We want all thalassemia patients to live well beyond 70 years, including our adorable thal pal Shelby!! Donate to CAF today and help us provide life-saving treatment, information and education to all patients with thalassemia. #CAF70for70 Donate here: bit.ly/CAF70for70 #thalassemia #thalassemiawareness #thalassemiamajor #donatenow
Cooley's Anemia Foundation
Non-profit Organization Management
Leading the fight against thalassemia
About us
Statement of Purpose The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major. Mission Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley's anemia/thalassemia major.
- Website
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http://www.thalassemia.org
External link for Cooley's Anemia Foundation
- Industry
- Non-profit Organization Management
- Company size
- 2-10 employees
- Type
- Nonprofit
- Founded
- 1954
Locations
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Primary
Get directions
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Get directions
New York, US
Employees at Cooley's Anemia Foundation
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Maria Hadjidemetriou
Rare Disease Speaker and Patient Advocate for Cooley’s Anemia (Thalassaemia)
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Philip Rutigliano,
Connector | Consultant | Serial Entrepreneur | Mentor | Thought Leader
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Steve Hemraj, MPA
Patient experience is paramount to linkage and retention in healthcare
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Shobana Navaneethabalakrishnan
Postdoctoral Researcher
Updates
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Imagine if your dollar is the one that helps us find a cure for all? Please help us in our fight against thalassemia by donating to ensure that all patients live well beyond 70. Donate today: bit.ly/CAF70for70
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Thank you for all of your support bluebird bio!!
Congrats to Cooley's Anemia Foundation on 70 years of supporting the beta-thalassemia community. Thank you for everything you do for people living with beta-thalassemia and their families.
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We want all thalassemia patients to live well beyond 70 years, including our sweet thal pal Jade. Donate to CAF today and help us provide life-saving treatment and education to Jade and all patients with thalassemia. #CAF70for70 Donate here: bit.ly/CAF70for70 #thalassemia #thalassemiaawareness #thalassemiamajor #betathalassemia
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70 reasons to donate to CAF for our 70th anniversary. Donate today and help us find a cure for all thalassemia patients here: https://bit.ly/CAF70for70 Over 70 years, life has changed incredibly for families affected by thalassemia. There's still a long way to go, but with your help we are getting closer to our goal of ending thalassemia for everyone.
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#NewJersey!! Help us raise awareness for thalassemia by supporting this Care Walk event. Thousands of people with thalassemia can live long and full lives with your support. Here is your chance to literally take the steps to help us find a cure!
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Many thalassemia warriors like Ari's mother Teresa need your support to continue living healthy lives until a universal cure for thalassemia is found. Support ChicagoCAF by registering for their walk or simply just to donate here: https://lnkd.in/ePCH7kgk Care Walk is the most impactful and creative way to spread awareness for people with thalassemia. Your participation results in saving the many lives of all patients battling thalassemia by helping our foundation raise funds for medical research for a universal cure for all + better treatment options and resources for the community. Chicago CAF will be walking this Sunday at Horner Park in Chicago!
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The Cooley’s Anemia Foundation sponsors patient incentive awards for those affected by thalassemia to further their education and career goals. These awards will be given in March 2025. Head over to thalassemia.org to apply!
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Our thal pal Lama is here with a friendly reminder to donate blood in order to save lives. Head over to our thalassemia.org to get involved. Your support is literally our lifeblood 🩸 #thalassemia #thalassemiaawareness #thalassemiamajor #betathalassemia #thalassemiatrait #betathalassemiamajor #thalassemiacure #cooleysanemia #thrivingwiththal #thalpals