💚 To all newly diagnosed patients, and their caregivers and loved ones: We understand that this is a challenging time, but remember: you are not alone! 🤝 Our tight-knit community is here to support, uplift, and encourage each other on this journey. 📦 Receive a free care kit to help you through this time. 🔍 Knowledge is power! Stay informed about the latest treatments, research, and resources. 💪 Learn more at https://lnkd.in/gHF4QPiY #cholangiocarcinoma #curecca #ccahope #clinicsltrials #patientadvocacy
Cholangiocarcinoma Foundation
Non-profit Organizations
Salt Lake City, UT 3,549 followers
Our mission is to find a cure and improve the quality of life for those affected by cholangiocarcinoma (bileduct cancer)
About us
The Cholangiocarcinoma Foundation is a 501(c)(3) non-profit organization. Its vision is to bring about a CURE for cholangiocarcinoma, more commonly known as bile-duct cancer, through Collaboration, Understanding, Research and Education. This Foundation was born out of love, and every hour that has gone into it has been volunteered by board members each one having lost a loved one to cholangiocarcinoma or suffering from cholangiocarcinoma and surviving. Many others have volunteered their time and energy to filling a need. Our vision for the foundation expands every day, it is our hope to find a cure and in the meantime to provide support, to advocate for patients and to educate those who do not yet understand.
- Website
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http://www.cholangiocarcinoma.org
External link for Cholangiocarcinoma Foundation
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Salt Lake City, UT
- Type
- Nonprofit
- Founded
- 2006
- Specialties
- Cholangiocarcinoma, Patient Advocacy, Rare Cancer, Research, Cancer Research, Clinical Trial Navigation, Cancer Support Groups, Bile Duct Cancer, and Liver Cancer
Locations
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Primary
5526 West 13400 South, #510
Salt Lake City, UT 84096, US
Employees at Cholangiocarcinoma Foundation
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Lillie C.
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Briget Nelson, CMM, CITP
Project Management | Business Development | Strategic Leader | Volunteer
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Steve Holmes
Founder & CEO at Cholangiocarcinoma Foundation Australia | Late-Stage, Stage 4 Survivor CCA | Passionate Road Cyclist
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Rick Pollock
Director of Creative Services at Cholangiocarcinoma Foundation
Updates
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Please join this week's Educational Webinar: Exploring a New Treatment Option for Advanced Biliary Tract Cancer Featuring CDX-1140, CAPOX, and Keytruda® with Cecilia Monge B.,MD,MPH,FACP from National Cancer Institute (NCI). This webinar will cover key information about a new clinical trial for #cholangiocarcinoma (bile duct cancer). The trial looks at a drug called CDX-1140, which helps activate the immune system. It is being combined with chemotherapy (Capecitabine and Oxaliplatin) and Keytruda® to treat advanced biliary tract cancer. The webinar will explain how this trial works and who might benefit from it. Visit https://lnkd.in/grJAuTvw to register today.
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The Jackson and Pryor families have turned their personal battles with #cholangiocarcinoma into powerful stories of hope and resilience. Their commitment to supporting the Cholangiocarcinoma Foundation by sharing their stories and raising awareness is truly inspiring. Whether running marathons, fundraising, or advocating for better patient outcomes, these families exemplify strength in the face of adversity. We’re honored to have them as part of our community. Learn more about their stories and how they make a difference: https://lnkd.in/eRw7kVFf #Cholangiocarcinoma #TeamCCF #StrengthinCommunity #MarathonForACause
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We are honored to have Dr. Flavio Rocha and CCF Board Chair Teresa M. Delcorso-Ellmann, highlight the impact of the CCF Research Fellowship program in this video. This program empowers early-career scientists to explore innovative approaches to understanding and treating bile duct cancer. The Fellowships foster critical research, drive collaboration, and accelerate progress toward better treatments and a cure. Both Flavio and Teresa have deep connections to our mission—Teresa as a legacy caregiver and dedicated Board member, and Flavio as a former CCF Research Fellow who is now making strides as a leading surgical oncologist and educator. Check out their insights and learn how CCF is building a legacy of hope through research! #research #hopeinresearch #bileductcancer #cholangiocarcinoma #CureCCA #CCAHope #CancerResearch
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📽 Cholangiocarcinoma 101 Video Series Developed with the CCF Nursing Advisory Board, these videos are intended for newly diagnosed patients and their caregivers. The videos: 📐 Break down complicated information 📒 Help patients understand the diagnosis and terminology ⛓ Connect patients to helpful resources They can be viewed here: https://lnkd.in/ekacRRXv #cholangiocarcinoma #patienteducation #rarecancer
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🚨 Calling all researchers! Submit your abstract for the 2024 KSMO Liver Cancer Symposium & 7th Asia-Pacific Cholangiocarcinoma Conference in Seoul, Nov 2-3. Abstracts relating to all aspects of biliary tract cancer are invited to the conference. Please submit your abstract as an MS Word file(.docx) using the form linked below.
[Abstract Submission Form] 2024 KSMO Liver Cancer Symposium & 7th Asia-Pacific Cholangiocarcinoma Conference
docs.google.com
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We’re pleased to announce that our Luminations videos, "Understanding Your Clinical Trial Results," are now available in Mandarin and Spanish! 🗣️ 👩🔬 Keeping track of treatment options and understanding results can feel overwhelming, especially when language barriers add another layer of challenge. By making this crucial information available in multiple languages, we’re ensuring that more patients and families around the world have access to the insights they need to make informed decisions about their care. 💡 Knowledge is power; no one should be left behind. Help us spread the word by sharing this post! Together, we can bring critical resources to those who need them most. 📽 Videos available here: https://lnkd.in/e2Q7ed6y #Cholangiocarcinoma #ClinicalTrials #PatientCare #HealthcareTranslation #CureCCA #CCAHope
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Please join the Cholangiocarcinoma Foundation Educational Webinar, Demystifying Clinical Trials, with Dean Belcher, a CCF Nursing Advisory Board member from the Department of Medical Oncology, The Christie NHS Foundation Trust. This Thursday, August 22 presentation will help patients understand the purpose of clinical trials and the phases involved. It will also cover some common terminology they may encounter if they participate. Register here: https://curecca.link/aug22 #cancertreatment #clinicaltrials #CureCCA #CCAHope
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📰 The August Bulletin -- Your CCF News! In this issue, you'll find: 🔬 Spotlight on Research Fellowships: Discover how the grants are advancing cholangiocarcinoma research 🌆 Events: Join us in Chicago and/or Seattle in September! 💪 Inspiring Community Fundraisers: Learn how our supporters make a difference in unique and powerful ways 📦 Free Kits and Information: Connections to helpful resources 📽 Patient Education: A new Cholangiocarcinoma 101 Video Series 🗣️ A Conversation with Lynn Lazzaro: Hear from a survivor as she discusses planning for the future while navigating her journey with cholangiocarcinoma See it here 👉 https://conta.cc/3X2XU69 #CCAHope #CureCCA #CancerResearch #cholangiocarcinoma #rarecancer #raredisease #StrengthinCommunity
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