Cholangiocarcinoma Foundation

This Thanksgiving, we’re lacing up for a cause. The annual Turkey Trot is an opportunity to get active while supporting cholangiocarcinoma research and patient services. By participating, we’re making a tangible impact in the lives of those affected by this rare cancer. Let’s step forward together toward a cure. Join us in making a difference this holiday season! #TurkeyTrotForACause #HealthAwareness #CureCCA #CorporateResponsibility #ChooseYourChallenge

✨ From Mentee to Mentor: Vincent & Fred's Inspiring Journey ✨ Meet Vincent and Fred, two incredible members of our #CholangioConnect community. Their connection began through our mentorship program when Fred became Vincent's mentor, offering guidance and support as Vincent navigated his cholangiocarcinoma diagnosis. But what started as a mentor-mentee relationship soon turned into a lasting friendship. Today, Vincent has come full circle—now a mentor himself, he’s paying it forward by supporting others just like Fred once supported him. Together, they embody the strength and compassion of our community. Help us celebrate Vincent, Fred, and all the amazing people making a difference in the lives of patients with cholangiocarcinoma! #Cholangiocarcinoma #StrengthInCommunity #Mentorship #PatientSupport #PayItForward #FriendshipGoals

A huge congratulations to Team CCF for completing the TCS New York City Marathon and raising an outstanding $119,119.42 to support cholangiocarcinoma research and resources for patients and caregivers. This achievement is a testament to the power of community, resilience, and commitment to a cause. Thank you to our runners and everyone who contributed to this success! 💚 #TeamCCF #CureCCA #NYCMarathon #RunningForACure

The CCF Store has awareness merch on pre-sale until 11/23. Order before then to get yours delivered in time for the holidays. The proceeds benefit #cholangiocarcinoma research and patient and caregiver programs, and wearing our merchandise helps spread much-needed awareness. 💚 Order today: https://lnkd.in/epEPqUsD

#NationalFamilyCaregiversMonth is a time to recognize and honor the incredible individuals who dedicate their time and energy to caring for their loved ones. Hear from two legacy #cholangiocarcinoma caregivers, Katie Glenn, and Alyssa (Alie) Plouff, sharing their experiences and advice with the #CCA community. Katie and Alie understand that once you are a caregiver, you are always a caregiver. Through their grief, they share insights and advice to help others and continue to inspire us. Thank you to Incyte for helping us share these important stories, including information on #biomarkertesting and #secondopinions.  #TheChOLLECTIVE #CureCCA #Caregivers #ccahope #strengthincommunity

CCF team members Juan W. Valle, MB ChB MSc FRCP, Stacie Lindsey, and Ash Patel are in Seoul for the 2024 Korean Society of Medical Oncology Liver Cancer Symposium & 7th Asia-Pacific Cholangiocarcinoma Conference. CCF is proud to collaborate on global research and discussions and is excited about how this comprehensive platform for sharing knowledge and fostering collaboration among experts in cholangiocarcinoma and liver cancer helps provide better outcomes. #KSMO #livercancer #cholangiocarcinoma #biliarytractcancers #progress #HopeInResearch

We are hiring a Research Grants Manager! If you are interested, please apply or share with your networks. The Research Grants Manager manages the Foundation's research grant programs and tracks the outcomes of funded research projects, award recipients, and related milestones. This is a great opportunity to be involved in pushing forward research projects that are helping bring solutions to patients and their families. #hiring #researchgrants #grantsmanager #researchchangeslives #remotejobs

Wishing Good Luck to Team CCF’s NYC Marathon Runners! 🗽 This Sunday, November 3rd, 17 determined Team CCF runners will take on the TCS New York City Marathon, each step dedicated to advancing cholangiocarcinoma research and supporting patients and caregivers. 💚 So far, they’ve raised an impressive $100,000! Let’s support them on their journey and help them cross the finish line – in the race and in the fight against cancer. Meet our runners and learn more about how you can help: https://lnkd.in/ezvmi9Sj #TeamCCF #NYCMarathon #Cholangiocarcinoma #RunningForACure #TogetherForACure

✨ Wishing a bright and joyous Diwali to all who celebrate! May this Festival of Lights fill your life with warmth, hope, and happiness. At CCF, we are reminded of the power of light as we continue to shine a light with our community to a path toward a cure and brighter futures. 🕯️🌟

The Cholangiocarcinoma Patient Registry is a vital resource, connecting patients and caregivers with the global research community. By enrolling, participants can: -Contribute to research without added effort: Share your health records from home and aid in crucial research. -Keep medical records organized: Access and share them as needed, including for second opinions. -Accelerate progress: Your de-identified data will help improve diagnostics and treatments. By joining, you become part of a growing community that supports groundbreaking research. Together, we can drive forward efforts to better understand cholangiocarcinoma and develop more effective treatments. Patients and caregivers can register through Cholangiocarcinoma Foundation's trusted partner Citizen Health. Once enrolled, your data supports research with minimal effort. Please join us in this collective mission to advance the future of cholangiocarcinoma treatment: https://lnkd.in/e92tSD3W