Papers by Marcia Van Riper
Revista Síndrome de Down: Revista española de investigación e información sobre el Síndrome de Down, 2020
Journal of Midwifery & Women's Health, May 1, 2004
... Feature. Genetic testing for breast and ovarian cancer susceptibility: a family experience. M... more ... Feature. Genetic testing for breast and ovarian cancer susceptibility: a family experience. Marcia Van Riper RN, PhD Corresponding Author Contact Information , E-mail The Corresponding Author and Wendy C. McKinnon MS, CGC [Author vitae]. Available online 5 May 2004. ...
Journal of Midwifery & Women's Health, May 6, 2005
Evidence-Based Nursing, Mar 15, 2023
Revista Síndrome de Down: Revista española de investigación e información sobre el Síndrome de Down, 2021
Journal of Hospice & Palliative Nursing, Dec 1, 2017
Acta Odontologica Scandinavica, Oct 5, 2020
Revista da Escola de Enfermagem da USP, 2021
Objective: To analyze problem-solving and coping strategies of parents of children with Down Synd... more Objective: To analyze problem-solving and coping strategies of parents of children with Down Syndrome in family adaptation. Method: This is a qualitative research that used the Resiliency Model of Family Stress, Adjustment, and Adaptation. Participants were mothers and/or fathers from 40 families of children aged 1 to 7 years diagnosed with DS. Directed content analysis was performed, supported by software and considering a code dictionary. Results: Problem-solving and coping proved to be a set of actions, behaviors, efforts, and communications that contributed to family adaptation and favored balance between the demands imposed by Down Syndrome and the acquisition of resources by the family. Conclusion: In the first moment, which corresponds to the time of news or diagnosis of the syndrome and the first days after birth, internal and external resources, which represent coping, are developed to accept and refocus ideas and feelings towards Down Syndrome. Over time these resources ha...
Heart & Lung, Nov 1, 2017
Carolina Digital Repository (University of North Carolina at Chapel Hill), 2009
Journal of Family Nursing
Down syndrome (DS) is a chromosomal disorder associated with intellectual and physical disabiliti... more Down syndrome (DS) is a chromosomal disorder associated with intellectual and physical disabilities and has historically been viewed by health care providers through a negative lens when considering the effect the condition has on the individual, family, and community. The purpose of this scoping review was to provide an overview of recent research concerning adaptation in families of individuals with DS with a focus on family adaptation rather than individual or dyadic adaptation. Three literature indexes were searched from 2017 to 2022, with 41 articles included. Foci of the studies included strength/resilience, stress/coping, and negative/challenge. Thirteen studies reported using a family framework. Multiple methodological approaches and family measures were used in the studies and are outlined. Findings from this review show there has been a shift in focus when researching families of individuals with DS from a negative and challenging experience to one of strength and resilience.
Cuidados de enfermería materno-infantil, 2020, ISBN 978-84-9113-779-5, págs. 31-45, 2020
European Journal of Oral Sciences, 2022
Archives of Disease in Childhood, 2014
Journal of Pediatric Nursing, 2020
Journal of Intellectual Disability Research, 2019
MCN. The American journal of maternal child nursing
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Papers by Marcia Van Riper