extended-abstract

Meeting cancer patient needs: designing a patient platform

Authors:

Jeana Frost,

Nienke Beekers,

Bartho Hengst,

Ruud VendelooAuthors Info & Claims

CHI EA '12: CHI '12 Extended Abstracts on Human Factors in Computing Systems

Pages 2381 - 2386

https://doi.org/10.1145/2212776.2223806

Published: 05 May 2012 Publication History

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Abstract

Cancer patients have a variety of unmet informational and support needs. Yet to date, online cancer resources only address a small number of these needs. The goal of this project, kanker.nl, is to address the changing needs of Dutch cancer patients for both information and support. Kanker.nl is a novel collaboration between institutions that provide complementary patient services: a major cancer charity, patient organizations and comprehensive care centers. To design a platform that is both innovative and useful to patients, we conducted a series of design research studies with patients including focus groups, interviews and surveys. Results suggest a demand for this type of platform, openness towards sharing medical information anonymously, and the inherent complexity of information searches in this environment. Based on these findings, we present an interactive prototype and proof of concept.

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van de Graaf DSmeets Tvan der Lee MTrompetter HBaars-Seebregts ABørøsund ESolberg Nes LSchreurs KMols F(2023) Patient-centered development of Embrace Pain : an online acceptance and commitment therapy intervention for cancer survivors with chronic painful chemotherapy-induced peripheral neuropathy Acta Oncologica10.1080/0284186X.2023.218726062:7(676-688)Online publication date: 20-Mar-2023
https://doi.org/10.1080/0284186X.2023.2187260
van de Graaf DMols FSmeets TTrompetter Hvan der Lee M(2023)Coping with and self-management of chronic painful chemotherapy-induced peripheral neuropathy: a qualitative study among cancer survivorsJournal of Cancer Survivorship10.1007/s11764-023-01466-2Online publication date: 23-Sep-2023
https://doi.org/10.1007/s11764-023-01466-2
van de Graaf DEngelen Vde Boer AVreugdenhil GSmeets Tvan der Lee MTrompetter HMols F(2023)Experiences of cancer survivors with chemotherapy-induced peripheral neuropathy in the Netherlands: symptoms, daily limitations, involvement of healthcare professionals, and social supportJournal of Cancer Survivorship10.1007/s11764-023-01402-418:5(1630-1639)Online publication date: 24-May-2023
https://doi.org/10.1007/s11764-023-01402-4
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Index Terms

Meeting cancer patient needs: designing a patient platform
1. Applied computing
  1. Law, social and behavioral sciences
2. Human-centered computing
  1. Human computer interaction (HCI)

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Published In

CHI EA '12: CHI '12 Extended Abstracts on Human Factors in Computing Systems

May 2012

2864 pages

ISBN:9781450310161

DOI:10.1145/2212776

General Chair:
Joseph A. Konstan
University of Minnesota
,
Program Chairs:
Ed H. Chi
Google
,
Kristina Höök
Mobile Life at KTH

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 05 May 2012

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Extended-abstract

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CHI '12

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SIGCHI

CHI '12: CHI Conference on Human Factors in Computing Systems

May 5 - 10, 2012

Texas, Austin, USA

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Overall Acceptance Rate 6,164 of 23,696 submissions, 26%

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Cited By

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van de Graaf DSmeets Tvan der Lee MTrompetter HBaars-Seebregts ABørøsund ESolberg Nes LSchreurs KMols F(2023) Patient-centered development of Embrace Pain : an online acceptance and commitment therapy intervention for cancer survivors with chronic painful chemotherapy-induced peripheral neuropathy Acta Oncologica10.1080/0284186X.2023.218726062:7(676-688)Online publication date: 20-Mar-2023
https://doi.org/10.1080/0284186X.2023.2187260
van de Graaf DMols FSmeets TTrompetter Hvan der Lee M(2023)Coping with and self-management of chronic painful chemotherapy-induced peripheral neuropathy: a qualitative study among cancer survivorsJournal of Cancer Survivorship10.1007/s11764-023-01466-2Online publication date: 23-Sep-2023
https://doi.org/10.1007/s11764-023-01466-2
van de Graaf DEngelen Vde Boer AVreugdenhil GSmeets Tvan der Lee MTrompetter HMols F(2023)Experiences of cancer survivors with chemotherapy-induced peripheral neuropathy in the Netherlands: symptoms, daily limitations, involvement of healthcare professionals, and social supportJournal of Cancer Survivorship10.1007/s11764-023-01402-418:5(1630-1639)Online publication date: 24-May-2023
https://doi.org/10.1007/s11764-023-01402-4
Yin ZWarner JSong LHsueh PChen CMalin B(2019)Learning Hormonal Therapy Medication Adherence from an Online Breast Cancer ForumSocial Web and Health Research10.1007/978-3-030-14714-3_12(233-257)Online publication date: 29-Jun-2019
https://doi.org/10.1007/978-3-030-14714-3_12
Frost JVermeulen IBeekers N(2014)Anonymity Versus Privacy: Selective Information Sharing in Online Cancer CommunitiesJournal of Medical Internet Research10.2196/jmir.268416:5(e126)Online publication date: 14-May-2014
https://doi.org/10.2196/jmir.2684

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