𝐃𝐈𝐃 𝐘𝐎𝐔 𝐊𝐍𝐎𝗪? #CarpenterSyndrome 𝘏𝘢𝘱𝘱𝘺 #𝘊𝘈𝘔𝟸𝟶𝟸𝟺, 𝘵𝘢𝘨 𝘶𝘴 𝘪𝘯 𝘺𝘰𝘶𝘳 𝘤𝘦𝘭𝘦𝘣𝘳𝘢𝘵𝘪𝘰𝘯𝘴 𝘢𝘯𝘥 𝘴𝘵𝘰𝘳𝘪𝘦𝘴 𝘵𝘩𝘪𝘴 𝘮𝘰𝘯𝘵𝘩! #𝘊𝘊𝘈𝘒𝘪𝘥𝘴 -— 🖥️ ccakids.org 💛 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤: / ccakids 💛 𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: @ccakids 💛 𝐓𝐰𝐢𝐭𝐭𝐞𝐫: @ccakidstweet 💛 𝐏𝐢𝐧𝐭𝐞𝐫𝐞𝐬𝐭: @cca_kids 📧 [email protected] DONATE AT: ⚪ ccakids.org ⚪ 𝐏𝐚𝐲𝐏𝐚𝐥: [email protected] ⚪ 𝐙𝐞𝐥𝐥𝐞: [email protected] ⚪ 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤/𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: /ccakids [Image Description: Yellow graphic with a white border and a orange title text that reads: "Carpenter Syndrome" with white text below in orange background that reads “the signs and symptoms of Carpenter Syndrome can vary greatly, even within members of the same family. The main features include premature closure of certain skull bones (craniosynostosis), distinctive facial characteristics, and/or abnormalities of the fingers and toes (digits)" The Bottom Left Corner has a CAM logo] #apertsyndrome #crouzonsyndrome #pfeiffersyndrome #facialpalsy #facialparalysis #hemifacialmicrosomia #goldenharsyndrome #nagersyndrome #craniosynostosis #Hemangioma #CraniodiaphysealDysplasia #Craniodiaphyseal #Dysplasia #treachercollins #carpentersyndrome #coffinlowrysyndrome #antleybixlersyndrome #millersyndrome #neurofibromatosis #moebiussyndrome #pierrerobinsequence #fibrousdysplasia #goldenhar #microtia #moebius #moebiussyndrome
Children's Craniofacial Association
Philanthropy
Dallas, TX 339 followers
Empowering and giving hope to individuals affected by facial differences. We are a family support organization.
About us
Children's Craniofacial Association is a national, 501(c)(3) nonprofit organization, headquartered in Dallas, Texas, but serving the entire US and beyond. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to individuals and families affected by facial differences. CCA envisions a world where all people are accepted for who they are, not how they look. At CCA, we are making the world a kinder place for all people. We fund three main programs: 1. Financial Assistance for children and families traveling to receive quality medical care. CCA can help with ancillary expenses not covered by insurance, such as food, travel, and lodging when traveling for surgery or mdical procedures. 2. We host regional gatherings for families to meet each other and develop friendships, including our Annual Family Retreat and Educational Symposium, where families gather to hear medical and mental health professionals present and conduct workshops on emerging research, self-esteem issues, self-care, parenting, and more. 3. Our Speakers' Bureau and educational curriculum are available to teachers and educators. Buy booking a speaker or engaging with our materials, we hope audiences will come away with a deeper understanding and appreciation of the human experience and learn that we are truly more alike than different. Our goals with this program are to decrease bullying, cultivate conversations, and inspire acceptance that combats the stigma of living with a facial difference. You can learn more at www.ccakids.org.
- Website
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http://www.ccakids.org
External link for Children's Craniofacial Association
- Industry
- Philanthropy
- Company size
- 2-10 employees
- Headquarters
- Dallas, TX
- Type
- Nonprofit
- Founded
- 1989
- Specialties
- Patient Financial Assistance, Annual Family Retreat, Family Networking, Craniofacial Information Resources, children's charity, Educational Outreach, #ChooseKind, Medical Travel, Self Esteem, Kindness, Prevent Bullying, Medical Research, Cleft Lip and Palate, and Craniofacial
Locations
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Primary
Get directions
13140 Coit Rd
Suite 517
Dallas, TX 75240, US
Employees at Children's Craniofacial Association
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Christine Andler
Director Of Development at Children's Craniofacial Association
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Kara Jackman
Communications Specialist II for LeaRRn Network
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Erica Klauber
Executive Director at Children's Craniofacial Association
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Stephen Owen
Top Performing Sales Professional and Speaker’s Bureau Member at Children's Craniofacial Association
Updates
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𝐃𝐈𝐃 𝐘𝐎𝐔 𝐊𝐍𝐎𝗪? #AplasiaCutisCongenita Aplasia cutis congenita is a condition in which there is congenital (present from birth) absence of skin, with or without the absence of underlying structures such as bone. It most commonly affects the scalp, but any location of the body can be affected. 𝘏𝘢𝘱𝘱𝘺 #𝘊𝘈𝘔𝟸𝟶𝟸𝟺, 𝘵𝘢𝘨 𝘶𝘴 𝘪𝘯 𝘺𝘰𝘶𝘳 𝘤𝘦𝘭𝘦𝘣𝘳𝘢𝘵𝘪𝘰𝘯𝘴 𝘢𝘯𝘥 𝘴𝘵𝘰𝘳𝘪𝘦𝘴 𝘵𝘩𝘪𝘴 𝘮𝘰𝘯𝘵𝘩! #𝘊𝘊𝘈𝘒𝘪𝘥𝘴 -— 🖥️ ccakids.org 💛 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤: / ccakids 💛 𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: @ccakids 💛 𝐓𝐰𝐢𝐭𝐭𝐞𝐫: @ccakidstweet 💛 𝐏𝐢𝐧𝐭𝐞𝐫𝐞𝐬𝐭: @cca_kids 📧 [email protected] DONATE AT: ⚪ ccakids.org ⚪ 𝐏𝐚𝐲𝐏𝐚𝐥: [email protected] ⚪ 𝐙𝐞𝐥𝐥𝐞: [email protected] ⚪ 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤/𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: /ccakids [Image Description: Yellow graphic with a white border and a mauve title text that reads: "AplasiaCutisCongenita " with white text below in mauve background that reads “ Aplasia cutis congenita is a condition in which there is congenital (present from birth) absence of skin, with or without the absence of underlying structures such as bone. It most commonly affects the scalp, but any location of the body can be affected." The Bottom Left Corner has a CAM logo] #apertsyndrome #crouzonsyndrome #pfeiffersyndrome #facialpalsy #facialparalysis #hemifacialmicrosomia #goldenharsyndrome #nagersyndrome #craniosynostosis #Hemangioma #CraniodiaphysealDysplasia #Craniodiaphyseal #Dysplasia #treachercollins #carpentersyndrome #coffinlowrysyndrome #antleybixlersyndrome #millersyndrome #neurofibromatosis #moebiussyndrome #pierrerobinsequence #fibrousdysplasia #goldenhar #microtia #moebius #moebiussyndrome
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𝐃𝐮𝐫𝐢𝐧𝐠 𝐂𝐫𝐚𝐧𝐢𝐨𝐟𝐚𝐜𝐢𝐚𝐥 𝐀𝐜𝐜𝐞𝐩𝐭𝐚𝐧𝐜𝐞 𝐌𝐨𝐧𝐭𝐡, 𝐂𝐂𝐀 𝐢𝐬 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐢𝐧𝐠 𝐲𝐨𝐮 𝐭𝐨 𝐡𝐞𝐥𝐩 𝐜𝐡𝐚𝐦𝐩𝐢𝐨𝐧 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐚𝐬 𝐰𝐞 𝐜𝐞𝐥𝐞𝐛𝐫𝐚𝐭𝐞 𝐨𝐮𝐫 𝟐𝟎𝐭𝐡 𝐲𝐞𝐚𝐫 𝐨𝐟 𝐂𝐀𝐌 𝐚𝐧𝐝 𝟑𝟓 𝐲𝐞𝐚𝐫𝐬 𝐚𝐬 𝐚𝐧 𝐨𝐫𝐠𝐚𝐧𝐢𝐳𝐚𝐭𝐢𝐨𝐧! 𝗪𝐞 𝐚𝐫𝐞 𝐒𝐭𝐫𝐨𝐧𝐠𝐞𝐫 𝐓𝐨𝐠𝐞𝐭𝐡𝐞𝐫! We are especially proud to be “Stronger Together”, built on our foundation of 35 years serving patients and their families. As we commemorate 35 years of service, we chose the theme “𝐒𝐭𝐫𝐨𝐧𝐠𝐞𝐫 𝐓𝐨𝐠𝐞𝐭𝐡𝐞𝐫,” because our work is done with our community as the leaders of the facial difference acceptance movement. 𝘚𝘪𝘨𝘯 𝘶𝘱 𝘵𝘰 𝘸𝘢𝘭𝘬 𝘰𝘳 𝘳𝘶𝘯 𝟹𝟻 𝘮𝘪𝘭𝘦𝘴 𝘪𝘯 𝘚𝘦𝘱𝘵𝘦𝘮𝘣𝘦𝘳! REGISTRATION: qrco.de/35milesCCA 𝘛𝘩𝘪𝘴 𝘪𝘴 𝘢 𝘷𝘪𝘳𝘵𝘶𝘢𝘭 𝘤𝘩𝘢𝘭𝘭𝘦𝘯𝘨𝘦, 𝘴𝘰 𝘺𝘰𝘶 𝘤𝘢𝘯 𝘱𝘢𝘳𝘵𝘪𝘤𝘪𝘱𝘢𝘵𝘦 𝘧𝘳𝘰𝘮 𝘸𝘩𝘦𝘳𝘦𝘷𝘦𝘳 𝘺𝘰𝘶 𝘢𝘳𝘦! All proceeds help provide funding for CCA's programs and services as we champion the faces of our wonderful community! #craniofacial #acceptance #month #CAM #35miles #WalkForACause #RunForACause #National #Miles
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𝐃𝐈𝐃 𝐘𝐎𝐔 𝐊𝐍𝐎𝗪? #ApertSyndrome occurs in approximately 1 per 160,000 to 200,000 live births When you have Apert syndrome, you have a 1 in 2 (50%) chance of passing this condition to your child...However, Apert is not a recessive trait, which means that the unaffected child of a parent with Apert syndrome is no more likely to have a child with Apert than any other person 𝘏𝘢𝘱𝘱𝘺 #𝘊𝘈𝘔𝟸𝟶𝟸𝟺, 𝘵𝘢𝘨 𝘶𝘴 𝘪𝘯 𝘺𝘰𝘶𝘳 𝘤𝘦𝘭𝘦𝘣𝘳𝘢𝘵𝘪𝘰𝘯𝘴 𝘢𝘯𝘥 𝘴𝘵𝘰𝘳𝘪𝘦𝘴 𝘵𝘩𝘪𝘴 𝘮𝘰𝘯𝘵𝘩! #𝘊𝘊𝘈𝘒𝘪𝘥𝘴 -— 🖥️ ccakids.org 💛 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤: / ccakids 💛 𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: @ccakids 💛 𝐓𝐰𝐢𝐭𝐭𝐞𝐫: @ccakidstweet 💛 𝐏𝐢𝐧𝐭𝐞𝐫𝐞𝐬𝐭: @cca_kids 📧 [email protected] DONATE AT: ⚪ ccakids.org ⚪ 𝐏𝐚𝐲𝐏𝐚𝐥: [email protected] ⚪ 𝐙𝐞𝐥𝐥𝐞: [email protected] ⚪ 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤/𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: /ccakids [Image Description: Yellow graphic with a white border and a green title text that reads: "Apert Syndrome" with white text below in green background that reads “ occurs in approximately 1 per 160,000 to 200,000 live births. When you have Apert syndrome, you have a 1 in 2 (50%) chance of passing this condition to your child...However, Apert is not a recessive trait, which means that the unaffected child of a parent with Apert syndrome is no more likely to have a child with Apert than any other person" The Bottom Left Corner has a CAM logo] #apertsyndrome #crouzonsyndrome #pfeiffersyndrome #facialpalsy #facialparalysis #hemifacialmicrosomia #goldenharsyndrome #nagersyndrome #craniosynostosis #Hemangioma #CraniodiaphysealDysplasia #Craniodiaphyseal #Dysplasia #treachercollins #carpentersyndrome #coffinlowrysyndrome #antleybixlersyndrome #millersyndrome #neurofibromatosis #moebiussyndrome #pierrerobinsequence #fibrousdysplasia #goldenhar #microtia #moebius #moebiussyndrome
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CAREGIVERS! JOIN US THIS WEDNESDAY!! CCA caregivers and care partners, Wednesdat 𝐚𝐭 𝟕:𝟎𝟎𝐩𝐦 𝐂𝐒𝐓 this week for our caregiver support circle in partnership with 𝐂𝐨𝐧𝐧𝐞𝐜𝐭𝐌𝐞𝐝 𝐈𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 Talk about hot topics you encounter as a caregiver or care partner, tips on kickstarting a mindfulness practice, and more! We come together monthly to cheer each other on through life's ups and downs of being a caregiver and/or parent in our community. Sign up and receive the Zoom link at this registration link https://lnkd.in/g3aScCGs ----------- [Image description: yellow texture background with green and brown font. An image of two hands in a heart next to a picture of staff member Kara, and a logo of ConnectMed International]
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𝐃𝐈𝐃 𝐘𝐎𝐔 𝐊𝐍𝐎𝗪? #AntleyBixlerSyndrome the syndrome is typically associated with premature closure of the fibrous joints (cranial sutures) between particular bones of the skull (craniosynostosis) 𝘏𝘢𝘱𝘱𝘺 #𝘊𝘈𝘔𝟸𝟶𝟸𝟺, 𝘵𝘢𝘨 𝘶𝘴 𝘪𝘯 𝘺𝘰𝘶𝘳 𝘤𝘦𝘭𝘦𝘣𝘳𝘢𝘵𝘪𝘰𝘯𝘴 𝘢𝘯𝘥 𝘴𝘵𝘰𝘳𝘪𝘦𝘴 𝘵𝘩𝘪𝘴 𝘮𝘰𝘯𝘵𝘩! #𝘊𝘊𝘈𝘒𝘪𝘥𝘴 -— 🖥️ ccakids.org 💛 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤: / ccakids 💛 𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: @ccakids 💛 𝐓𝐰𝐢𝐭𝐭𝐞𝐫: @ccakidstweet 💛 𝐏𝐢𝐧𝐭𝐞𝐫𝐞𝐬𝐭: @cca_kids 📧 [email protected] DONATE AT: ⚪ ccakids.org ⚪ 𝐏𝐚𝐲𝐏𝐚𝐥: [email protected] ⚪ 𝐙𝐞𝐥𝐥𝐞: [email protected] ⚪ 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤/𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: /ccakids [Image Description: Yellow graphic with a white border and a purple title text that reads: "Antley-Bixler Syndrome" with black text below in purple background that reads “ the syndrome is typically associated with premature closure of the fibrous joints (cranial sutures) between particular bones of the skull (craniosynostosis)" The Bottom Left Corner has a CAM logo] #apertsyndrome #crouzonsyndrome #pfeiffersyndrome #facialpalsy #facialparalysis #hemifacialmicrosomia #goldenharsyndrome #nagersyndrome #craniosynostosis #Hemangioma #CraniodiaphysealDysplasia #Craniodiaphyseal #Dysplasia #treachercollins #carpentersyndrome #coffinlowrysyndrome #antleybixlersyndrome #millersyndrome #neurofibromatosis #moebiussyndrome #pierrerobinsequence #fibrousdysplasia #goldenhar #microtia #moebius #moebiussyndrome
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#PARTNERSUNDAY 𝘊𝘢𝘳𝘪𝘯𝘨 𝘧𝘰𝘳 𝘢 𝘭𝘰𝘷𝘦𝘥 𝘰𝘯𝘦 𝘥𝘦𝘮𝘢𝘯𝘥𝘴 𝘴𝘪𝘨𝘯𝘪𝘧𝘪𝘤𝘢𝘯𝘵 𝘢𝘮𝘰𝘶𝘯𝘵𝘴 𝘰𝘧 𝘵𝘪𝘮𝘦, 𝘢𝘵𝘵𝘦𝘯𝘵𝘪𝘰𝘯, 𝘱𝘢𝘵𝘪𝘦𝘯𝘤𝘦 𝘢𝘯𝘥 𝘥𝘦𝘥𝘪𝘤𝘢𝘵𝘪𝘰𝘯. 𝐍𝐎𝐑𝐃'𝐬 𝐑𝐞𝐬𝐩𝐢𝐭𝐞 𝐏𝐫𝐨𝐠𝐫𝐚𝐦 𝐩𝐫𝐨𝐯𝐢𝐝𝐞𝐬 𝐟𝐢𝐧𝐚𝐧𝐜𝐢𝐚𝐥 𝐚𝐬𝐬𝐢𝐬𝐭𝐚𝐧𝐜𝐞 𝐭𝐨 𝐞𝐧𝐚𝐛𝐥𝐞 𝐜𝐚𝐫𝐞𝐠𝐢𝐯𝐞𝐫𝐬 𝐚 𝐛𝐫𝐞𝐚𝐤 𝐭𝐨 𝐚𝐭𝐭𝐞𝐧𝐝 𝐚 𝐜𝐨𝐧𝐟𝐞𝐫𝐞𝐧𝐜𝐞, 𝐞𝐯𝐞𝐧𝐭 𝐨𝐫 𝐬𝐢𝐦𝐩𝐥𝐲 𝐡𝐚𝐯𝐞 𝐚𝐧 𝐚𝐟𝐭𝐞𝐫𝐧𝐨𝐨𝐧 𝐨𝐫 𝐞𝐯𝐞𝐧𝐢𝐧𝐠 𝐚𝐰𝐚𝐲 𝐟𝐫𝐨𝐦 𝐜𝐚𝐫𝐞𝐠𝐢𝐯𝐢𝐧𝐠. 𝘛𝘰 𝘭𝘦𝘢𝘳𝘯 𝘮𝘰𝘳𝘦 𝘢𝘯𝘥 𝘢𝘱𝘱𝘭𝘺 𝘷𝘪𝘴𝘪𝘵: https://lnkd.in/e2m7e3Pb #nord #raredisease #caregiver #craniofacial #cleftlipandpalate #treachercollins #moebiussyndrome
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This year, on Thursday, September 19, CCA is participating in Communities Foundation of Texas' North Texas Giving Day, an online giving extravaganza for our whole region! Since its inception in 2009, North Texas Giving Day has transformed from an idea to help local people give wisely, to a movement that has ignited a broad culture of community-wide giving. We invite you to join the movement and help us reach our goal of $3,500 on September 19 from our friends in Texas and beyond. You can signup to give early through: https://ow.ly/Ay2c50T3onJ #NTX #NTXGivingDay #GivingDay #Donate #NonProfit
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𝐇𝐚𝐩𝐩𝐲 𝐂𝐫𝐚𝐧𝐢𝐨𝐟𝐚𝐜𝐢𝐚𝐥 𝐀𝐜𝐜𝐞𝐩𝐭𝐚𝐧𝐜𝐞 𝐌𝐨𝐧𝐭𝐡 💛 2024 marks the 20th year Children’s Craniofacial Association will observe September as Craniofacial Acceptance Month across the nation. Each year CCA families, friends, volunteers and related support groups band together to widen the circle of acceptance for individuals with facial differences. We are proud to keep this tradition alive! View our anticipated schedule for CAM at: https://lnkd.in/en5Ta6t Stay tuned as we share "did you know" posts about different syndromes through the month. #CAM #Craniofacial #Facial #FacialDifference #CAM2024 #CraniofacialAcceptanceMonth2024 #AcceptanceMonth #Cranio #DifferentIsCool #Awareness
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