SUDEP Action

Worrying about the return to school? Talk to the school or your child’s teacher about their epilepsy and take positive steps to help your child live safer. Learn more about risks in childhood: https://lnkd.in/d_-uG2Ct #SUDEP #epilepsy #seizure

What could your workplace do for #SUDEPActionDay2024? Help us empower others through increased awareness of SUDEP and epilepsy risks, get in contact with [email protected] for ideas! To learn more about the day, head to: https://lnkd.in/ev28-iTG #SUDEP #epilepsy

Share your experiences and help improve workforce and services for everyone affected by neurological conditions. Fill out My Neuro Survey here: https://lnkd.in/eXgbUJdT #epilepsy #seizures #epilepsyawareness

Sign up for #MyWayto5K today and see where your 5K challenge takes you! As part of the epilepsy community, every person who completes a 5K is supporting the vital work of SUDEP Action. Do your part for #epilepsyawareness this year 🧡 Sign up before this Friday to guarantee an early bird price of just £5. Sign up here: https://lnkd.in/exkes5NW #SUDEPActionDay2024

Come along to our Liverpool Coffee Club meeting on Saturday 14th September, from 1.30pm to 3.30pm. Meet others bereaved by epilepsy. For more information, get in touch: [email protected] #SUDEP #epilepsy

We are still supporting people who first contacted us decades ago because we understand that grief does not go away. It changes as the journey ebbs and flows. Call our support team on 01235 772852 or email [email protected] #sudepaction #SUDEP #epilepsy

Daniel Snelling is doing a tandem skydive on the 14th September on the 16th anniversary of his son, Alfie, who died from SUDEP. “Alfie, our beautiful lil man passed away on 14/09/08. His cause of death was classified as SUDEP (sudden unexpected death in epilepsy). I put him to bed at normal time, and 2 hours later he had passed away.” To support Daniel: https://lnkd.in/eamBVNfp #SUDEP #epilepsy

My Way to 5K is back! Take on your own #MyWayto5K challenge and do your part in raising vital awareness of SUDEP and epilepsy risks this October. On the lead-up to SUDEP Action Day, My Way to 5K is a chance to come together – as creatively as you wish – to fundraise in memory of those we have lost to epilepsy and to help us stop future preventable deaths. Everyone who registers and takes part will receive a SUDEP Action Fabric Wrist Band. The first 50 participants who manages to raise £50 on their fundraising page, will receive a SUDEP Action Teddy! So encourage your friends, family or even colleagues to make their own way to 5K! Sign up now for an early bird price of just £5: https://lnkd.in/exkes5NW #SUDEPActionDay2024 #epilepsy

The SUDEP Action team have had a busy August, find out what we’ve been up to! • CEO Sammy Ashby been our Chief Executive for a year! She’s putting the finishing touches on our new charity strategy – details coming soon! • Our Board of Trustees came to Wantage to meet the team and our new member of fundraising, Lauren 🧡 • We have two big launches, our Children’s Checklist and #MyWayto5K 2024! Head to our website to find out more: sudep.org #sudepaction #epilepsyawareness

Hear from our Digital Projects Manager, Kezie, about the new Children’s Checklist: “I hope this new Checklist will help health professionals feel confident in having conversations with their patients in a positive, personalised and evidence-based way. Knowledge really is power.” Register today: https://lnkd.in/eWttA7rW #SUDEP #epilepsy #seizures