Are you ready to give trial participants what they really want? Patients expect to receive data and results in clinical trials as they do in other health care settings, but their expectations are often unmet. If this doesn’t change, the clinical trial experience will increasingly frustrate and disappoint participants. We’re here to help! Download our latest article to help you think through critical considerations as a sponsor moving forward in sharing research data and results to participants, a practice that fosters trust and transparency. Here’s what you’ll find in the article: - 4 Ethical Benefits of Returning Data to Patients - 4 Key Areas to Ensure Responsible Data Sharing with Patients - 4 Strategies to Align Implementation with Ethical Principles Leading sponsors have been collaborating on guidance documents, emerging best practices, and responsible methods of implementation. Our team of experts has been at the table since the beginning, focusing on how we can better meet the needs of participants before, during, and after clinical trials. There is so much you can do without impacting the integrity of the trial. No longer is this unchartered territory. In fact, when you move forward with responsible data sharing, you become a sponsor of choice. Download the full article at https://lnkd.in/emFhnipw. Follow Legacy Health Strategies on LinkedIn to stay tuned for the 3rd part of our Data Return Series, created in collaboration with ProofPilot ’s Chief Strategy Officer Joseph K. #ClinicalTrials #ResearchEthics #PatientEngagement #Transparency #Innovation #Gratitude #MovingForward #DrugDevelopment #PatientCentricity
Legacy Health Strategies
Business Consulting and Services
San Diego, CA 998 followers
We serve as the bridge between what patients want and industry needs.
About us
Legacy Health Strategies provides strategic consulting services and innovative offerings to biopharma and med tech companies to help you bring critically important new medical products to patients who need them, faster. Among the insights that consistently emerge in our work is that…patients want to help, and companies want to engage patients. But too often organizations don’t know when, why, and how it makes the most sense for them to do so. We can help! Our deep subject-matter-expertise serves as a bridge between what patients want and industry needs.
- Website
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http://legacyhealthstrategies.com/
External link for Legacy Health Strategies
- Industry
- Business Consulting and Services
- Company size
- 2-10 employees
- Headquarters
- San Diego, CA
- Type
- Privately Held
- Founded
- 2009
- Specialties
- Design Thinking, Health Literacy, Trial Ready Communities, Strategic Consulting, Patient Engagement Plans, Patient Engagement Strategies, Pharma R&D Patient Engagement, Community-Engaged Research, Equity-Centered Patient Engagement, Recruitment & Retention, and Digital Patient Engagement Platform
Locations
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Primary
San Diego, CA 92130, US
Employees at Legacy Health Strategies
Updates
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Will you be attending next week's Healthcare Advocate Summit in Las Vegas? If so, join Legacy's own Lori Hall on September 5 at 10am PT as she joins PAN Foundation's Amy Niles and patient advocate Phyllis Bass for the session: "The role of patient education: Health literacy and equity in the context of Medicare Part D reforms." Hope to see you there! #ForAdvocates
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Join us in celebrating Lisa’s work anniversary! Lisa has now been with Legacy Health Strategies for two years as of this month. Throughout this time, she’s repeatedly proven to be an incredible asset for our team, and we’ve been overjoyed to have her. Congratulations, Lisa, and thank you for all that you do! #Celebrate #Congratulations #WorkAnniversary #Appreciation #VPofTechnology #Legacy #TeamMember #ThankYou
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We were grateful to DPHARM for this opportunity to discuss how we use our digital communication platform to connect patients and sponsors, making clinical research more inclusive and accessible, especially for communities of color. We also got to discuss overcoming the challenges in turning patient insights into action, the benefits of personalized communication, and the positive outcomes of community-focused strategies. #PatientEngagement #CommunityEngagement #Editorial #Interview
Communication between communities and sponsors is one of the most effective ways to create meaningful impacts on patients' lives. Explore how Legacy Health Strategies‘s new initiative, My Health, My Legacy, is fueling generations of health empowerment in communities of color. Read the article here: https://lnkd.in/eMThtty9 #Healthcare #HealthEquity #ClinicalTrials
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Legacy Health Strategies reposted this
I'm so impressed! This is Ireland’s third National Strategy for Travellers and Roma – 2 communities that experience much higher rates of economic disadvantage and social exclusion than exists for other disadvantaged communities. Low health literacy is among their many barriers. #HealthLiteracy #Empathy The new strategy addresses key issues and themes that emerged during discussions directly with Traveller and Roma community organizations, state agencies and departments, and through a comprehensive consultation process held with each community at the local level. #CommunityEngagement #DesignThinking The focus of future delivery will be on equal access to education, employment, health and housing, effectively fighting racism and discrimination, and promoting equal participation. #HealthEquity #HumanRights
Empowering leaders on health literacy by design; Executive Advisor and Founder of Global Health Literacy Academy, President of International Health Literacy Association. Let's connect!
Ireland shows how health literacy is linked to human rights and underserved populations by making health literacy a political priority to bridge inequity for the Roma and Traveller communities. Check out their new National Traveller and Roma Inclusion Strategy 2024-2028: https://lnkd.in/gY35A8Cy #healthliteracy #Roma #Travellers #InclusiveHealth #HumanRights #healthpolicy
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Don't take our word for it. Engage with patients directly and ask what's important to them -- just like Joseph K. does so well here. And thank you for sharing your information needs and preferences as a patient, Mackenzie Abramson, MPH. Your voice matters!
🤷🏻♀️When asked to choose between a trial that returns results vs. one that doesn't, Mackenzie Abramson, MPH, rare disease patient and advocate was crystal clear in what she wanted - HER DATA. Patients take on significant risks and burdens, giving their time and energy to advance scientific knowledge and public good. 🎬 Watch this video to learn what patients expect from pharma and what a perfect end-of-study experience means for your patients. Returning results to patients seems like a no-brainer, so why aren't more Sponsors doing it? 😕 Check out this article by Chief Strategy Officer Joseph K. and Legacy Health Strategies to discover the common myths that continue to scare folks away from data return 👉🏽 https://hubs.ly/Q02HTKFt0 #clinicaltrials #clinicalresearch #patientexperience #datareturn #returnofresults
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Legacy Health Strategies reposted this
Are you ready to give trial participants what they really want? Patients expect to receive data and results in clinical trials as they do in other health care settings, but their expectations are often unmet. If this doesn’t change, the clinical trial experience will increasingly frustrate and disappoint participants. We’re here to help! Download our latest article to help you think through critical considerations as a sponsor moving forward in sharing research data and results to participants, a practice that fosters trust and transparency. Here’s what you’ll find in the article: - 4 Ethical Benefits of Returning Data to Patients - 4 Key Areas to Ensure Responsible Data Sharing with Patients - 4 Strategies to Align Implementation with Ethical Principles Leading sponsors have been collaborating on guidance documents, emerging best practices, and responsible methods of implementation. Our team of experts has been at the table since the beginning, focusing on how we can better meet the needs of participants before, during, and after clinical trials. There is so much you can do without impacting the integrity of the trial. No longer is this unchartered territory. In fact, when you move forward with responsible data sharing, you become a sponsor of choice. Download the full article at https://lnkd.in/emFhnipw. Follow Legacy Health Strategies on LinkedIn to stay tuned for the 3rd part of our Data Return Series, created in collaboration with ProofPilot ’s Chief Strategy Officer Joseph K. #ClinicalTrials #ResearchEthics #PatientEngagement #Transparency #Innovation #Gratitude #MovingForward #DrugDevelopment #PatientCentricity
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Legacy Health Strategies reposted this
I'm thrilled to see health literacy at the forefront of discussions on health equity and patient empowerment. This comprehensive report highlights the critical role health literacy plays in building resilient, empowered communities and individuals. The stark gap between health literacy policies and real-world outcomes underscores the work still to be done. But I'm encouraged by findings showing how access to reliable health information correlates with greater patient engagement. Shout out to Kristine Sørensen 🍀, founder of the Global Health Literacy Academy, for weighing in. As we navigate the digital age, it's crucial we address the digital divide, while also equipping people, especially younger generations, to critically evaluate online health information. By working together across sectors to improve access, understanding, and application of health information, we can create a more health-literate and empowered society. Let's keep pushing forward to make health literacy a cornerstone of health equity and patient empowerment. Our communities deserve nothing less. #healthliteracy #healthequity #healthempowerment
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Together, we are bringing this important capability to our clients. So great to be partnering with people with a long history of working to make data sharing with participants a reality!
🔍 Curious about the challenges of returning patient data in clinical research? Introducing our Data Return Series, created by our Chief Strategy Officer Joseph K., in collaboration with Legacy Health Strategies 🤝 In the first installment, we mythbust past misconceptions and detail operational barriers that might make it difficult. But let's start by understanding WHY delivering individual data is so important - enjoy a fun comic that makes it clear why patients are keen on getting their data back! 📄 Click the link in the comments to read more👇and stay tuned for the next installment! 📚 #patientdatareturn #clinicalstudy #clinicaltrial #legacyhealthstrategies #patientdata
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Legacy Health Strategies reposted this
Are you ready to give trial participants what they really want? Patients expect to receive data and results in clinical trials as they do in other health care settings, but their expectations are often unmet. If this doesn’t change, the clinical trial experience will increasingly frustrate and disappoint participants. We’re here to help! Download our latest article to help you think through critical considerations as a sponsor moving forward in sharing research data and results to participants, a practice that fosters trust and transparency. Here’s what you’ll find in the article: - 4 Ethical Benefits of Returning Data to Patients - 4 Key Areas to Ensure Responsible Data Sharing with Patients - 4 Strategies to Align Implementation with Ethical Principles Leading sponsors have been collaborating on guidance documents, emerging best practices, and responsible methods of implementation. Our team of experts has been at the table since the beginning, focusing on how we can better meet the needs of participants before, during, and after clinical trials. There is so much you can do without impacting the integrity of the trial. No longer is this unchartered territory. In fact, when you move forward with responsible data sharing, you become a sponsor of choice. Download the full article at https://lnkd.in/emFhnipw. Follow Legacy Health Strategies on LinkedIn to stay tuned for the 3rd part of our Data Return Series, created in collaboration with ProofPilot ’s Chief Strategy Officer Joseph K. #ClinicalTrials #ResearchEthics #PatientEngagement #Transparency #Innovation #Gratitude #MovingForward #DrugDevelopment #PatientCentricity