Vasculitis UK is pleased to announce its 2024 grant call for research proposals. The call launches on 16th September with a deadline for applications of 18th October 2024. More information here: https://lnkd.in/ekKNcDpZ #vasculitis #research #grants
About us
Vasculitis UK works with other organisations to raise awareness of vasculitis disease, to improve recognition, diagnosis, treatment tools & continuing care. We support research projects both practically and financially. http://www.vasculitis.org.uk/research Vasculitis UK is a member of RAIRDA, Genetic Alliance UK and EURORDIS. Our aims: To support vasculitis patients To inform and educate vasculitis patients To work with other organisations and professionals to improve the recognition, diagnosis and treatment of vasculitis To raise awareness of vasculitis To support research
- Website
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http://vasculitis.org.uk
External link for Vasculitis UK
- Industry
- Non-profit Organizations
- Company size
- 1 employee
- Headquarters
- Matlock
- Type
- Nonprofit
- Specialties
- s, research, and patient support
Locations
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Primary
Get directions
Matlock, GB
Employees at Vasculitis UK
Updates
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Our lovely trustee Jane Edwards has been interviewed by HealthCentral. Read the article for a glimpse in her 12 years journey of small and large vessel vasculitis with its ups and downs. https://lnkd.in/e8nXm4eC #vasculitis #patientstories #patientvoice #raredisease
Fighting for Her Future
healthcentral.com
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May - Day 30 #VasculitisAwarenessMonth - Large Vessel #Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the clinicians. Take a moment to read Maxine's story! To donate to Vasculitis UK ‘s campaign this month to support patients and #research - https://lnkd.in/eT6ZWjwe #VisualiseVasculitis #RareDisease #LVV #diagnosis #PatientStories #livingwithararedisease
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May - Day 30 #Vasculitis #Awareness Month Vasculitis affects both males and females and sometimes comes with symptoms that can mislead the clinicians. And that is what happen with Nick. He has taken everything to his stride and says: ''So, my life has changed, but I have learned so much, a lot about myself. I can’t put into words how much my wife has helped me'' Take a moment to read Nick's story! To donate to VasculitisUK ‘s campaign this month to support patients and #research - https://lnkd.in/em8sadwM #raredisease #visualisevasculitis #GPA #PatienStories
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May - Day 29 #VasculitisAwarenessMonth Our own 'nose ambassador's' story today! The impact of the ''limited'' #vasculitis in her life was certnly not limited. Advocate for yourself and enjoy your life are her moto. Take a moment to read Jayne's story! To donate to Vasculitis UK ‘s campaign this month to support patients and #research - https://lnkd.in/em8sadwM #Raredisease #VisualiseVasculitis #PatientStories #advocacy #nose
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HUV, HUVS, and NUV are the three subtypes of Urticarial #Vasculitis HUV is diagnosed where the patient has the main symptoms of Urticarial Vasculitis combined with lower than normal levels of #C1q complements and raised levels of anti-C1q #antibodies. #raredisease #patientadvocate #patientstory
May - Day 28 #VasculitisAwarenessMonth HUV is a more severe type of #vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have accepted this new reality and have learnt to cope and advocate for my condition'' Take a moment to read Katerina's story! To donate to Vasculitis UK ‘s campaign this month to support #patients and #research - https://lnkd.in/eT6ZWjwe #VisualiseVasculitis #RareDisease #HUV #PateintStories #PatientVoice
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#Takayasu is a rare type of #vasculitis and it usually appears in young #females, under the age of 40, including young girls. It affects the large vessels of the body, the #aortas.
May - Day 27 #Vasculitis #AwarenessMonth #Takayasu Arteritis (TAK) is a rare type of #vasculitis affecting mostly young females, even children. It can be very complex and it is essential to be under specialist care. Take a moment to read Kelsey - Leigh's story! To donate to VasculitisUK ‘s campaign this month to support patients and #research - https://lnkd.in/gESKQtcn #VisualiseVasculitis #RareDisease #PatientStories #PatientVoice #stroke #heartfailure #TAK
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Unfortunatelly, diagnosis can be challenging in rare diseases and EGPA is the rarest of the ANCA associated vasculitides. A misdiagnosis, and late treatment have an impact in the quality of life of the patient. Think out of the box, connect the pieces, give an early diagnosis - a challenge! #vasculitis #raredisease #PatientStories #PatientsVoice #misdaignosis #patient #qualityoflife #AAV #ANCA #ME
May - Day 25 #VasculitisAwarenessMonth #Fatigue: an extreme sense of tiredness and lack of energy that can interfere with a person's usual daily activities. Example: ''Some days, it's so bad I have to rest between every action, such as brushing my teeth'' Take a moment to read Molly's story! To donate to Vasculitis UK ‘s campaign this month to support #patients and #research - https://lnkd.in/eT6ZWjwe #vasculitis #VisualiseVasculitis #RareDisease #EGPA #PatientStories
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May - Day 24 #VasculitisAwarenessMonth Wendy says: ''I’m always hopeful of discovering new solutions to the ongoing challenge of living with vasculitis.'' Take a moment to read her story! To donate to VasculitisUK ‘s campaign this month to support patients and #research - https://lnkd.in/eT6ZWjwe You can share from: https://lnkd.in/eSWeucDG #VisualiseVasculitis #raredisease #GPA #vasculitis #PatientStories
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From doing triathlon to intensive care to a #vasculitis diagnosis. #raredisease #VisualiseVasculitis
May - Day 23 #VasculitisAwarenessMonth Many times #vasculitis patients have minor symptoms that are dismissed by doctors and even themselves. And suddenly the are so unwell, they land in hospital. Take a moment to read Sian's story! To donate to VasculitisUK ‘s campaign this month to support patients and #research - https://lnkd.in/eT6ZWjwe #rarediasease #VisualiseVasculitis #PatientStories #GPA #intensivecare #anxiety #patientsupport
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