HD-CAB

🛫 We are heading to EHDN & Enroll-HD 2024 and we cannot wait to see you there! 📃 Besides the International Huntington Association, European Huntington Association and Huntington's Disease Youth Organization (HDYO)'s booths, we will also have a poster, we are hosting two advisory boards and we will have a round table discussion that you can still register for. 👋 See you there! ✍ Register for the round table ➡ https://bit.ly/462wSPf 🔗 Learn more about HD-CAB ➡ https://hd-cab.org/

🙌 HD-CAB - One Global Voice 🤝 Check what Jenna (Huntington's Disease Youth Organization (HDYO), Astri (European Huntington Association) and Svein (International Huntington Association) have to say about the importance of this partnership. 🌐 If you want to read more about HD-CAB, visit our website here ➡ https://hd-cab.org/

🙌 Research is important. 🔬 After joining HD-CAB, some advocates answered a survey and this were the results about CAB's impact on their perceptions and knowledge of research. 🌐 If you want to learn more about HD-CAB, visit www.hd-cab.org

⏱ There is only one month left until the International Round Table Discussion happening in Strasbourg, France! ✏ If you haven't registered yet, make sure to do that here: https://bit.ly/462wSPf 📆 The Round Table is on the 15th of September from 8 a.m. to 12 p.m. in the Hilton, Strasbourg. 📩 If you still have question, email [email protected] or check our website for details at https://lnkd.in/gesDbmJQ

🌎 HD-CAB has 40 members, all around the globe. 🙌 Today, we want you to meet Dina, a very active person in the HD Community, with a vast Curriculum of activities. Dina is also going to be present in the International Community Round Table Conference in September. 🌐 Get to know all the other members and learn more about HD-CAB in our website, at www.hd-cab.org 🔗 You can register for the Round Table here: bit.ly/462wSPf 🔗 And you can read more here: https://lnkd.in/gesDbmJQ

⏰ Don't forget to register for the Round Table Conference that is coming up in September! ✏️ Learn why this format is different from other advocacy efforts and why it is important 📩 If you have any questions, you can reach out to [email protected] 🔗 Register here: https://bit.ly/462wSPf 🔗 Learn more about the round table here: https://lnkd.in/gesDbmJQ

✍ HD-CAB already hosted 12 different advisory boards with different pharmaceutical companies, giving industry partners important inputs and different perspectives related to Huntington's Disease. Check out the feedback we received from our partners at Annexon Biosciences 📩 Interested in learning more? Email [email protected].

🌎 HD-CAB has 40 members, all around the globe. 🙌 Today, we want you to meet Hubert, a board member of the Association Huntington France, who is going to be present in the International Community Round Table Conference in September. 🌐 Get to know all the other members and learn more about HD-CAB in our website, at www.hd-cab.org 🔗 You can register for the Round Table here: bit.ly/462wSPf 🔗 And you can read more here: https://lnkd.in/gesDbmJQ

⏰ The International Community Round Table is coming up! 💭 An important discussion where you will engage in meaningful conversations round broad risk-benefit considerations. This forum is intended to engage as many partners as possible at one time on thematic considerations to help industry and research partners further develop studies, trials and advocacy efforts. 📩 If you have any questions, you can reach out to [email protected] 🔗 Register here: https://lnkd.in/gCu6AWH4 🔗 Learn more about the round table here: https://lnkd.in/gesDbmJQ

✍ HD-CAB already hosted 12 different advisory boards with different pharmaceutical companies, giving industry partners important inputs and different perspectives related to Huntington's Disease. Check out the feedback we received from our partners at PTC Therapeutics, Inc. 📩 Interested in learning more? Email [email protected].