It's #BMDAwarenessWeek! Dive into our free interactive education on #Becker #Muscular Dystrophy, featuring a panel of experts including Aravindhan Veerapandiyan, MD, Associate Professor of Pediatrics, University of Arkansas for Medical Sciences, and Director of Comprehensive Neuromuscular Program Arkansas Children's; Luca Bello, MD, PhD, Professor of Neurology at University of Padova , Italy, and Jon Bruns- Vignette, a patient who shares his journey living with BMD. Watch now on Medlive - A PlatformQ Health Brand and earn free CME credit while uncovering the latest efficacy findings for emerging treatment options. Register here to tune in: https://lnkd.in/eeswcXuX
Muscular Dystrophy Association
Non-profit Organizations
Chicago, Illinois 24,427 followers
Faster breakthroughs, Stronger futures.
About us
If you’re seeking to start or advance your career with a purpose, Muscular Dystrophy Association is an employer that will enable you to thrive. The Muscular Dystrophy Association is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. Our mission is to empower the people we serve to live longer, more independent lives. #MDA #MuscularDystrophy #ALS #neuromuscuar. Apply now.
- Website
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http://www.mda.org
External link for Muscular Dystrophy Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Chicago, Illinois
- Type
- Nonprofit
- Founded
- 1950
- Specialties
- health, healthcare services, ALS research, care, advocacy, muscular dystrophy research, care, advocacy, disability inclusion advocacy, MDA Summer Camp, MDA Care Center Network, MDA Advocacy, Neuromuscular diseases, research, care, advocacy, and community and professional medical education
Locations
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Primary
1016 W Jackson Blvd
1073
Chicago, Illinois 60607, US
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Employees at Muscular Dystrophy Association
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Ankur Ghia
Senior Partner - Global Leader in Digital Transformations and Cloud Strategy
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Autumn Hume
National Account Director, Healthcare Partnerships at Muscular Dystrophy Association
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Marshall ("Mark") Smith, NACD.DC
Senior Executive Leader | Operations | Board Governance | Corporate Finance | Strategic Planning | M&A | IPO | Restructuring | Turnaround
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Pamela Norfleet
Accounts Payable/Account Receivables Manager at Bank Administration Institute
Updates
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Madison Lawson, a proud advocate for the disability and neuromuscular disease community, recounts her personal experience as a first-time voter in her Newsweek article. As we approach the upcoming elections, her story reminds us of the importance of knowing our rights and ensuring every voice is heard. Visit MDA.org/Vote to join MDA’s #AccessTheVote campaign and plan your vote today! #MDA #Advocacy #DisabilityInclusion #Vote
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Muscular Dystrophy Association reposted this
On March 16th, 2025, the Muscular Dystrophy Association (MDA) will host its yearly Clinical and Scientific Conference in Dallas, Texas. The annual 4-day event brings together scientific and medical professionals, patients, and advocacy groups to explore the latest advances in the field of neuromuscular disorders. The conference will feature presentations on all different types of neuromuscular diseases such as amyotrophic lateral sclerosis (ALS), Duchenne muscular dystrophy, spinal muscular atrophy, limb-girdle muscular dystrophy, myasthenia gravis, Charcot-Marie-Tooth disease, and much more. In this upcoming meeting, session tracks will feature topics including strategies for regenerating muscle and nerve tissue, new insights into disease mechanisms, clinical experience in gene therapy, access and reimbursement, and clinical trial readouts. At the conference held last year, 1492 in-person and 567 virtual attended from over 30 countries, which made it the biggest global gathering of the neuromuscular disease community. For this year, those who are registered with MDA have the opportunity to partake in the virtual meeting at no-cost or may register in-person at the patient/caregiver rate until allotted spots are filled. To register and for more information, head to www.mdaconference.org Prior to the event, Sharon Hesterlee, PhD, chief research officer of the MDA, sat down with NeurologyLive® in an interview to discuss the primary focus areas of the upcoming conference, particularly in muscle regeneration and ALS research. She also spoke about how the conference addresses the challenges of workforce diversity and training in neuromuscular specialties. Hesterlee also talked about the roles of advocacy groups and allied health professionals in shaping the discussions at the upcoming meeting.
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MENTORS NEEDED: Join Muscular Dystrophy Association’s Mentorship Program! This five-week virtual program connects young people living with a neuromuscular disease to mentors from a variety of career fields such as business, education, law, science, technology, and more. As a mentor, you will lead participants through a real-world project related to your field while also sharing your higher education and career experiences. Mentors must be at least 22 years of age and established in a career. Experience working with youth with a neuromuscular disease is preferred. DEADELIN: Apply by October 18 https://lnkd.in/eYQBs9P9 Special thanks to our program supporter General Motors.
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All of us at Muscular Dystrophy Association are proud to share the news that our adaptive lifestyle platform -- Quest Media -- has been named a finalist in Ragan’s PR Daily Awards in the Print Publication category! "Being recognized as a finalist for Ragan’s PR Daily Awards is a tremendous honor for MDA’s Quest Media. It reflects the power of storytelling in amplifying the voices of people in the neuromuscular disease community. At Muscular Dystrophy Association, we are committed to creating platforms that inspire, inform, and advocate, and this recognition underscores the meaningful impact we strive to achieve every day," said Mindy Henderson, Vice President of Disability Outreach and Empowerment, and Editor-In-Chief of Quest Media, MDA. SUBSCRIBE for free here: https://lnkd.in/eFNHRRAj Ragan Communications and PR Daily
Muscular Dystrophy Association’s Quest Media Named as a Finalist in Ragan’s PR Daily Awards 2024 | Muscular Dystrophy Association
mda.org
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NeurologyLive recognized Dr. Forum Kamdar as Clinician of the Month for her impactful work as a heart failure physician-scientist focused on neuromuscular diseases. Earlier today, Dr. Kamdar joined our live Q&A in honor of #LGMDawarenessDay. You can still explore valuable insights on research, cardiac care, exercise, and at-home physical therapy for #LGMD by accessing the on-demand recording in 3 weeks. Learn more: https://lnkd.in/e5fDgVcS
🌟In honor of #LGMDAwarenessDay, held September 30, 2024, the Muscular Dystrophy Association will host a special live Q&A on the day of the awareness event with their LGMD virtual learning series presenters. Attendees will have the opportunity to ask questions live regarding updates in research and treatment, cardiac care, and exercise/at-home physical therapy for LGMD. The Q&A panelists will include the following experts: Peter Kang, MD; Forum Kamdar, MD, PhD, FACC, FHFSA; Molly Stark, PT, DPT. The event is at no cost for members of the MDA community or healthcare providers although registration is required. If there are those who are interested in the event but not able to attend, an on-demand recording will be available approximately 3 weeks after the live program but registration online will still be needed to ensure an email with the link is received. To register for the online event hosted by the MDA on September 30, 2024, held at 4pm ET, click the link here: https://lnkd.in/eVzp7EGT One of the Q&A panelists, Kamdar, an advanced heart failure physician-scientist at the University of Minnesota, recently discussed how interdisciplinary collaboration helps to improve care for patients with neuromuscular cardiomyopathies in an interview with NeurologyLive®. She also shared innovative techniques in development to study the heart failure mechanisms in muscular dystrophies. Moreover, Kamdar spoke about how she manages the balance between patient care, research, and mentoring in her demanding role. 🌟 Read more about Kamdar in our Clinician of the Month spotlight on our site now!
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Hulu's “Patrice: The Movie” powerfully illustrates the impact of outdated SSI laws on people with disabilities, affecting their dreams, relationships, and financial stability. This isn’t just a policy issue; it’s about ensuring dignity and expanding opportunities. At the Muscular Dystrophy Association, we're advocating for change through the SSI Savings Penalty Elimination Act to raise the asset limit to $10,000, ensuring individuals can live without facing financial penalties. It's time we rethink these laws to reflect an inclusive society. Learn more in this Forbes story by Gus Alexiou with insights from Paul Melmeyer. TAKE ACTION: Urge your Members of Congress to support the SSI Penalty Elimination Act today (it just takes a few clicks!) here: https://lnkd.in/eXBz76fs #MDA #Advocacy #SSI
ABC’s ‘Patrice: The Movie’ - A Rallying Cry For Marriage Equality For The Disabled
social-www.forbes.com
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Have you heard? The MDA Engage Symposium is coming to Atlanta on October 5! Join us in person for a day of learning and connection. Hear from #neuromuscular disease clinicians from Children's Healthcare of Atlanta and Emory Healthcare about topics including exercise, clinical trials, genetic testing, mental wellness, #ALS, #Duchenne (#DMD) and #Becker #MuscularDystrophy, and #SpinalMuscularAtrophy (#SMA). Network with others in the community and learn about resources. Lunch will be served. REGISTRATION is FREE here: https://lnkd.in/gYnZiwUt Special thanks to our symposium supporters Biogen, Edgewise Therapeutics, Mitsubishi Tanabe Pharma America, Inc., and Sarepta Therapeutics.
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October is National Disability Employment Awareness Month (NDEAM) and Global Diversity Awareness Month. To mark the occasion, Muscular Dystrophy Association's Quest Media is proudly hosting a live panel discussion on Wednesday, October 9, at 1 pm ET to discuss the benefits of inclusive work cultures for both jobseekers and employers. Hosted by Mindy Henderson, Vice President of Disability Outreach and Empowerment at MDA, esteemed panelists include Donna Bungard, CPWA, Senior Marketing Accessibility Program Manager at Indeed for Business; Nicholas Iadevio, Jr., Vice President of Diversity, Equity, and Inclusion at L'Oréal Groupe; Stephane Leblois, MA, Chief Community and Programmes Officer at The Valuable 500; and Theo Braddy, Executive Director of National Council on Independent Living. Register here: https://lnkd.in/eeyB4SsD
Muscular Dystrophy Association Amplifies National Disability Employment Awareness Month with Quest Media Panel of Industry Leaders on Wednesday, October 9 at 1 p.m. ET | Muscular Dystrophy Association
mda.org
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Congratulations Amy Shinneman and Jamie Shinneman for completing the #BerlinMarathon! What an achievement. Way to go #TeamHumblyCourageous 💙💛🎉
Berlin Marathon 50th Anniversary complete in 3:24:11! What a beautiful day and weather for it and the other 58,000+ runners this year. Thanks so much to all who supported us along the way! #TogetherWeFight 🖤💪❤️👊💛 Amy Shinneman Muscular Dystrophy Association www.humblycourageous.com