Intractable Charity

📚🧙♂ Exciting news! 🧚♀✨ Introducing "Walter the Wizard" by Alison Littlefair, a captivating children's book series that will transport young readers to a world of magic and adventure! 📖✨ 🌟🌱 In "Walter the Wizard and the Magic Seed," Alison Littlefair draws inspiration from her connection with Karen and Murray, and other brave advocates campaigning for funded access to their medication through the End Our Pain campaign group for patient-funded access in the U.K. 🌍🙌 🌿🔮 With this enchanting tale, Alison aims to remove the stigma surrounding cannabis medicines and empower children to embrace the wonders of the world around them. 🌈📚 Discover the magic and join Walter on his extraordinary journey! ✨🧙♂ 🐉🌟 But that's not all! 🌟🐉 Alison Littlefair's heartwarming book, "Walter the Wizard and the Worry Dragon," shines a light on childhood stress and anxiety, offering young readers a comforting companion on their own adventures. 📚💫 🔗 Visit our website to find links to these incredible children's books and embark on a magical reading experience with Walter the Wizard! ✨🔗https://lnkd.in/edtPWths #WalterTheWizard #ChildrensBooks #MagicAndAdventure

🔮 Did you know that today is Purple Day? It's a special day dedicated to raising awareness about epilepsy and supporting those affected by it. In the UK alone, 1 in every 100 people, that's 600,000 individuals, have epilepsy. Shockingly, 30% of them, around 187,000 people, suffer from treatment-resistant epilepsy. 💜 Join us in spreading awareness and making a difference this Purple Day! Discover how medicinal cannabis is providing relief and hope to people like Musa. Check out Musa's inspiring story and learn more about epilepsy awareness at https://lnkd.in/db7DZa_D. 💪 Together, we can make a difference and support those living with epilepsy. Let's raise our voices, share this message, and show our support for Purple Day! 💜 #PurpleDay #EpilepsyAwareness #MedicinalCannabis #Support

💜 Today is Purple Day, a special day dedicated to raising funds for those living with intractable epilepsy. Read more about Oliver's story.💜https://lnkd.in/gR-zX23s Join us in making a difference by supporting our fundraising campaign. https://lnkd.in/gGK34CSu Your generous donations can help provide crucial resources, support services, and research initiatives for individuals and families affected by intractable epilepsy. 💜 By donating on Purple Day, you are directly contributing to improving the lives of those living with this challenging condition. Your support can help fund vital medical treatments, access to specialized care, and advocacy efforts. 💜 Every contribution, no matter how big or small, can have a significant impact. Together, we can make a difference and provide hope to those who need it most. Let's come together as a community and show our support for individuals living with intractable epilepsy. 💜 To make a donation, visit our website https://lnkd.in/dxBxqhn3 or click the link in our bio. Your generosity will help us continue our mission of raising awareness, providing support, and advocating for better treatments. 💜 Share this post and spread the word! Together, we can create a brighter future for those affected by intractable epilepsy. Thank you for your support! 💜 #PurpleDay #EpilepsyFundraising #SupportAndEmpowerment #MakeADifference #EndEpilepsy

💜 Today is Purple Day, a day dedicated to raising awareness about intractable epilepsy and supporting those who live with this condition. You can read more about Mitchell's epilepsy journey by clicking on the link. 💜 https://lnkd.in/dZnBUfhQ 💜 Join us in spreading awareness and understanding about epilepsy by wearing purple and sharing your support on social media. Let's make sure everyone knows that epilepsy is not just a physical condition but also a daily challenge that affects millions of lives. 💜 Did you know that intractable epilepsy is a form of epilepsy that is resistant to treatment? People living with intractable epilepsy often face persistent seizures that significantly impact their quality of life. It's crucial that we come together to support and empower them. 💜 Help us make a difference by sharing your personal stories, experiences, or messages of support on social media using the hashtag #PurpleDayForEpilepsy. Let's create a sense of community and understanding for those affected by intractable epilepsy. 💜 Together, we can raise awareness, reduce stigma, and support research for better treatments. Let's show our solidarity and make a positive impact on the lives of those living with intractable epilepsy. 💜 #PurpleDay2024 #EpilepsyAwareness #IntractableEpilepsy #SupportAndEmpowerment #EndEpilepsy

The aftermath of having a seizure is sometimes described as experiencing post-workout pains and can cause sufferers to feel muscle aches. So, to replicate that feeling, we are challenging you to participate in our “100 miles to stop 100 seizures” campaign. Take on the challenge of completing 100 miles on foot or by cycling over a two months period. You can participate individually or as a team by recording your progress through an app. Set up a fundraising page and encourage friends, family, and colleagues to sponsor your efforts. Together, we can stop 100 seizures and create a brighter future for children with intractable epilepsy. #PurpleDay2024 #epilepsy #intractableepilepsy #100milestostop100seizures #medicinalcannabis #TeamIntractable https://lnkd.in/dxBxqhn3

During #BrainAwarenessWeek, we are highlighting our commitment to enhancing the lives of people with intractable #epilepsy and their supporters in the UK. This involves funding prescribed medicinal #cannabis and celebrating the support we've offered over the past year. Your ongoing support is crucial. #OneNeuroVoice

🌸💜 Happy Mother's Day! 💜🌸 Today, I want to take a moment to celebrate the incredible strength and love of all the mothers out there who care for children with intractable epilepsy. These amazing mothers go above and beyond every day, nurturing and supporting their children, some with severe disabilities. On this special day, let's recognize these mothers as the true superheroes they are, facing challenges with unwavering strength and resilience. To all the mums who tirelessly advocate for their children, who provide comfort in times of uncertainty, and who work tirelessly to ensure their child's well-being, I salute you. Your selflessness and determination inspire us all. Today, let us honour these extraordinary mothers and remind them that their love and care make a world of difference in their child's life. 💕🌷 #MothersDay #IntractableEpilepsyCharity #Supermums #UnconditionalLove

🌹 On this special Valentine's Day, we want to shed light on the connection between St. Valentine and epilepsy. Join us in raising awareness for intractable epilepsy and supporting those affected by this condition. Together, we can make a difference and spread love to all! 💜 #ValentinesDay #EpilepsyAwareness #SpreadLove https://lnkd.in/ehJakX-V

🌍 Today is International Epilepsy Day! Join us in recognizing the strength and resilience of individuals living with intractable epilepsy. Let's raise awareness, fight the stigma, and promote a better understanding of this condition. Together, we can make a difference and ensure that everyone affected by epilepsy receives the support they deserve. #InternationalEpilepsyDay #IntractableEpilepsyCharity https://lnkd.in/ehJakX-V

“Having at least one tonic-clonic seizure in the last year and not sharing a bedroom with someone gives a 67-fold increased risk of SUDEP compared with not having a seizure and sharing a bedroom.” Hear from Phil Tittensor, Consultant Nurse for The Royal Wolverhampton NHS Trust about SUDEP and general risks. #sudepaction #epilepsyawareness