International Huntington Association

🤲 The International Huntington Association is “hopeful that we get closer to a cure for Huntington’s Disease and is keen on all the research developments that are happening in the community”. Read the full press release and community letter ➡https://bit.ly/4g8NfhW #InternationalHuntingtonAssociation #HD #HDCommunity #Huntington #HuntingtonDisease #HuntingtonsDisease #ClinicalTrials #HuntingtonResearch #Prilenia Prilenia

Our president, Svein Olaf Olsen, talks about the importance of having a partnership like HD-CAB, together with the European Huntington Association and the Huntington's Disease Youth Organization (HDYO).

🙌 Research is important. 🔬 After joining HD-CAB, some advocates answered a survey and this were the results about CAB's impact on their perceptions and knowledge of research. 🌐 If you want to learn more about HD-CAB, visit www.hd-cab.org

⏰ Don't forget to register for the Round Table Conference that is coming up in September! ✏️ Learn why this format is different from other advocacy efforts and why it is important 📩 If you have any questions, you can reach out to [email protected] 🔗 Register here: https://bit.ly/462wSPf 🔗 Learn more about the round table here: https://lnkd.in/gesDbmJQ

📝 Read Jessica's inspiring story about how discovering the presence of Huntington's Disease in her family led to building a support foundation for the Venezuelan HD community! 🔗 Full article here ➡https://lnkd.in/dXxA2Sqb #HD #HDCommunity #HuntingtonsDisease #InternationalHuntingtonAssociation #Huntington #HuntingtonDisease

Don't forget to register for HD-CAB's International Community Round Table! You can register here: https://lnkd.in/dJQz8PCu

✍ HD-CAB already hosted 12 different advisory boards with different pharmaceutical companies, giving industry partners important inputs and different perspectives related to Huntington's Disease. Check out the feedback we received from our partners at PTC Therapeutics, Inc. 📩 Interested in learning more? Email [email protected].

#M42 is setting new standards for medical innovation through a groundbreaking collaboration between IROS CRO, Prilenia Therapeutics, and the International Huntington Association (IHA)! As part of the UAE’s vision to champion novel therapeutic approaches, this strategic partnership will conduct the region’s first-ever clinical trial for Huntington’s disease and support high-quality scientific research in the field, leveraging IROS’s precision-driven clinical solutions. The collaboration agreement was signed in the presence His Excellency Mansoor Ibrahim Al Mansouri, Chairman of the Department of Health Abu Dhabi (DoH) at the DoH stand during the BIO International Convention San Diego, making the pivotal launch of this revolutionary initiative. Read the full story here: https://bit.ly/4cL1kzX

🌎 HD-CAB has 40 members, all around the globe.   🙌 Today, we want you to meet Ashley, known for her #ImNotDrunk lifestyle blog. Ashley is one of the members that is going to be present in the International Community Round Table Conference in September. 🌐 Get to know all the other members and learn more about HD-CAB in our website, at www.hd-cab.org 🔗 You can register for the Round Table here: bit.ly/462wSPf 🔗 And you can read more here: https://lnkd.in/gesDbmJQ

🗣 Have you already registered for the Round Table Discussion on 15th September in Strasbourg, France? 🤝 This equitable and unbiased discussion is important to understand HD community perspectives from the global community. 🔗 You can register here: https://bit.ly/462wSPf 🔗 You can read more here: https://lnkd.in/gesDbmJQ