CompCure

The ISN is pleased to announce its participation in the "Patient Consensus Meeting" hosted by CompCure, a Danish not-for-profit association founded by Marianne Silkjær Nielsen and Thomas Rask Nielsen, who are parents to an affected child. Together with patient groups, kidney health organizations, and public policy advocates, we aim to amplify the voices of those living with kidney diseases and make meaningful changes. The event featured experts like Professor Detlef Böckenhauer, representing the ISN, who presented a speech on "Kidney Health and the International and European Public Policy Agenda." Let’s work together to create actionable solutions for policymakers and advocate for stronger kidney health policies. #ThisIsISN #KidneyHealthMatters

Population screening is essential to detect kidney diseases in their early stages. A simple urine test - which is fast, easy, and cheap – can save lives. Please join the @EKHA Kidney Forum on 28 January in the European Parliament. 🙏 @Raymond Vanholder and Marianne Silkjær Nielsen Register your interest to attend the forum: bit.ly/3Ou3l95 European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure ESPN - European Society for Paediatric Nephrology Tomislav Sokol Andras Kulja MD

Meet Giulia Bassanese, our wonderful coordinating manager at CompCure 💛

The unmet medical needs are high in rare kidney diseases. Although it can be difficult to obtain and receive a specific diagnosis, this is critical to ensure optimal care.   Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 🙏 Stefanie Müller European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

The unmet needs associated with chronic kidney disease are substantial. #CKD is on track to becoming the 5th leading cause of death globally by 2050, and costs more than €140 billion in Europe annually. To bring these worrying trends to a halt, we must enhance programmes that ensure early diagnosis and access to quality treatment. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 🙏 Hilde Vautmans European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

Around 100 million Europeans suffer from #ChronicKidneyDisease, and #CKD costs around €140 billion in Europe annually. CKD is underway to becoming the 5th leading cause of death globally by 2050 and already stands as an #NCD with a considerable disease burden. But this does not have to be the case, and screening and early detection can reduce the impact of CKD on patients and their loved ones and on healthcare systems. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

Timely screening can enable early detection of #kidneydisease. This is essential to ensure optimal care and better outcomes for patients. Let us work together to shorten the diagnostic journey and save lives. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 🙏 Uwe K.H. Korst, Dipl.-Ing. European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

Just before the holidays Adrian Ley invited Marianne Silkjær Nielsen to participate in the FunktioNieren - Podcast. They talked about the challenges, but also opportunities associated with rare kidney diseases, and how patients and caregivers can support better outcomes for their loved ones, and for the community. The podcast is in German, and you can access it, and many other great podcasts, through this link: https://lnkd.in/dsxaPxAF

Happy 2025 🍀❤️⭐️ We are grateful that we can start the year by welcoming 7 new hospitals from 5 different countries to CompCure’s rapidly growing network. We thank the patients and nephrologists from both the current and the new hospitals for their trust and commitment to contribute to a better understanding and thus better outcomes in C3G and IC-MPGN. The new hospitals are: Vienna General Hospital, Austria Medical University of Vienna University Hospital Tübingen, Germany Universitätsklinikum Tübingen Università della Campania, Naples, Italy Ospedale HUB Torino, Italy The Children`s Memorial Health Institute Warsaw, Poland Istanbul University Hospital Cerrahpasa, Turkey Cerrahpaşa Faculty of Medicine Istanbul University Hospital, Istanbul Faculty of Medicine İstanbul Tıp Fakültesi You can see the full overview of hospitals who have joined CompCure and the relevant contact information on our webpage. www.compcure.org Best wishes to all of you for a happy, healthy and fulfilling New Year 💛💫

Best wishes for wonderful Holidays and a very happy New Year 🌟🌲💛