Migraine World Summit

Have you had success with a neuromodulation device for migraine? 🧠 Migraine treatment is highly personalised. What works for one person, won't necessarily work for someone else. We would love to hear your experience in the comments below 🧡 #MigraineWorldSummit #Migraines #MigraineAwareness #ChronicPain

We are excited to announce the launch of the Migraine World Summit in Spanish this September! Cumbre Mundial de la Migraña For the first time, Spanish speakers will have access to the latest expert insights and research on migraine and headache disorders, presented entirely in Spanish. The 2024 interviews have been meticulously translated, with both subtitles and audio available. This means you can now listen to world-leading experts in Spanish and follow along with Spanish closed captions. If you, or someone you know, would like to attend, we warmly invite you to register at https://lnkd.in/gxeZubiE Please note: Registration at the https://lnkd.in/gnsedQDJ website is required to participate in the Spanish event. This platform, along with all emails, interviews, and information, is fully in Spanish and operates separately from the English website. The Spanish Migraine World Summit goes live on September 13, 2024, at 9:00 am Eastern Time (ET). The event will run for 8 days, featuring 4 expert speakers each day until Friday, September 20th. We warmly encourage you to forward this email to your Spanish-speaking friends and family who live with migraine or headache disorders. Event Details: What: Spanish Migraine World Summit for Spanish speakers When: Friday, September 13 at 9:00 am ET Where: https://lnkd.in/gxeZubiE (Registration at this website is required to attend) Why: To provide almost 500 million Spanish speakers around the world with access to leading headache experts. Additionally, the event director, Azul De Pol, will be joined by a Spanish-speaking neurologist and a patient advocate as your hosts in a Pre-Summit welcome and orientation video. This introduction will help guide you through what to expect during the Summit. Don’t miss this unique opportunity! Whether you’re living with migraine or know someone who is, register today and share this event with your Spanish-speaking friends and family. Together, we can help bring crucial migraine education and support to millions of people in the Spanish-speaking community. Register now at https://lnkd.in/gxeZubiE and be part of this groundbreaking event!

Do you experience neck pain during or in between your migraine attacks? What helps? What hurts? Neck pain is an extremely common symptom of migraine. In fact, it is more common than nausea. It can occur during any phase of our attack- prodrome, aura, headache/ attack, postdrome, or interictal (between attacks.) Most experts agree that neck pain is most commonly a symptom of a migraine attack, rather than a trigger. However, misdiagnosis is very common and many of us will spend so much time and money trying to fix the problem originating in our necks when it is really a problem originating in our brains. Dr. Sandhya Kumar helps explain why neck pain occurs. “It makes sense that neck pain would be involved in migraine, because of the disease process in the body. The trigeminal nerve complex is involved in most [migraine attacks], and the nucleus (central part) of the trigeminal nerve is actually located high in the back of the neck, in what we call the c1, c2, and c3 vertebrae, the highest vertebrae in the spine. The trigeminal nerve is responsible for sensations in the face and for functions like chewing and biting. In migraine, those areas get sensitized; the muscles in the neck can become tense and tight.” Dr. David Dodick explains, “I think it's important for patients to understand that where they experience pain may not reflect pathology underneath. The brain is what we call a visceral organ, it refers pain. So most people will have pain in this area or in the back of the head. It refers pain commonly, 80% to 90% of the time, to the neck. So oftentimes patients will [unnecessarily] get neck x-rays.” Treating the migraine attack will help with the neck pain. And although the pain isn’t caused by the neck, methods such as occipital nerve blocks, heat, ice, physical therapy, massage, and other soothing methods may help relieve some of the pain. What works best for you? #MigraineWorldSummit #Migraines #MigraineAwareness #ChronicPain

Have supplements helped you? Robert Bonakdar, MD, a Pain & Headache Specialist, discussed "Supplements & Foods That Ease Migraine" in his 2024 Migraine World Summit interview to help try to bring some clarity to this topic. As always, consult your healthcare team before making any changes. While not perfect, he suggested using third-party organizations like the USP (Dietary Supplement Verification Program) and NSF (National Sanitation Foundation) to see which supplements may be held to higher standards. "When we're dealing with folks who are dealing with chronic pain, migraine, there's typically a burden on the body to help deal with that pain, and usually it creates inflammation — oxidative stress — where it increases needs for antioxidants. So, even in a best-case scenario, a wonderful diet, there are sometimes additional needs to really deal with the burden of that migraine." “For every gram of increase in fiber, there's a similar 1% decrease in migraine burden. So you do get benefit from every incremental change. [Along with fiber, Vitamin D can help] For every 5-point increase in folks who are deficient [in Vitamin D], there's about a 22% reduction in migraine.” This is a quick summary of loose guidelines from Dr. Bonakdar’s interview needs to be discussed with your doctor. He tends to be more cautious with butterbur, feverfew, CoQ10. He feels safer with ginger, curcumin, & Boswellia. Magnesium- 250-500 mg. Riboflavin/ B2, 30 mg. Melatonin 3mg. CoQ10 100-150mg. Vitamin D. Omega 3's. Ginger. Fiber. Diamine oxidase (DAO). Have any helped you? #MigraineWorldSummit #Migraines #MigraineAwareness #ChronicPain

What are your worst weather triggers and what helps? Weather drastically affects so many of us with migraine. Dr. Martin says 30-50% of those of us with migraine report weather triggers, but they likely affect many more of us. What is fascinating is that most weather patterns which help some of us as migraine protectors hurt others of us as migraine triggers. The Mayo Clinic says, “Weather changes may cause imbalances in brain chemicals, including serotonin, which can prompt [an attack.]” Rainy days come with many potential triggers. Dr. Martin explains, “Some people could be triggered by changes in barometric pressure- whether it falls or rises or both. [For some] if you are triggered by falling barometric pressure, then rising pressure actually is preventative and the opposite is true [...] Rain could theoretically increase mold counts & if you're susceptible to that, then that might be a trigger, or rain could actually wash out different environmental things in the air like air pollutants. So if you're sensitive to air pollutants and it rains, maybe rain might be a good thing for you. [...] If there was lightning within 25 miles of the home residence of that particular individual, there was about a 25 to 30% increased risk of new-onset migraine.” Hot, sunny days bring risk of dehydration, photophobia, humidity, & for dysautonomia-related temperature regulation issues. Wildfire smoke exposure can be a trigger. Transitional seasons (autumn and spring) can be rough for those sensitive to allergens, dust, & inconsistent weather patterns. #MigraineWorldSummit #Migraines #MigraineAwareness #ChronicPain

Join Clusterbusters for a long weekend of support, education, and family in Rosemont, IL! The 19th Annual Clusterbusters Conference offers patients, caregivers, and HCPs incredible opportunities to meet clusterheads and learn about managing this challenging condition. Our speakers include patients, healthcare providers, caregivers, and subject-matter experts in important concepts such as current treatment knowledge, experiences living with cluster headache, advocacy issues, and ongoing research. In support of improving patient care, this activity has been planned and implemented by Boston University Chobanian & Avedisian School of Medicine and Clusterbusters. Boston University Chobanian & Avedisian School of Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. This activity has been approved for AMA PRA Category 1 Credit(s)™.  Course Director: Shuhan Zhu, MD For more info including registration, agenda, and learning objectives: https://lnkd.in/g9e842cE

Do you have daily head pain alongside frequent migraine attacks? Dr Courtney Seebadri-White helps us to unravel new daily persistent headache from chronic migraine in her interview on different headache types. You can catch up on the full interview now at the link in our bio 🧡 What is your diagnosis? #MigraineWorldSummit #Migraines #MigraineAwareness #ChronicPain

Looking to add experience to your resume while helping others in the migraine community? Apply now for our volunteer team! We are looking for fresh, diverse voices to help elevate our team into the best version of itself for our TENTH annual Migraine World Summit. Our recruitment for the following roles is launching now: - Content editing - Graphic design - Video editing - Video review - Roles for our Spanish version of the Migraine World Summit- Cumbre Mundial de la Migraña (cumbremundialmigrana.com) Other teams will start recruitment within the next few weeks, so don't miss out. https://lnkd.in/gzysDY2F

Have you ever experienced a Primary Stabbing Headache? This headache disorder is comprised of short, extremely painful attacks. They tend to be a brief (a few minutes or less) stabbing pain, and they tend not to have any other symptoms besides head pain. Atypically, people may also experience photophobia (light sensitivity) and/ or nausea. One third of patients experience the pain in the same location for every ice pick headache attack, but the pain can occur in any location around the head. Unfortunately, there are no FDA-approved preventive treatments, but some people may have success with melatonin, gabapentin, or indomethacin. Discuss these options with your healthcare provider. Have you experienced an ice pick headache attack? What helps? #MigraineWorldSummit #IcePickHeadache #Migraines #MigraineAwareness #ChronicPain

Do you have jaw pain with migraine? Pain associated with migraine is a referred pain, meaning pain is felt in a different part of your body than where it originated. Migraine pain occurs when the trigeminal nerve is triggered by excited brain cells releasing chemicals causing swelling and irritation of blood vessels on the surface of the brain. This sends pain signals to the brainstem, the area that processes pain information. This pain is typically felt around the eye, temple area, the face, sinus, jaw or temporomandibular joint (TMJ), shoulders, teeth, or neck. “Migraine is a problem of pain processing, and there are these pain pathways deep within the brain that are responsible for migraine, and they have inputs from the neck." Here are a few key points from Dr. Rashmi Halker Singh's 2024 Migraine World Summit interview, "Migraine, TMD & Neck Pain." Interdisciplinary collaboration can be necessary and helpful, involving pain physicians, physical medicine and rehabilitation (PM&R) specialists, or TMJ (temporomandibular joint) specialists, along with a headache specialist. Consider oral devices like a night guard or splint for jaw pain and TMJ problems. Try relaxation techniques for both TMD-related issues and migraine. Consider preventive medications such as amitriptyline, venlafaxine, gabapentin, duloxetine, onabotulinumtoxinA, or nerve blocks for migraine-related neck pain. Explore nonpharmacological approaches like physical therapy, relaxation therapy, and CBT for relief. As always, discuss any changes in your treatment plan with your doctors. What has helped you? #MigraineWorldSummit #Migraines #MigraineAwareness #ChronicPain