwCFgu Donations may be made here: https://lnkd.in/ecfi8eY3 Or you can text ‘DONATE’ TO 314-425-5355.
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Congratulations to CITGO Lemont Refinery on the success of the 28th Annual Muscular Dystrophy Association-CITGO Driving for a Cure Golf Outing! This record-breaking event raised over $904,000 thanks to all of our dedicated sponsors and committee members. Together with our partners at CITGO Petroleum Corporation, we have a community that empowers people through strong connections, creating an environment where overcoming obstacles is not just a hope, but a reality for people living with neuromuscular conditions. We are so grateful to put this funding towards accelerating research and advancing care. Thank you to everyone who participated! #Partnership #Community #Fundraising
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On Tuesday, September 17th at 12noon ET we invite you to join Edgewise Therapeutics' Joanne Donovan, Chief Medical Officer, and John Wing, Executive Director of Medical Affairs for a spotlight on Becker muscular dystrophy; an understanding of disease progression, and a potential novel agent to protect muscle. The latest #Becker #MuscularDystrophy natural history data shows that once functional decline begins, individuals with Becker continue on a trajectory to irreversible muscle loss. Edgewise Therapeutics is investigating a novel approach designed to protect muscle in Becker and continues to support the community through its clinical program and advocacy initiatives. Register Here: https://lnkd.in/gcVzgrGR
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