Vi #anställer en ny Policy and Advocacy Officer i Stockholm, Stockholm County. Ansök i dag eller dela inlägget med ditt nätverk.
IFPA
Ideella organisationer
Stockholm, Stockholm County 1 692 följare
Global leader in fighting psoriatic disease
Om oss
Founded in 1971, IFPA is an international federation of psoriatic disease associations. We are the psoriatic disease community. Our members represent over 60 million people living with psoriatic disease. Together, we advocate for progress. Vision A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities Mission Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.
- Webbplats
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https://ifpa-pso.com/
Extern länk för IFPA
- Bransch
- Ideella organisationer
- Företagsstorlek
- 2–10 anställda
- Huvudkontor
- Stockholm, Stockholm County
- Typ
- Ideell organisation
- Grundat
- 1971
- Specialistområden
- psoriasis, psoriatic arthritis, non-communicable diseases, advocacy, education, IFPA network, psoriasis patients, World Psoriasis Day och World Psoriasis and Psoriatic Arthritis Conference
Adresser
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Primär
Slottsbacken 8
Stockholm, Stockholm County 111 30, SE
Anställda på IFPA
Uppdateringar
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Do you or someone you love live with psoriatic disease? IFPA wants YOU to join us! IFPA’s Psoriatic Disease Ambassadors are hired to raise awareness of psoriatic disease and advocate for change. Together, we can influence policymakers, healthcare providers, and the general public. Your story can improve the lives of millions worldwide. Apply to become a Psoriatic Disease Ambassador at https://lnkd.in/dxP5UJGE #psoriasis #psoriaticdisease #psoriaticarthritis #psoriasiswarrior #psoriasiswarriors #psoriaticdiseaseambassadors
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Psoriatic Arthritis (PsA) is often not well understood, from how early it can be diagnosed to its impact on daily life. Living with and Caring for persons living with PsA and advocating for access to treatment is an unmet need Join us in raising awareness about the impact of #PsoriaticArthritis! What are the key updates to the GRAPPA guidelines for Psoriatic Arthritis and how can use guideline to improve early treatment and prevent comorbidities? With thanks to IFPA global members who participated in reviewing the GoodCare materials at the 2024 members meeting . Look out for the GoodCare for PsA Toolkit which available in Spanish, German, Italian, Portuguese, Japanese - with thanks to support from IFPA global members and Group for Research and Assessment of Psoriasis and Psoriatic Arthritis - GRAPPA Watch video: https://lnkd.in/dcMRW-Bq Explore all the resources and valuable information here: https://lnkd.in/dK_5hqFm
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Join us in raising awareness about #PsoriaticArthritis! Living with #PsoriaticArthritis can mean managing chronic pain, and discussing mental health, reproductive health and intimacy with your healthcare provider can support in your journey. We invite you to explore our Psoriatic Arthritis and guidelines illustration booklet, co-created with patient experts and advocates. It offers valuable information on topics like Intimacy, Reproductive Health, Mental Health, and Children to help guide important conversations aimed to educate and address misconceptions. Catch the conversation between Kathleen Gallant (IFPA) and Dr. Laura Coates (Oxford) on treat to target @GrappaO guidelines & care for PsoriaticArthritis #ACR2024 Watch video: https://lnkd.in/dVrPFj9Z
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Join us in raising awareness about the impact of #PsoriaticArthritis! Download the GoodCare for PsA toolkit. What are the key updates to the @GrappaO guidelines for Psoriatic Arthritis and how can use guideline to improve early treatment and prevent comorbidities? Incase you missed this! Kathleen Gallant (IFPA ) and Dr. Laura Coates (Oxford University) discuss access to care & recent evidence on treatment #treat2target #PsA Toolkit is now available in Spanish, German, Italian, Portuguese, Japanese - with thanks to support from IFPA global members. Watch video: https://lnkd.in/djiNANDJ
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Less than two weeks left for this fantastic webinar, coming up on November 12th: “The Path to Pleasure: Shedding the Stigma of Psoriatic Disease and Intimacy”, presented by Dr. Mitchell Tepper. Dr. Tepper has dedicated his career to helping people achieve satisfying and fulfilling intimate relationships, no matter the obstacles. This is a great opportunity for you to ask questions, so make sure you don’t miss it! 👉Register here: https://lnkd.in/d2bCnQNF #psoriaticdisease #intimacy #family #psoriasisandfamily #psoriaticfamily #IFPA
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Make an impact with your story! By joining IFPA’s Psoriatic Disease Ambassador Program, you’ll inspire and support others affected by psoriatic disease worldwide. Whether you're a person living with psoriatic disease, a loved one, or a caregiver, your perspective is powerful. Stand with a global community to raise awareness and drive change. Apply today to become a Psoriatic Disease Ambassador: https://lnkd.in/dxG4U8AK #psoriaticdisease #psoriaticarthritis #psoriasiswarrior #psoriaticdiseaseambassadors
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IFPA omdelade detta
Today is World Psoriasis Day! In 2024, we raise awareness and focus on the theme #PsoriaticDisease and Family. Facing the complexities of psoriatic disease demands steadfast support. This includes recognizing the challenges faced not only by the individual with psoriatic disease but also by their loved ones. Both those directly impacted by psoriatic disease and their families warrant compassion and solidarity. Let's unite to raise awareness for psoriatic disease worldwide! Learn more about the campaign: ➡️ https://lnkd.in/deHYAjZ9 Watch the WPD video by our amazing team: ▶️ https://lnkd.in/dwk2gQ7u #psoriaticdiseaseandfamily #WorldPsoriasisDay2024
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Grateful for Your Support on World Psoriasis Day! 🙏💜 This year, as we focus on “Psoriatic Disease and the Family,” let’s unite in raising awareness and advocating for those affected. Together, we can empower change, build a compassionate community, and ensure that no one faces this journey alone. Your voice matters—let’s make it heard! #psoriaticdiseaseandfamily #WorldPsoriasisDay2024 #WPD2024 #Psoriaticdisease #psoriaticarthritis
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Thank you for supporting our work on #WorldPsoriasisDay2024 and spreading knowledge of the impact of the family #PsoriaticDiseaseandFamily. Together we are stronger 💜 🧡
Psoriasis does not only affect those living with it, but also their family members. This World Psoriasis Day, LEO Pharma supports IFPA in promoting understanding and helping fight misinformation about the condition that affects at least 100 million people globally – and their family members. A general lack of awareness of psoriasis leads to misconceptions about the disease, resulting in stigmatization and discrimination. This can negatively impact the psychological health of psoriasis patients and their families – who experience similar levels of anxiety and depression. Creating awareness is a crucial step towards increasing acceptance and fighting stigma and ignorance that negatively affect the quality of life of the psoriatic family. Let’s support those living with psoriasis – and those around them. #LEOPharma #DermatologyBeyondTheSkin #WorldPsoriasisDay2024 #WPD2024 #PsoriaticFamily