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Exploring Experiences of Self-Directed Care Budgets: Design Implications for Socio-Technical Interventions

Authors:

Rachel E Clarke,

Clara CrivellaroAuthors Info & Claims

CHI '22: Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems

Article No.: 44, Pages 1 - 14

https://doi.org/10.1145/3491102.3517697

Published: 28 April 2022 Publication History

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Abstract

The role of HCI in informal caregivers’ lives has been a focus of research for some time. Yet to gain significance in HCI, are the implications of healthcare systems’ transformation into a personalised care paradigm, where citizens gain choice and control over the delivery of their care. We provide a first HCI paper to examine self-directed care budgets for disabled citizens, where care funding is controlled by the individual. We explore how digital technology can assist citizens, promoting peer support to create meaningful, personalised healthcare infrastructures. This qualitative study contributes insights from interviews and focus groups with 24 disabled citizens, informal caregivers and healthcare officers, to provide understanding of their experiences and practices. These insights highlight relational care, invisible labour, power struggles with authorities and how citizens seek socio-technical capability. We contribute design implications for self-directed care budgets and HCI research concerned with developing technologies that support this population.

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Poon AGuerrero LLoughman JLuebke MLee ASterling MDell N(2023)Designing for Peer-Led Critical Pedagogies in Computer-Mediated Support Groups for Home Care WorkersProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580881(1-18)Online publication date: 19-Apr-2023
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Index Terms

Exploring Experiences of Self-Directed Care Budgets: Design Implications for Socio-Technical Interventions
1. Human-centered computing
  1. Human computer interaction (HCI)
    1. Empirical studies in HCI
    2. HCI design and evaluation methods
      1. User studies

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CHI '22: Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems

April 2022

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ISBN:9781450391573

DOI:10.1145/3491102

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Simone Barbosa
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Cliff Lampe
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David A. Shamma
Toyota Research Institute, USA
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Steven Drucker
Microsoft Research, USA
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Julie Williamson
University of Glasgow, UK
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Koji Yatani
University of Tokyo, Japan

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Glick PCrivellaro C(2023)MyCareBudget: Co-creating a Healthcare Digital Commons with and for Disabled Citizens and their Unpaid CarersProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580934(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580934
Poon AGuerrero LLoughman JLuebke MLee ASterling MDell N(2023)Designing for Peer-Led Critical Pedagogies in Computer-Mediated Support Groups for Home Care WorkersProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580881(1-18)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580881
Pattyn EGemmel PVandepitte STrybou J(2023)Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic ReviewThe Patient - Patient-Centered Outcomes Research10.1007/s40271-023-00624-z16:4(317-341)Online publication date: 8-Apr-2023
https://doi.org/10.1007/s40271-023-00624-z

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