extended-abstract

Sharing medical data vs. health knowledge in chronic illness care

Authors:

Aisling Ann O'Kane,

Helena MentisAuthors Info & Claims

CHI EA '12: CHI '12 Extended Abstracts on Human Factors in Computing Systems

Pages 2417 - 2422

https://doi.org/10.1145/2212776.2223812

Published: 05 May 2012 Publication History

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Abstract

Chronic illnesses are becoming more prevalent worldwide breeding an interest in supporting patient care through electronic health information exchange. Through a study of diabetes patients and the specialists in their care network, the challenges involved in sharing health information from the two perspectives become apparent. There are opportunities in the design of electronic medical information exchange to support the patient's need for knowledge and specialist's need for data, bridging the gap that can lead to tensions and inefficiencies in the management of illness trajectories.

References

[1]

Bardram, J. E., Bossen, C. and Thomsen, A., Designing for Transformations in Collaboration: A Study of the Deployment of Homecare Technology, Proc. GROUP 2005, ACM Press (2005), 294--303.

Digital Library

Google Scholar

[2]

Beard, L., Schein, R., Morra, D., Wilson, K., and Keelan, J. The Challenges in Making Electronic Health Records Accessible to Patients. JAMIA 19, 1 (2011), 116--120.

Google Scholar

[3]

Ferguson, T. Online Patient-Helpers and Physicians Working Together: A New Partnership for High Quality Health Care. BMJ 321, (2000), 1129--1132.

Google Scholar

[4]

GE, Microsoft to Launch Joint Venture Aimed at Global Healthcare System Transformation. http://www.microsoft.com/Presspass/press/2011/dec11/12-07MSGEHealthcarePR.mspx.

Google Scholar

[5]

Hassol, A., Walker, J., Kidder, D., Rokita, K., Young, D., Pierdon, S., Deitz, D., Kuck, S., and Ortiz, E. Patient Experiences and Attitudes about Access to a Patient Electronic Health Care Record and Linked Web Messaging. JAMIA 11, (2004), 505--513.

Google Scholar

[6]

Improving Chronic Disease Management. http://www.idf.org/media-events/pressreleases/2011/diabetes-atlas-5th-edition.

Google Scholar

[7]

Milewski, J. and Parra, H., Gathering Requirements for a Personal Health Management System, Proc. EA CHI 2011, ACM Press (2011) 2377--2382.

Digital Library

Google Scholar

[8]

One Adult in Ten Will Have Diabetes by 2030. http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4075213.pdf.

Google Scholar

[9]

Patel, V. L., Arocha, J. F. and Kushniruk, A. W., Patients' and Physicians' Understanding of Health and Biomedical Concepts: Relationship to the Design of EMR Systems, J Biomed Informatics 35, 1 (2002) 8--16.

Digital Library

Google Scholar

[10]

Ross, S. E., Moore, L. A., Earnest, M. A., Wittevrongel, L. and Lin, C. T. Providing a Web-based Online Medical Record with Electronic Communication Capabilities to Patients with Congestive Heart Failure: Randomized Trial. J Med Internet Res 6, 2 (2004).

Google Scholar

[11]

Rowley, J. The Wisdom Hierarchy: Representations of the DIKW Hierarchy. J of Info Sci 33, 2 (2007) 163--180.

Digital Library

Google Scholar

[12]

Strauss, A. L. and Fagerhaugh, S., Social Organization of Medical Work, University of Chicago Press, Chicago, IL, USA, 1997.

Google Scholar

[13]

Winkelman, W. J., Leonard, K. J. and Rossos, P. G., Patient-Perceived Usefulness of Online Electronic Medical Records: Employing Grounded Theory in the Development of Information and Communication Technologies for Use by Patients Living with Chronic Illness, JAMIA 12, 3 (2005) 306--314.

Google Scholar

[14]

Wu, S. Y. and Green, A. Projection of Chronic Illness Prevalence and Cost Inflation. RAND Health, Santa Monica, CA, USA, 2000.

Google Scholar

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Index Terms

Sharing medical data vs. health knowledge in chronic illness care
1. Human-centered computing

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Published In

CHI EA '12: CHI '12 Extended Abstracts on Human Factors in Computing Systems

May 2012

2864 pages

ISBN:9781450310161

DOI:10.1145/2212776

General Chair:
Joseph A. Konstan
University of Minnesota
,
Program Chairs:
Ed H. Chi
Google
,
Kristina Höök
Mobile Life at KTH

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 05 May 2012

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Extended-abstract

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SIGCHI

CHI '12: CHI Conference on Human Factors in Computing Systems

May 5 - 10, 2012

Texas, Austin, USA

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Overall Acceptance Rate 6,164 of 23,696 submissions, 26%

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Pater JChopra SCarroll JZaccour JNova FToscos TGuha SChang F(2024)Charting the COVID Long Haul Experience - A Longitudinal Exploration of Symptoms, Activity, and Clinical AdherenceProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642827(1-21)Online publication date: 11-May-2024
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Orii LFeldacker CHuwa JThawani AViola EKiruthu-Kamamia CSande OTweya HAnderson R(2024)HIV Client Perspectives on Digital Health in MalawiProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642245(1-13)Online publication date: 11-May-2024
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