Book Now for Tuesday 10 or Wednesday 11th September 4.30 or 5pm* We’re collecting patient feedback on sickle cell services at UCLH and The Whittington Hospital. You can be frank with your views and we will provide a report at the end for the review team, which does not identify the contributors. In particular, we would like patients/families to share: • Their experience of the quality of services they receive • How well they are involved or engaged about issues regarding their care • The support they receive from healthcare professionals and other members of the team • Any specific service positives and not so positive Attendance is free, by Microsoft Teams. Please book a ticket on Eventbrite so we are aware of numbers : UCLH patients : Tuesday 10th September 4.30pm -5.00 pm - Children, young people and their families UCLH patients : Tuesday 10th September 5.00pm - 5.30pm - Adults UCLH bookings https://buff.ly/47bBjrL Whittington patients : Wednesday 11th September 4.30pm -5.00 pm - Children, young people and their families Whittingham patients : Wednesday 11th September 5.00pm - 5.30pm - Adults Whittington bookings https://buff.ly/3AU4QtV
Sickle Cell Society
Hospitals and Health Care
London, London 4,401 followers
Supporting and representing people affected by sickle cell disorder to improve their overall quality of life.
About us
The Sickle Cell Society believes that individuals with sickle cell disease have the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this. The Society does not discriminate between the types of sickle cell disorders or the ethnic groups concerned. Both sexes are equally affected, and should have equal access to support and services within a confidential and sensitive environment. We respect the views of every patient. We have a network of committed volunteers, who play an important part in running the charity, providing administrative backup, and helping with fund-raising activities. Donations from the public, fund-raising activities and membership fees are also part of our life support. Without them, we would be unable to finance the essential welfare, research and educational projects and we would be unable to offer children a much-needed holiday. The Society benefits from the support of a wide range of individuals and organisations nationally, who together play a vital role in its success. It draws funding support from amongst others the Department of Health, Community Fund, Lloyds TSB Foundation, PPP Healthcare Medical Trust and Goldman Sachs International.
- Website
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http://www.sicklecellsociety.org/
External link for Sickle Cell Society
- Industry
- Hospitals and Health Care
- Company size
- 11-50 employees
- Headquarters
- London, London
- Type
- Nonprofit
- Founded
- 1979
- Specialties
- Sickle Cell Disorder
Locations
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Primary
Get directions
54 Station Road
London, London NW10 4UA, GB
Employees at Sickle Cell Society
Updates
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What is Sickle Cell? How much do you really know about your condition ? Sickle cell disorder is a genetic condition affecting red blood cells, which carry oxygen throughout the body. In this disorder, red blood cells are shaped like sickles or crescent moons, making them sticky and short-lived. These sickle cells can block blood flow, leading to pain and potential organ damage. Painful episodes, known as 'crises,' can be severe and often require hospitalization. Share in the comments—what triggers or tips have you found helpful to watch out for? For more facts, visit our website https://buff.ly/45uA5XA or check the link in our bio.🔗 #SickleCellAwernessmonth #SickleCellAwareness #HealthMatters #GeneticDisorders #StayInformed
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🌟 September is Sickle Cell Awareness Month 2024! 🌟 In line with our theme, Stronger Together, we’re dedicating this month to raising awareness and supporting one another. Join us each week as we share informative posts on Sickle Cell facts, nutrition, and mental health. Let’s make this month an incredible journey of education and empowerment. Stay tuned and let’s make a difference together! 💪❤️ #SickleCellAwareness #StrongerTogether #AwarenessMonth2024 #SickleCellWarrior
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*Book Now for 18 September 4.30 or 5pm* We’re collecting patient feedback on sickle cell services at UCLH. You can be frank with your views and we will provide a report at the end for the review team, which does not identify the contributors. In particular, we would like patients/families to share: • Their experience of the quality of services they receive • How well they are involved or engaged about issues regarding their care • The support they receive from healthcare professionals and other members of the team • Any specific service positives and not so positive Attendance is free, by Microsoft Teams. Please book a ticket on Eventbrite so we are aware of numbers : Wednesday 18th September 4.30pm -5.00 pm - Children, young people and their families https://buff.ly/3XsFewY Wednesday 18th September 5.00pm - 5.30pm - Adults https://buff.ly/3Msve0z
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Appreciation Post! 🎉 A huge thank you to all the incredible ladies from the Haemoglobin Homegirls for their amazing fundraising efforts for the Sickle Cell Society! ❤️ On August 24th, 2024, they took part in the London Summer Walk and raised an impressive £3,293, surpassing their original goal. Congratulations to each of you for completing the walk and making a difference! 🌟👏 A link to their fundraising page can be found below: https://buff.ly/3Z4ajrU #HaemoglobinHomegirls #SickleCellSociety #FundraisingHeroes #SickleCell
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🎉 Appreciation Post! 🎉 A massive shoutout to David Ojo for conquering the iconic Mount Kilimanjaro in June to raise awareness and funds for the Sickle Cell Society. 🏔️❤️ This incredible achievement not only saw David complete the challenging hike, but he also surpassed his fundraising target, raising an impressive £3,989.73, including gift aid. 🌟 Congratulations, David! Your dedication and hard work make a huge difference! 🌍💪 #FundraisingHero #MountKilimanjaro #SickleCellSociety #Inspiration #SickleCell
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On Sunday, the 18th, The Emancipated Run Crew held their 2024 Carnival Run/Walk. It was a fantastic and vibrant day filled with positivity and culture! Our CEO, John James, had the pleasure of joining the crew and connecting with the community. We can’t thank @emancipatedruncrew enough for all their hard work and continued support in raising awareness and funds for the Sickle Cell Society. Make sure to follow them to join their next run/walk! 🎉 We hope everyone has an amazing Carnival weekend!
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Join us for a spectacular Cabaret Fundraiser on September 1st at 6:30 PM! 🎤✨ Enjoy an evening of incredible performances from West End stars, all in support of the Sickle Cell Society. Let’s make a difference together—don't miss out on a night of music, magic, and meaningful change! ❤️ #CabaretForACause #SickleCellSociety #WestEndStars #FundraiserEvent
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We're calling all enthusiastic runners to lace up for an extraordinary cause. 🏃♂️ Join us in the race against Sickle Cell by securing one of our select spots in the 2025 Hackney Half Marathon. This isn't just about setting personal bests; it's about pushing beyond the finish line to help those battling this challenging condition. By joining our team, you'll be part of a movement that's not only about physical endurance but also about heart, compassion, and making a tangible impact. 🌟 Sickle cell affects millions globally, and every stride you take helps fund research, support, and awareness. 🩸 Whether you're a seasoned marathoner or motivated to train for your first half marathon, your effort can change lives. Here's how you can become a #HalfMarathonHero: 1. 📍 Visit https:https://buff.ly/3WNh4eY to claim your race entry. 2. 🗓️ Mark your calendar and start training. 3. 📣 Share your journey and inspire others to join the cause. 4. 🏁 Race day: make every step count for the #SickleCellWarriors! Let's not underestimate the power of community. As we prepare for these events, I'd love to hear your thoughts and experiences. Have you run for a cause before? What motivates you to push through those tough miles? Share your stories in the comments and let’s rally a wave of support – because when we run together, each mile carries a story of hope and strength. 💪 Don't forget to spread the word—share this post and encourage friends and fellow runners to take part. Together, we can cross more than just finish lines; we can bridge gaps in awareness and support. Are you ready to #MakeEveryMileCount? #RunForACause #RunnersCommunity #ChallengeYourself #MarathonTraining #HealthAndWellness #BeTheChange #RunningForGood #EnduranceSports #Sicklecell #SickleCellAwerness #SickleCellSociety
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"Thank you for all you do." We don’t do it for the thanks, but when our team had the pleasure of meeting Letitia Wright, star of the Black Panther movies, at the Supacell premiere, we were touched by her gratitude for the work the Sickle Cell Society does. It was a lovely moment. ❤️ #SickleCellSociety #Supacell #LetitiaWright #Gratitude
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