CompCure

The unmet medical needs are high in rare kidney diseases. Although it can be difficult to obtain and receive a specific diagnosis, this is critical to ensure optimal care.   Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 🙏 Stefanie Müller European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

The unmet needs associated with chronic kidney disease are substantial. #CKD is on track to becoming the 5th leading cause of death globally by 2050, and costs more than €140 billion in Europe annually. To bring these worrying trends to a halt, we must enhance programmes that ensure early diagnosis and access to quality treatment. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 🙏 Hilde Vautmans European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

Around 100 million Europeans suffer from #ChronicKidneyDisease, and #CKD costs around €140 billion in Europe annually. CKD is underway to becoming the 5th leading cause of death globally by 2050 and already stands as an #NCD with a considerable disease burden. But this does not have to be the case, and screening and early detection can reduce the impact of CKD on patients and their loved ones and on healthcare systems. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

Timely screening can enable early detection of #kidneydisease. This is essential to ensure optimal care and better outcomes for patients. Let us work together to shorten the diagnostic journey and save lives. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Register your interest to attend: bit.ly/3Ou3l95 🙏 Uwe K.H. Korst, Dipl.-Ing. European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

Just before the holidays Adrian Ley invited Marianne Silkjær Nielsen to participate in the FunktioNieren - Podcast. They talked about the challenges, but also opportunities associated with rare kidney diseases, and how patients and caregivers can support better outcomes for their loved ones, and for the community. The podcast is in German, and you can access it, and many other great podcasts, through this link: https://lnkd.in/dsxaPxAF

Happy 2025 🍀❤️⭐️ We are grateful that we can start the year by welcoming 7 new hospitals from 5 different countries to CompCure’s rapidly growing network. We thank the patients and nephrologists from both the current and the new hospitals for their trust and commitment to contribute to a better understanding and thus better outcomes in C3G and IC-MPGN. The new hospitals are: Vienna General Hospital, Austria Medical University of Vienna University Hospital Tübingen, Germany Universitätsklinikum Tübingen Università della Campania, Naples, Italy Ospedale HUB Torino, Italy The Children`s Memorial Health Institute Warsaw, Poland Istanbul University Hospital Cerrahpasa, Turkey Cerrahpaşa Faculty of Medicine Istanbul University Hospital, Istanbul Faculty of Medicine İstanbul Tıp Fakültesi You can see the full overview of hospitals who have joined CompCure and the relevant contact information on our webpage. www.compcure.org Best wishes to all of you for a happy, healthy and fulfilling New Year 💛💫

Best wishes for wonderful Holidays and a very happy New Year 🌟🌲💛

The unmet needs are high in rare kidney diseases, which also account for most cases of chronic kidney disease in children. Although there are few therapies approved to treat rare kidney diseases, it is still possible to improve the prognoses through early detection and optimal care. Please join us at the EKHA Kidney Forum on 28 January in the European Parliament to support more focus and better outcomes in common and rare kidney diseases. Register your interest to attend the European Kidney Forum: bit.ly/3Ou3l95 🙏 Franz Schaefer, Professor Dr. Med. Paediatric Nephrology, University Hospital Heidelberg (UKHD), Coordinator of ERKNet, President of IPNA European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation CompCure

Kidney disease can also impact other organs systems. By prioritizing early detection and timely management, we can prevent complications and improve the quality of life for the 10% of the European population which is estimated to live with a kidney disease. Please join us at the EKHA Kidney Forum on 28 January in the European Parliament to discuss how we can improve kidney care all over Europe.   🙏 Marianne Silkjær Nielsen, caregiver and founder of CompCure European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet

Kidney diseases tend to appear and progress in silence. Often no one will notice them in the early stages, not even yourself. This is why screening is essential to secure early diagnoses, optimal care, and prevention of end-stage-renal disease. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Together we can support better kidney health in Europe. 🙏 Ida Maria Schmidt, Paediatric Nephrologist, Rigshospitalet, Chair of the Danish Society of Paediatric Nephrology (DaBNeS). Tomislav Sokol European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure